My Story

My Story (2)

This is my time and this is my story.

A story can bring hope, healing, and support to so many. Thank you for sharing yours!

This is a place to share your personal journey of diagnosis, building positive support systems and becoming an active contributor in pursuit of awareness, advocacy and new science.  We believe every individual and their family deserves to be heard and for those that wish to share their personal story, this is your platform.

“I didn’t realize my life’s story was interesting enough or would benefit someone else. I’m taken by the response”, one woman shared.  

The information you post will be public information on the world wide web. You should consider only entering information you are comfortable sharing. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions.  TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.


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