Essentials
Essential Blog Posts
Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025
The 2025 Strikeouts for Turner Syndrome campaign was a powerful reminder of what community, advocacy, and compassion can achieve together. This initiative—born from the hearts of Pete and Lydia Fairbanks in loving memory of their daughter, Ellis—was a heartfelt call to action to raise awareness, spark conversations, and ensure that no family facing Turner syndrome
After Awareness Month the Beat Goes On
Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can
Powerfully Impacting the TS Community: Legislative Advocacy
  There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for
What School Psychologists Need to Know About Students with Turner Syndrome
Subscribe to our blog Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their challenges. Below is a review of an article from the National
Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages
Subscribe to our blog Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis and educating the child about their condition. It increases knowledge, self-advocacy,
Turner Syndrome and the Importance of Newborn Screening
Subscribe to our blog Medical advancements in newborn screening have improved the early diagnosis and treatment of chronic diseases, including Turner syndrome (TS). This screening is efficient, cost-effective, and although not frequently talked about, includes routine tests that take place prenatally or immediately after birth. Since September is Newborn Screening Awareness Month, we will take
