Turner Syndrome Community Day 1:05 PM – Wilmington Blue Rocks at Jersey Shore BlueClaws ShoreTown Ballpark Lakewood, NJ 08701 The BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to […]
Cardiovascular health is an important topic for the TS community as several concerns are more common in TS than in the general population. In this webinar, Dr. Prakash provides an overview of these concerns and the care guidelines to ensure early detection. After reviewing congenital heart and blood vessel problems that are more common in […]
Hello, Pennsylvania Friends! Join us for a meetup in the park! Enjoy the autumn weather for a wonderful afternoon outdoors. We will meet in the pavilion. Why is Kayla Ganger planning this event? Because women need more places to find connection and belonging. Food will not be provided, but feel free to bring your own […]
Learn about prenatal screening and diagnostic testing, impact on prenatal care, and resources for expectant parents.
Family Fun Night.... Who ya gonna watch? The sixth annual BooClaws Spooktacular returns to ShoreTown Ballpark on Friday, October 24th when the 1984 classic Ghostbusters is shown on the video board! Tickets are $10 pp Fans are encouraged to come in costume. Gates open at 6:00 pm, and the movie begins at 7:00 pm. Activities surrounding […]
Star Sisters Monthly Meet-Up Event Be a Star Sister – Meet Others – Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community is offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join […]
Are you an adult with Turner syndrome? We would love to hear about your experiences moving from pediatric to adult healthcare! We’re inviting you to join a research study about the transition from pediatric to adult care for people with Turner Syndrome. Help us make medical care more accessible and affirming for everyone. What […]
Sign Up Form Small actions = Big ripple effects = Meaningful awareness all year long! Raising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. That’s why we created the Turner Syndrome Awareness Crew — a low-commitment, high-impact way to help spread awareness in your community, online, and beyond all year round. When many people […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
Alabama Crimson Tide at LSU Tiger Womens Basketball TURNER SYNDROME BATON ROUGE, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome, a cause close to Head Coach Kim Mulkey, at the February 1 game against Alabama in the PMAC. (center) Coach Mulkey's daughter Makenzie Fuller, granddaughter Sage, grandson Kannon, & […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Turner Syndrome Awareness Month Patient & Parent Panel Join us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections, panelists will speak about what it’s really like to live with Turner syndrome, navigate diagnosis and care, and build resilience along the way. This […]
Mark your calendars! Every Wednesday in February at 8 PM EST, we’re hosting Turner Syndrome Awareness Month Facebook Chats, and we hope you'll join the conversation! Each week, we’ll dive into a new topic: Feb 4 – Getting to Know You Feb 11 – Education Feb 18 – Careers Feb 25 – Raising Awareness Here’s […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation Choose from a beautiful array of custom-made designer greeting cards. Bid Now Until 3/15! Donate TSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals.
This session will review different types of hearing loss and causes of hearing loss. Â It will also provide possible services and resources available. Â Lastly, it will identify reasonable accommodations that are needed in the home, school, or workplace. Join an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused […]
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