Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Turner Syndrome Awareness Month Patient & Parent Panel Join us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections, panelists will speak about what it’s really like to live with Turner syndrome, navigate diagnosis and care, and build resilience along the way. This […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation Choose from a beautiful array of custom-made designer greeting cards. Bid Now Until 3/15! Donate TSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces […]
This session will review different types of hearing loss and causes of hearing loss. It will also provide possible services and resources available. Lastly, it will identify reasonable accommodations that are needed in the home, school, or workplace. Join an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused […]
Join the Legislative Advocacy Information Session Thank you for being part of the Turner Syndrome community. As our efforts continue to grow, we are expanding opportunities for community members to get involved in meaningful, mission-driven advocacy. Whether you are an experienced advocate or just beginning to explore how you can make a difference, we […]
NLN Community Webinar - Turner Syndrome Join us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear, accessible education on how differences in the lymphatic […]
A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20. This is the third year Marianne is supporting the cause. Order https://table.pamperedchef.com/party/2852257aby If you have a small business and would like to support the cause, submit an event form to market your event. 100% of all […]
Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. Westwood Village Mall - 2600 SW Barton Street, […]
Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly, her deeply personal and thought-provoking film. In this WE Learn webinar, Brooke shares the inspiration behind the story, why Turner Syndrome stories must be told, and how film can be a powerful tool for awareness, advocacy, and connection. Discover how storytelling […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
Bloom Spring Auction Benefiting the Turner Syndrome Foundation Welcome to the Bloom Spring Auction, where generosity blooms into impact. Every bid you place directly supports the Turner Syndrome Foundation’s mission to advance research, education, advocacy, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. […]
Join Freddy's as they support Turner Syndrome May 4, 2026 11am - 9pm 2136 Route 35 South, Holmdel, NJ, 07733 How To Participate: In-Store Show flyer or say "I'm here for the fundraiser" at checkout Online/Mobile Use Promo Code: GIVEBACK Freddy's is proud to contribute 15% of event sales
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: How lymphedema may present in infant patients with Turner syndrome […]
Facebook Chat: Occupational Therapy Experiences May 13th, 8 PM ET Join us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation's Facebook page at the scheduled time and respond to the question posted on our timeline every 10 […]
The Role of Occupational Therapy for Turner Syndrome Occupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated […]
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