Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution for you!
Hosting a Casual or Jean Day Fundraiser is a simple way to raise awareness while supporting TSF. What is Casual Day? Your workplace will wear jeans or casual wear for one day during the month of February to show their support of TS awareness! With guidelines as simple as “wear your favorite jeans,” everyone can participate!
It’s that simple! Are you ready to start FUNdraising?! Here are some ideas of how to make an even greater impact!
Raise awareness while you shop when you support your fellow volunteers’ Awareness Month fundraisers! Pampered Chef, Swarovski Jewelry, custom cards, and more!
February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more!
Everyone wants to raise awareness for a different reason because each Turner Syndrome story is so unique. Caregivers searching for ways to share a diagnosis are probably here for different reasons than a woman looking for adult resources. Or maybe you want to support someone affected by TS in your life. No matter what brought you here, it’s safe to say that we all want to raise awareness and make an impact for the future of Turner Syndrome care.
Awareness Month is so important because it is an opportunity for our community to come together. One person can make a tremendous impact, but together we can bring awareness to Turner Syndrome on a national scale!
This Awareness Month, we’re celebrating the power of one! If one person takes one action, the impact can be incredible! February is a special opportunity to show the world why Turner girls are amazing and why it’s important to recognize the signs of this condition that’s often misdiagnosed. Will you take a stand with us?
We have a toolkit for you sharing four easy ways you can take action! For most of them, you don’t even need to leave your living room! Like posting on social media or signing the online awareness petition. The toolkit also features resources to help you make a difference, from talking points to flyers and more!
Register now to receive the Awareness Month toolkit. One lucky winner who completes all 4 goals in the toolkit will receive free entrance to the Autumn Retreat! Goal #1 (Be the image of TS awareness with a personalized poster) will be completed for you once you register, so check your inbox!
“I am selling my homemade cards on the Cards for Charity Facebook page with all money from the sales being donated to the Turner Syndrome Foundation from now through March. Some of the lovely designers have sent me their cards to sell as well for the benefit of the Turner Syndrome Foundation.” – Lori, TS Mother
All homemade cards are blank on the inside and come with an envelope and are $6 each but if you buy 3 cards at a time they are then $5 each (or 3 cards for $15) Local pick-up in the Toms River area or free shipping. Payment is by paypal and the cards will be mailed out after the paypal payment is made.
Go to the Cards For Charity facebook page here: https://www.facebook.com/handmadecardsforcharity/ to view the cards. If you see a card or cards that you like either post sold under the picture of the cards you would like to purchase or send me a private message on facebook with the description of your card. I will need your e-mail address to send you the invoice for the cards. So I will be in touch with you after I see the sold message on the card or the private message that you send me through facebook.
You may also be interested in Lori’s Blog Hop.
What’s a Blog Hop? It’s a great way to get lots of stamping, die cutting and card making inspiration! You just click on all the Design Team links on the blog (My Turner Syndrome Journey Blog) here: https://myturnersyndromejourney.blogspot.com/ and go to the “It’s A Girl Thing” Turner Syndrome Awareness Inaugural Blog Hop (You will find the list at the end of this page) and move from one blog after another to read the entries, see awesome projects and leave comments about what you like about each project for a chance to win prizes.
February is Turner Syndrome Awareness Month. You can do something too, and be part of this awareness initiative.
Question? Contact firstname.lastname@example.org | 732-847-3385
My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed some signs of Turner Syndrome, but doctors never put it together. I was always the shortest in my class, had a webbed neck, and experienced hearing problems.
At 16, my mom was concerned about my growth and puberty. I had a DNA test, which finally confirmed my Turner Syndrome. It was scary at first not understanding Turner Syndrome and being a teenager. Luckily, I learned quickly not to let it stop me. Meeting others with Turner Syndrome helped me as well. I went to college got my BA and Masters in Counseling.
I am currently a retired teacher and a volunteer advocate for the Turner Syndrome Foundation in my home state of New Jersey. We were instrumental in getting a bill passed that made February Turner Syndrome Awareness Month in New Jersey. I phoned, emailed, and even testified in front of the NJ Senate. Currently, I volunteer by talking with others about Turner Syndrome for the TSF.
I want every Turner Syndrome baby to have the advantages I didn’t have due to my late diagnosis. I have a passion for awareness and hope to help girls receive a much earlier detection. It is rewarding to help others.
Like Kym, you can be the change and influence the future of Turner Syndrome care. The easiest way to get involved is by making a donation today. Your support allows TSF to continue offering support and resources to volunteers like Kym who are dedicated to making a difference.
Giving Stock, Bonds, or ETF Shares To Turner Syndrome Foundation is a smart way to increase your gift – and your tax deduction. When you donate appreciated stock shares that you have owned for at least one year to Turner Syndrome Foundation, you will:
Lets say you bought $500 worth of stock several years ago and that stock is now worth $1,000. You could sell the stock for $1000 and send a check to TSF for $1,000. (Thank you!) When tax time comes around, you will have a charitable deduction of $1,000 but have to pay capital gains tax on the $500 gain. At 20% this would be $100. If, however, you donate the stock directly to TSF, the IRS still gives you the charitable deduction of $1000 but there is no tax on the gain. So you saved $100 on your donation!
Stock contributions are even more powerful in 2018 under the new tax law. Federal tax benefits for paying state capital gains taxes have disappeared, meaning combined federal and state capital gains tax rates went up. Fortunately, by gifting appreciated assets you are able to bypass those capital gains taxes. To avoid all capital gains taxes, donors can do a “charitable swap” to maintain their portfolio after their gift. Instead of donating, give stock to TSF in the same value you would like to donate. Then use the cash you would have donated to replace the donated shares. With a “charitable swap,” you can avoid capital gains taxes completely while keeping your portfolio!
Give smart and from the heart by donating stock to Turner Syndrome Foundation today! Learn more at https://turnersyndromefoundation.org/become-supporter/stock-contributions/
My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What is Turner syndrome?” our doctor said, “If I were in your shoes, I would consider terminating the pregnancy.” Devastated, we proceeded to find out everything we could about Turner syndrome. Our choice was never to terminate, but we wanted to find out what was ahead for our child and why a doctor would say something like that. It turns out, our doctor didn’t even know herself what Turner syndrome was.
So many years later it still amazes me how little information is out there regarding a syndrome that affects 1 in 2000 females – and many more who are conceived but sadly do not survive. Only 2% of fetuses with Turner syndrome make it into this world. That statistic in really unbelievable to me, my family, and my now 16-year-old Olivia. It’s also unbelievable that although so many are affected by Turner syndrome, we still have to educate many doctors, educators, and the medical community about this condition.
Olivia, a 45X is the most amazing young lady. Yes, she has differences and struggles. Yes, she has a non-verbal learning disorder. Yes, she had heart surgery at 2 months old to repair the coarctation of her aorta. Yes, she has some hearing loss and wears a hearing aide in one ear. Yes, she is affected by Turner syndrome. And yes, she is simply AMAZING!
We truly believe God puts people in our paths for a season, reason or lifetime. My husband Gary and I met Laura Fasciano at a conference. We were blessed to do what we could to help launch the Foundation. Sadly, my husband, Olivia’s dad, became ill and passed away in 2014. He was Olivia’s biggest fan and also the Foundation’s. Gary is our Turner syndrome angel in the outfield. He knew the Foundation would reach great heights to help all women and girls affected by TS.
Without funds, it is impossible for the Foundation to keep going to make all of the struggles and differences TS girls face easier to live with. We need support for research, education and awareness. We need to keep fighting for these babies, girls, and women. They are our children, sisters, wives, moms and the strongest females on this planet! As my Olivia says, “Just remember the statistics: 1 in 2000 are affected and 98% don’t survive to make it into this world.” Please consider giving what you can.
Join Doreen and Olivia in bringing hope to this mission with a donation today.
What do historical figures have to do with the future of Turner Syndrome? They show us the power that one person and one organization can have. Jane Addams is a great example. Unsure of her own path in life, Jane noticed the poor living conditions in the industrial centers of 1889 Chicago and chose to make a change. She dedicated her life to nursing the sick, feeding the hungry, and educating the youth of Chicago. Her accomplishments eventually won her a Nobel Peace Prize and the position of President Herbert Hoover’s assistant.
Jane’s story represents the influence just one person can have in the world, but what if those individuals join together? Aldon Morris, an award-winning scholar, studied how the American Civil Rights Movement was so successful. He lists a number of reasons, such as media attention and economic consequences – but the main reason he calls the Civil Rights Movement “genius” is because of the sheer number of people that organized together over a common goal to make change happen.
These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you? Are you a good writer, an excellent speaker? Are you well connected within your community?
Take a moment and think about how you can use these powers to raise awareness for Turner Syndrome. Writers: will you write to your legislators asking them to declare Awareness Month on a national scale? Those who are well connected: will you ask your colleagues and friends to help you support a cause that’s important to you? Those who love to entertain friends and family: will you plan a Turner Syndrome fundraiser?
At this time of year, you’re probably seeing a lot of requests from charities asking you to donate. But donating your time is equally important to us at TSF. Take a stand, get involved, find your voice – and one day you’ll look back at how much Turner Syndrome care has improved because of you.
Start today. Register below and select your interest in volunteering and a volunteer coordinator will reach out to you shortly.