What do historical figures have to do with the future of Turner Syndrome? They show us the power that one person and one organization can have. Jane Addams is a great example. Unsure of her own path in life, Jane noticed the poor living conditions in the industrial centers of 1889 Chicago and chose to make a change. She dedicated her life to nursing the sick, feeding the hungry, and educating the youth of Chicago. Her accomplishments eventually won her a Nobel Peace Prize and the position of President Herbert Hoover’s assistant.
Jane’s story represents the influence just one person can have in the world, but what if those individuals join together? Aldon Morris, an award-winning scholar, studied how the American Civil Rights Movement was so successful. He lists a number of reasons, such as media attention and economic consequences – but the main reason he calls the Civil Rights Movement “genius” is because of the sheer number of people that organized together over a common goal to make change happen.
These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you? Are you a good writer, an excellent speaker? Are you well connected within your community?
Take a moment and think about how you can use these powers to raise awareness for Turner Syndrome. Writers: will you write to your legislators asking them to declare Awareness Month on a national scale? Those who are well connected: will you ask your colleagues and friends to help you support a cause that’s important to you? Those who love to entertain friends and family: will you plan a Turner Syndrome fundraiser?
At this time of year, you’re probably seeing a lot of requests from charities asking you to donate. But donating your time is equally important to us at TSF. Take a stand, get involved, find your voice – and one day you’ll look back at how much Turner Syndrome care has improved because of you.
Start today. Register below and select your interest in volunteering and a volunteer coordinator will reach out to you shortly.
Planned or legacy giving forms a charitable gift now that will go to the organization of your choice in the future. “Planned” gifts are unlike usual donations because you should consult a lawyer and financial planner when setting them up. You don’t need to worry. Although planned giving takes some thought and consideration, it isn’t complicated. After speaking with your lawyer and financial advisor, a planned gift will add just a few minutes and few sentences to your will.
When you designate a gift in your will to TSF, you are supporting Turner Syndrome awareness and research long into the future. Your thoughtful planning today leaves behind the promise for a better tomorrow for every baby born with Turner Syndrome. You’ll also gain tax benefits under state and federal law.
Turner Syndrome Foundation has created brochures detailing the various ways you can designate a planned gift. Visit https://turnersyndromefoundation.org/become-supporter/planned-giving/ to learn more.
Are you the grandparent of a girl or woman with Turner Syndrome? We want to thank you for being here, for seeking knowledge and understanding for your granddaughter.
Grandparents reach out to TSF just as frequently as parents. They’re often hoping to understand what their granddaughter is going through and looking for resources to help her. Grandparents also contact TSF for support for coping with a new diagnosis.
Today, we’re sharing tips specifically for grandparents on coping with a diagnosis. How can you get involved now while supporting you son or daughter who just received a diagnosis for their child? Keep reading to find out!
Turner Syndrome Foundation is happy to provide personalized support to each person that contacts our office free of charge. We know how important a listening ear or a reassuring voice can be at this challenging time of a new diagnosis. Your donation today can allow TSF to continue providing one-on-one support to those who need it most.
Here is a way to make a difference in your community. Find a race near you and register, set-up your Team TSF fundraising page, get your family and friends involved, lace your shoes, and run your race! That simple. Best part is… you don’t have to be an athlete, anyone can do it.
Don’t want to join a race but still want to DO SOMETHING? Raise funds online or host an event of your choice! No experience is not an excuse. We are here to help!
Question? Email email@example.com or call 732-847-3385
“My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At 10 weeks we had an ultrasound and they found a cystic hygroma on the baby’s neck. We were sent for CVS testing and received the results two weeks later.
We were told that our baby had non-mosaic TS, and that the combination of the TS and the hygroma gave her no chance of survival. The doctors recommended that I terminate the pregnancy due to my emotional state.
At 14 weeks we went in for a repeat ultrasound. The cystic hygroma shrunk significantly, and her chances of survival were raised to 0.5%. The pregnancy was difficult. I had low amniotic fluid throughout, so I could not feel any movement. We never knew if she was OK in there, but we hoped for a miracle.”
Kourtney is not the only mother who is heartbroken at the time of diagnosis. A lack of TS knowledge often leaves family members feeling confused and lost. This is where the Turner Syndrome Foundation comes in. Our mission to increase Turner Syndrome awareness and education can help mothers like Kourtney find hope in a troubling time. With your support, we can continue offering information free of charge, so family members can learn about Turner Syndrome in a safe, hopeful place.
“Natalie is the most amazing, wonderful kid you could meet. There is not a person who meets her who does not love her on the spot. She is incredibly smart, beautiful, and full of life. When she goes in for her bi-anual blood-work, she thanks the doctors and says, ‘See you soon.’ She knows each of her 10 doctors by name, and what they check her for. When Natalie enters a room, she immediately lights it up. My entire family is convinced that she was sent here to make us all smile and appreciate how wonderful life is.“
Your support of the Turner Syndrome Foundation today will help parents and family members like Kourtney navigate a new diagnosis. Only you can bring hope to those who need it most.
Register for a webinar, Star Sisters Unite Power of Positivity –
Presenter: Chrissy Timpson, 2018 Mrs. New Jersey
Presentation topic: The power of positivity
Topic is suitable for all ages
In the final months of the year, many charitable organizations begin reaching out for support to help power them through the coming year. Did you know there are more than 1.5 million nonprofit organizations registered in the United States? However, 54% of donors give to the same 20 organizations! We’re sharing some information below to show you why the Turner Syndrome Foundation is a good fit for you this year!
The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome.
Each year, TSF partners with physicians, legislators, industry leaders and more to raise a greater awareness through education, research, and advocacy – all while providing one-on-one support to patients on demand.
We currently have exciting projects in the works! For example, the Turner Syndrome Council on Cardiology commissioned by TSF is developing materials to educate physicians on cardiovascular health in Turner Syndrome care. Did you know more than 50% of TS women will have a heart defect, putting them at a great risk of early mortality? Your support will help change this.
We never charge anyone to access the wealth of information on our website. We believe these life-changing resources should be available to those who need it, when they need it. Other organizations can’t say that.
You can learn more about TSF by visiting the About Us section of our website. You can also visit our GuideStar and GreatNonprofits pages to hear testimonies and learn more about our specific programs.
Two simple words deserve repeating. Thank you! Thank you to all who give generously of themselves to empower the enduring mission of the Turner Syndrome Foundation. You are the selfless heroes who go above and beyond personal responsibilities to give back and make a difference in the lives of others. You make this mission a reality.
You support this cause meaningfully because you care. Gifts of support in all amounts contribute greatly. Whether you are a one-time donor, an annual donor or a major donor, equally you sacrifice to support this cause. Thank you. We are stronger with you.
You, our volunteers, interns and staff are the engine of this mission. You develop and execute programs with core values to improve and save lives. Thank you. Your talent shapes the future of TS.
Educators, clinicians and researchers dedicated to a greater understanding of Turner Syndrome enlighten the world and bring hope to the future of TS. It is because of you that we see progression in education and research initiatives. Thank you. Your contribution to these initiatives advance this cause.
We here at the Turner Syndrome Foundation are thankful for your kindness and generosity! With your support we lesson the suffering of people. Together, we thoughtfully tackle issues that would otherwise be ignored. Thank you. You are a gift to this cause. You make this mission thrive!
We invite you to view the Annual Report to learn more about the power and promise of this mission. Thank you. You help the people we serve.
Autumn is a beautiful time of the year. During this season of reflection, we join together in thanks and gratitude for traditions that shape our lives. For those who seek comfort during this time of the year, we hold you close in our thoughts and send an embrace of support. Peace and blessings to all on this Thanksgiving.
Laura Fasciano, Director & Founding President
The holidays are a time when friends, family, coworkers, and more get together to celebrate! There are many reasons to host a holiday party – ugly sweater parties, Secret Santa soirees, and year-end office gatherings to name a few. You can turn any of your usual get-togethers into a Spirit-of-Giving holiday party just by adding a giving back component!
A giving back theme can liven up your usual party or start a new tradition in your neighborhood that your community will appreciate for years to come! Your party doesn’t need to be a fundraising gala or expensive rendezvous – unless you prefer that, of course! A Spirit-of-Giving party isn’t about the decorations; it’s about offering a chance for your guests to do good!
There are a few ways your holiday party can give back to TSF!
Fun Ways to Encourage Your Guests to Give:
Giving back can be just as fun and festive as your usual party – and make it that much more special! So gather your community, support an important cause, and go into the New Year feeling amazing! Get started by completing the interest form below.