Turner Syndrome FoundationEveryone has a story to tell...
Every individual and their family deserve to be heard and for those that wish to share their personal story, we provide you with this platform. Our platform will also allow you to raise funds for this cause, which can multiply your impact.
Help raise awareness and support for Turner Syndrome with your story. Each one of us can raise a voice to create a better understanding of the impact Turner Syndrome has on lives. When you share your story, you are enabling us to tell others about the needs of this community to seek positive change.
“I didn’t realize my life’s story was interesting enough or would benefit someone else. I’m taken by the response.”
Post your story in three easy steps.
- COMPLETE the form on which you share your story. Upload a photo and write your personal story. Personal stories can be about living with, caring for or loving someone affected by Turner’s. We will then contact you about publishing your story to our website (see examples below).
- CREATE your fundraising page. Kickstart your fundraising with a donation, which encourages others to support you! Raise awareness by sharing your story. Honor, celebrate, keep your friends & family supporting this cause! These pages can be edited and shared over and over again.
- SHARE your page. The information you post will be public information on the world wide web. You should consider only entering information you are comfortable sharing. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.
Influence support for advancements in Turner Syndrome care!
If you need any help setting up your personal story page, feel free to contact us for assistance:
Call: (800)594-4585
Email: info@tsfusa.org
Turner Syndrome Stories
You Are Enough (It’s a Girl Thing)
February is Turner Syndrome (TS) Awareness Month, and the Turner Syndrome Foundation (TSF) has several awareness and educational activities throughout the month. One of them is a blog hop and cardmaking challenge (see more information below). As a woman with
My Story: We Are Unstoppable
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old,
My Story: I’ve Never Let Turner Syndrome Slow Me Down
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, Dori, a 43-year-old woman who was diagnosed with TS at four years old, shares her
My Story: Advice for Patients and Parents
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has
My Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than
My Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has
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