Determined to make a difference in the lives of individuals with Turner Syndrome through education, research and support, I founded this organization to advocate for a randomly acquired and complex condition affecting women. Precious lives, families and communities are struggling for answers.
As the Program Development Coordinator for Turner Syndrome Foundation, I listen to the needs of the women in our community and watch industry trends to create programs that assist in fulfilling TSF’s mission. To ensure program success, I collaborate with colleagues to develop funding proposals, resources, and marketing materials. Outside of the office, I’ve volunteered at TSF events and ran a half marathon and 5K for Team TSF. Being a part of TSF gives me a first-hand view into just how great an impact this organization makes in the Turner Syndrome community, and I am happy to give back in any way that I can!
In the role as Talent & Communication Coordinator, I share the excitement of advocacy opportunities with individuals and companies to encourage support for the important objectives of the Turner Syndrome Foundation. Creating new alliances for a greater awareness, allows me to understand the personal or professional commitment of our talented volunteers. It is my goal to align each with a meaningful way to give back and get involved. There is an opportunity here for everyone.
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It is thrilling to return to the TSF following time abroad with Americorps. I have a double major in Political Science and Sociology and over my time with TSF have gained a passion for this cause. Just because TS is not a widely known issue to the public, does not mean it is not important. It is troubling to know that 1 in every 2000 girls are affected by Turner Syndrome, but I am even more concerned about the fact that up to 99% of affected fetuses are miscarried. Knowing this information, and hearing stories of people who have been impacted personally has given me the drive to devote myself to raising awareness and gaining support for Turner Syndrome patients.
The focus of my work has been reaching out to legislators, business professionals, and other community members in hopes of broadening our network. Relations with legislators are important to pass a bill that would establish centers of care and fund research, so Turner Syndrome is given support structurally. Business professionals, specifically women, have the resources to give grants and share information with their networks, as well as organizing events to benefit the cause. Further, every community member can make a difference by giving a donation, raising funds, organizing a community event, becoming a volunteer, and so much more. Turner Syndrome has the potential to affect anyone in some way, so raising support for the disorder is everyone’s responsibility. I am here to provide you with the tools to support the Turner Syndrome Foundation, so please reach out to me if you are interested in making a difference in your community and in our world.
Masters Public Health Candidate 2019, Rutgers University
I am currently pursuing my Master of Public Health (MPH) at Rutger’s School of Public Health. My intention is to apply studies of Health Systems and Policy to work with health data and be part of positive changes to how health is handled in the United States, and perhaps even help implement policies that further promote good health. As an undergraduate I studied biology with an emphasis on molecular biology and biochemistry. I think that my undergraduate studies have given me a strong foundation with which I plan to use a scientific and methodological approach to solving any public health issues. My role in working with data sets can possibly elucidate some helpful trends or patterns to improve the quality of life of people affected by Turner Syndrome that lead to improved quality of life.
Data Analysis & Maintenance
I enjoy volunteering my time with the Turner Syndrome Foundation. Applying myself is rewarding and keeps me in tune with current technologies. Coming here, I get the satisfaction of giving back to my communityand at the same time making new friends in a pleasant office environment.
Marketing & Publicity Coordinator
Olivia is a music industry major in her senior year. She is a spokesperson for Turner Syndrome Foundation with frequent live posts, motivational messaging and inspirations through TSF social media channels.
Consumer Care Coordinator
I graduated as a Neuroscience major from Drew University in the spring of 2017 and I am going to apply to medical school in the 2018 cycle. The more I learned about Turner Syndrome, the more I understood the need for advocacy, research, and support. At the Turner Syndrome Foundation, I know I am contributing to all three of these goals by volunteering. As a volunteer at the foundation, I have the honor of learning the stories of those affected by Turner Syndrome, and attempt to connect them to the resources they need.
Veronia S. Hanna
Currently at Columbia University School of Nursing 2019 and Veronia attained a Masters of Public Health degree at Rutgers, The State University of New Jersey 2018. In addition to the IRB study completed in 2018, she has contributed to the development of cardiovascular health initiatives including, Turner Syndrome Council on Cardiology.