Director and Founding President
Determined to make a difference in the lives of individuals with Turner Syndrome through education, research and support, I founded this organization to advocate for a randomly acquired and complex condition affecting women. Precious lives, families and communities are struggling for answers. Learn more about the Vision for Turner Syndrome.
My work at TSF involves maintaining and developing the many programs and resources we offer for those affected by Turner Syndrome. Advocacy and awareness are cornerstones of my role in order to improve health outcomes for women and girls with Turner Syndrome. Please reach out to me if you are interested in fundraising, organizing a community event, or becoming a volunteer. Together, we can make a difference in our community and our world.
As a current student of Communications with a concentration in Public Relations/Journalism at Monmouth University, I am so excited to work with the Turner Syndrome Foundation. As the Communications Coordinator, I intend to encourage and support those with Turner Syndrome and help those who must have a better understanding. Every individual deserves to have their voice be heard. My role at the Foundation is to advocate for this cause and let their story be known.
Data Analysis & Maintenance
I enjoy volunteering my time with the Turner Syndrome Foundation. Applying myself is rewarding and keeps me in tune with current technologies. Coming here, I get the satisfaction of giving back to my communityand at the same time making new friends in a pleasant office environment.
Consumer Care Coordinator
I graduated as a Neuroscience major from Drew University in the spring of 2017 and I am going to apply to medical school in the 2018 cycle. The more I learned about Turner Syndrome, the more I understood the need for advocacy, research, and support. At the Turner Syndrome Foundation, I know I am contributing to all three of these goals by volunteering. As a volunteer at the foundation, I have the honor of learning the stories of those affected by Turner Syndrome, and attempt to connect them to the resources they need.
Masters Public Health Candidate 2019, Rutgers University
I am currently pursuing my Master of Public Health (MPH) at Rutger’s School of Public Health. My intention is to apply studies of Health Systems and Policy to work with health data and be part of positive changes to how health is handled in the United States, and perhaps even help implement policies that further promote good health. As an undergraduate I studied biology with an emphasis on molecular biology and biochemistry. I think that my undergraduate studies have given me a strong foundation with which I plan to use a scientific and methodological approach to solving any public health issues. My role in working with data sets can possibly elucidate some helpful trends or patterns to improve the quality of life of people affected by Turner Syndrome that lead to improved quality of life.
Veronia S. Hanna
Currently at Columbia University School of Nursing 2019 and Veronia attained a Masters of Public Health degree at Rutgers, The State University of New Jersey 2018. In addition to the IRB study completed in 2018, she has contributed to the development of cardiovascular health initiatives including, Turner Syndrome Council on Cardiology.
Engaged Volunteer Committee:
- Star Sisters Mentorship Group Leader: Leisa Jenkins
- Health Columnist: Dr. Komal Prem