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Making February “Turner Syndrome Awareness” Month

Making February Turner Syndrome Awareness Month

ABOUT

The Turner Syndrome Foundation urges everyone to take action by calling on their state legislators in order to make February Turner Syndrome Awareness Month. Turner Syndrome affects 1 in every 2000 girls and causes health and developmental barriers. A first step in raising awareness is to establish Turner Syndrome Awareness Month in February on a national scale through collective action, and each voice that is raised to express an interest in TS will make an impact.

Please take a moment to sign the petition (by completing this form)  that will be sent to the legislators representing your constituency, urging them to make Turner Syndrome a priority. 

Making February Turner Syndrome Awareness Month

Dear Legislator,

I am writing to you in regards to obtaining a proclamation declaring the month of February as Turner Syndrome Awareness Month. Turner Syndrome is a chromosomal abnormality that randomly affects women. It occurs when the female's secondary X chromosome is partially or fully missing. Most fetuses will die before birth, resulting in upwards of 10% of all miscarriages, and 1 in 2,000 females is born with Turner Syndrome. Those females who do survive many times face physical, emotional and/or psychological challenges for life that can be intervened upon with early diagnosis and treatment. More than 30% of girls born with Turner are not diagnosed until they are 15 years of age and only 3.5% receive adequate care. However, with increased awareness the livelihoods of those affected can be greatly improved.

By issuing a proclamation for Turner Syndrome awareness in the states can play an essential role in reducing and eventually eliminating the negative outcomes of this condition, and supporting those who are currently affected. I urge you to support a bill naming February Turner Syndrome Awareness Month in order to raise awareness of this disorder, which in turn will allow for better diagnosis and treatment.

I am incredibly grateful for your support of a bill to help all girls, regardless of background, receive the optimal care and outcomes they deserve. This resolution can make a difference and provide dignity of care to families in need.

Sincerely,

[your signature]

25 signatures

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"My experience with passing of the bill AJR65 in New Jersey helped TS become recognized in my state and brought valuable experience for myself. Getting to know all the people I met during this process lets me know I am not alone and that by helping others I am helping myself."
Kym Hall
K. Hall
TSF Advocate

©2017 Turner Syndrome Foundation

Turner Syndrome Foundation

Turner Syndrome Foundation

Your donation today is tax-deductible. TSF is a 501(c)3 charitable organization. Remember to show your support with a gift today. Dismiss

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