Star Sisters Monthly Meet-Up Event Be a Star Sister – Meet Others – Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community is offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join […]
Are you an adult with Turner syndrome? We would love to hear about your experiences moving from pediatric to adult healthcare! We’re inviting you to join a research study about the transition from pediatric to adult care for people with Turner Syndrome. Help us make medical care more accessible and affirming for everyone. What […]
Sign Up Form Small actions = Big ripple effects = Meaningful awareness all year long! Raising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. That’s why we created the Turner Syndrome Awareness Crew — a low-commitment, high-impact way to help spread awareness in your community, online, and beyond all year round. When many people […]
Alabama Crimson Tide at LSU Tiger Womens Basketball TURNER SYNDROME BATON ROUGE, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome, a cause close to Head Coach Kim Mulkey, at the February 1 game against Alabama in the PMAC. (center) Coach Mulkey's daughter Makenzie Fuller, granddaughter Sage, grandson Kannon, & […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Turner Syndrome Awareness Month Patient & Parent Panel Join us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections, panelists will speak about what it’s really like to live with Turner syndrome, navigate diagnosis and care, and build resilience along the way. This […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation Choose from a beautiful array of custom-made designer greeting cards. Bid Now Until 3/15! Donate TSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces […]
This session will review different types of hearing loss and causes of hearing loss. Â It will also provide possible services and resources available. Â Lastly, it will identify reasonable accommodations that are needed in the home, school, or workplace. Join an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused […]
Join the Legislative Advocacy Information Session Thank you for being part of the Turner Syndrome community. As our efforts continue to grow, we are expanding opportunities for community members to get involved in meaningful, mission-driven advocacy. Whether you are an experienced advocate or just beginning to explore how you can make a difference, we […]
NLN Community Webinar - Turner Syndrome Join us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear, accessible education on how differences in the lymphatic […]
Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly, her deeply personal and thought-provoking film. In this WE Learn webinar, Brooke shares the inspiration behind the story, why Turner Syndrome stories must be told, and how film can be a powerful tool for awareness, advocacy, and connection. Discover how storytelling […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals.
Come back soon for further details! We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: How […]
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