Determined to make a difference in the lives of individuals with Turner Syndrome through education, research and support, I founded this organization to advocate for a randomly acquired and complex condition affecting women. Precious lives, families and communities are struggling for answers.
As the Program Development Coordinator for Turner Syndrome Foundation, I listen to the needs of the women in our community and watch industry trends to create programs that assist in fulfilling TSF’s mission. To ensure program success, I collaborate with colleagues to develop funding proposals, resources, and marketing materials. Outside of the office, I’ve volunteered at TSF events and ran a half marathon and 5K for Team TSF. Being a part of TSF gives me a first-hand view into just how great an impact this organization makes in the Turner Syndrome community, and I am happy to give back in any way that I can!
In the role as Talent & Communication Coordinator, I share the excitement of advocacy opportunities with individuals and companies to encourage support for the important objectives of the Turner Syndrome Foundation. Creating new alliances for a greater awareness, allows me to understand the personal or professional commitment of our talented volunteers. It is my goal to align each with a meaningful way to give back and get involved. There is an opportunity here for everyone.
I believe that personal connections are an important part of implementing effective solutions to social issues, and will continue to utilize every effort to make the health of Turner Syndrome patients a priority in our society. Liz is currently abroad for two-years with Americorps.
Danielle E. Mouta
I am currently a senior in the field of health studies working on a team to establish deeper connections in the medical field to improve clinical care outcomes for patients with Turner Syndrome. While working at the Turner Syndrome Foundation, I hope to see how the initiatives I support can make a positive impact in raising awareness and improving lives for those with TS.
Jonah is a student at Monmouth University majoring in Chemistry with a concentration in Biochemistry. Jonah is also a part of the pre-med program, and is pursuing a career in the medical field. He is working on a team to establish deeper connections in the medical field to improve care outcomes. His goal as a member of the foundation is to help raise awareness about Turner Syndrome, and support the initiative to improve the lives of those affected by Turner Syndrome.
I graduated as a Neuroscience major from Drew University in the spring of 2017 and I am going to apply to medical school in the 2018 cycle. The more I learned about Turner Syndrome, the more I understood the need for advocacy, research, and support. At the Turner Syndrome Foundation, I know I am contributing to all three of these goals by volunteering. As a volunteer at the foundation, I have the honor of learning the stories of those affected by Turner Syndrome, and attempt to connect them to the resources they need.
I’m interested in working with the Turner syndrome foundation to spread awareness and education about the syndrome. It’s important to offer support to those with any disabilities, to allow for the greatest quality of life. I’m currently a nursing student in a 4 year RN BSN program at Monmouth university. Part of our curriculum includes educating patients on disabilities and illnesses. Health promotion is crucial to make others aware of special accommodations that others may require. I myself struggle with challenges related to food intolerance, making me familiar with sharing information with others about health related issues.
Veronia S. Hanna
Currently at Columbia University School of Nursing 2019 and Veronia attained a Masters of Public Health degree at Rutgers, The State University of New Jersey 2018. In addition to the IRB study completed in 2018, she has contributed to the development of cardiovascular health initiatives including, Turner Syndrome Council on Cardiology.
Alyssa M. Dennis
Hi my name is Alyssa I am 27. I was diagnosed with Turner Syndrome at birth. I am currently a medical assistant at a university affiliated OB-GYN. The mission of the Turner Syndrome Foundation is inclusive and welcomes all to participate in patient outreach to increase education and facilitate support to all young girls and women with Turner Syndrome. It’s highly important that our families know we are here to help, communicate, and bring comfort to them through these efforts. It is a rewarding experience to help others and this good cause.
Olivia is a music industry major in her senior year. She is a spokesperson for Turner Syndrome Foundation with frequent live posts, motivational messaging and inspirations through TSF social media channels.
I enjoy volunteering my time with the Turner Syndrome Foundation. Applying myself is rewarding and keeps me in tune with current technologies. Coming here, I get the satisfaction of giving back to my communityand at the same time making new friends in a pleasant office environment.
I am currently pursuing my Master of Public Health (MPH) at Rutger’s School of Public Health. My intention is to apply studies of Health Systems and Policy to work with health data and be part of positive changes to how health is handled in the United States, and perhaps even help implement policies that further promote good health.
As an undergraduate I studied biology with an emphasis on molecular biology and biochemistry. I think that my undergraduate studies have given me a strong foundation with which I plan to use a scientific and methodological approach to solving any public health issues. My role in working with data sets can possibly elucidate some helpful trends or patterns to improve the quality of life of people affected by Turner Syndrome that lead to improved quality of life.
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