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X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260804T180722Z
CREATED:20260521T182427Z
LAST-MODIFIED:20260804T180722Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \n  \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261008
DTEND;VALUE=DATE:20261009
DTSTAMP:20260826T215249Z
CREATED:20260826T185357Z
LAST-MODIFIED:20260826T215249Z
UID:10004346-1791417600-1791503999@turnersyndromefoundation.org
SUMMARY:DAFday 2026
DESCRIPTION:Make an Impact Through Your Donor-Advised Fund\nA Donor-Advised Fund (DAF) offers a simple\, flexible\, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. \nBy recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF\, you help advance our mission to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care for those affected by Turner syndrome. \nYour generosity helps TSF provide education\, patient and caregiver resources\, professional engagement\, advocacy\, and support—reaching individuals and families across the United States and around the world. \nRecommend a Grant Today\nClients of Fidelity Charitable\, Schwab Charitable\, Vanguard Charitable\, and other sponsoring organizations can recommend a grant to the Turner Syndrome Foundation using the DAF giving widget below. \n \nAlready have a Donor-Advised Fund? Put your charitable dollars to work for the Turner syndrome community today. \nGiving Directly Through Your DAF Sponsor\nIf you prefer to contact your financial institution or DAF sponsor directly\, please designate your charitable grant to: \n\nOrganization: Turner Syndrome Foundation\nTax ID (EIN): 27-1409942\nAddress: Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733\n\nAfter recommending your grant\, please notify us. DAF grants sometimes arrive without the donor’s complete contact information. Letting us know about your gift allows us to properly acknowledge your generosity and express our appreciation. \nWhy Your DAF Gift Matters\nTurner syndrome is a complex chromosomal condition affecting approximately 1 in every 2\,000 females born and requiring specialized healthcare throughout a lifetime. Yet awareness remains limited\, and many girls and women struggle to find knowledgeable providers\, appropriate resources\, and coordinated care. \nYour DAF can change that. \nYour charitable grant can help TSF: \n\nExpand free patient and caregiver education and support\nIncrease professional awareness of Turner syndrome\nConnect families with information and healthcare resources\nAdvance research and research participation\nStrengthen advocacy and public awareness\nBuild programs that improve care throughout every stage of life\n\nYour Charitable Dollars. Their Healthier Tomorrows.\nIf you have already established a DAF\, recommending a grant is one of the easiest ways to put those charitable funds into action. \nRecommend a grant to the Turner Syndrome Foundation today and help create a future where a missing chromosome never means missed opportunities. \nFor questions or assistance with a DAF gift\, please contact the Turner Syndrome Foundation at info@tsfusa.org | (800) 594-4585 x5.
URL:https://turnersyndromefoundation.org/event/dafday-2026/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/DAFday.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20250311T171335Z
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002115-1791230400-1791234000@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-10-05/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261001T200000
DTEND;TZID=America/New_York:20261001T210000
DTSTAMP:20260702T194204Z
CREATED:20260618T174304Z
LAST-MODIFIED:20260702T194204Z
UID:10003106-1790884800-1790888400@turnersyndromefoundation.org
SUMMARY:Legislative Advocacy Meeting
DESCRIPTION:Legislative Advocacy Working Group\nThe Turner Syndrome Foundation’s Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy\, education\, and community engagement\, members help ensure that the voices of patients\, families\, caregivers\, and healthcare professionals are heard by local\, state\, and federal policymakers. \nWhat Does the Legislative Advocacy Working Group Do?\nThe Working Group monitors legislation and public policy issues that impact healthcare access\, rare disease awareness\, research funding\, education\, and patient support services. Members work together to: \n\nEducate elected officials about Turner syndrome and its lifelong health implications.\nAdvocate for policies that improve access to healthcare\, diagnosis\, treatment\, and support services.\nParticipate in letter-writing campaigns\, phone calls\, and meetings with legislators and their staff.\nRaise awareness of issues affecting the Turner syndrome community at the local\, state\, and national levels.\nCollaborate with other rare disease and patient advocacy organizations on shared policy priorities.\nShare updates on legislative developments and opportunities for community action.\n\nHow Can I Join?\nAnyone passionate about making a difference for the Turner syndrome community is welcome to participate. No prior advocacy experience is required.\nTo get started: \n\nComplete the Turner Syndrome Foundation Volunteer Application.\nSelect Legislative Advocacy when asked\, “In which areas would you like to volunteer?”\nComplete the online volunteer orientation.\nAttend our monthly virtual working group meetings and participate in advocacy activities at a level that fits your schedule.\n\nWhether you can make a phone call\, write a letter\, meet with a legislator\, or help organize advocacy efforts in your state\, your participation can help create meaningful change for individuals and families affected by Turner syndrome. \nTo learn more and get started: \n \nTogether\, we can amplify the voices of individuals and families affected by Turner syndrome and create lasting change.
URL:https://turnersyndromefoundation.org/event/legislative-advocacy-meeting/2026-10-01/
LOCATION:Online
CATEGORIES:Advocacy,Virtual,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Legislative-Advocacy-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260925T200000
DTEND;TZID=America/New_York:20260925T220000
DTSTAMP:20250113T215344Z
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000077-1790366400-1790373600@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-09-25/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260728T184559Z
CREATED:20260727T184227Z
LAST-MODIFIED:20260728T184559Z
UID:10003334-1789675200-1789678800@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Thursdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours-2/2026-09-17/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T110000
DTEND;TZID=America/New_York:20260916T120000
DTSTAMP:20260728T184240Z
CREATED:20260727T183934Z
LAST-MODIFIED:20260728T184240Z
UID:10003167-1789556400-1789560000@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Wednesdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \n\nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\n\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours/2026-09-16/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260827T200000
DTEND;TZID=America/New_York:20260827T210000
DTSTAMP:20260818T171904Z
CREATED:20260818T171904Z
LAST-MODIFIED:20260818T171904Z
UID:10004344-1787860800-1787864400@turnersyndromefoundation.org
SUMMARY:Facebook Chat: TSF Campus Club Launch
DESCRIPTION:Join us for a live conversation on Facebook to discuss the Campus Life\, Aug 27\, 8pm ET. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, TSF Campus Club Launch\, taking place Sep 2nd at 8 PM ET. Register for the webinar.
URL:https://turnersyndromefoundation.org/event/facebook-chat-tsf-campus-club-launch/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Campus-Club-Facebook-Chat.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260812T142010Z
CREATED:20260414T001830Z
LAST-MODIFIED:20260812T142010Z
UID:10002927-1786392000-1786395600@turnersyndromefoundation.org
SUMMARY:Turner Syndrome in the Classroom: Educator Insights and Academic Accommodations
DESCRIPTION:Monday\, August 10\, 2026 | 8:00 PM ET\nComplimentary Live Webinar \nEvery student deserves an educational environment where they are understood\, supported\, and empowered to succeed. \nJoin the Turner Syndrome Foundation’s Educating the Educator Initiative for an informative webinar designed to help educators\, school psychologists\, counselors\, administrators\, therapists\, and families better understand the educational implications of Turner syndrome. \nTurner syndrome is a chromosomal condition that can affect physical development\, cardiovascular health\, hearing\, executive functioning\, visual-spatial skills\, mathematics\, social communication\, and fertility. While every individual is unique\, increased awareness among educational professionals can make a lasting difference in a student’s academic experience and overall well-being. \nThis webinar will explore: \n\nThe educational profile and learning characteristics are commonly associated with Turner syndrome\nStrategies for creating an empathetic\, student-centered learning environment\nClassroom accommodations and supports that promote academic success\nNavigating educational milestones from elementary school through higher education\nBuilding effective partnerships between educators\, families\, and healthcare professionals\nPractical tools to help students with Turner syndrome thrive both academically and socially\n\nWhether you are an educator\, healthcare professional\, parent\, caregiver\, or advocate\, this session will provide practical guidance and evidence-informed strategies that can be implemented immediately in the classroom. \nTogether\, we can bridge the gap between diagnosis and educational success by ensuring every student with Turner syndrome has the opportunity to reach her full potential. \nRegistration is free\, but advance registration is required. \n  \n\n \n\n\nHelp Us Reach More Educators\nWe would greatly appreciate your support in sharing this complimentary educational opportunity with your colleagues\, professional networks\, members\, schools\, universities\, and students. Expanding awareness among educators is an important step toward improving educational outcomes\, fostering inclusion\, and advancing advocacy for individuals with Turner syndrome.
URL:https://turnersyndromefoundation.org/event/we-learn-education-panel-discussion/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/TS-in-the-Classroom.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260702T193741Z
CREATED:20260420T174445Z
LAST-MODIFIED:20260702T193741Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260715T200000
DTEND;TZID=America/New_York:20260715T210000
DTSTAMP:20260702T194125Z
CREATED:20260622T204821Z
LAST-MODIFIED:20260702T194125Z
UID:10003156-1784145600-1784149200@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Growth Experiences
DESCRIPTION:Growth Experiences\nJuly 15: 8-9pm\nJoin us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. \nFeel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on Growth Charts\, taking place July 22nd at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
URL:https://turnersyndromefoundation.org/event/facebook-chat-growth-experiences/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Growth-FB-Chat.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20261001
DTSTAMP:20260724T184817Z
CREATED:20260701T185442Z
LAST-MODIFIED:20260724T184817Z
UID:10003159-1782864000-1790812799@turnersyndromefoundation.org
SUMMARY:Film & Advocacy Opportunity: A Family Planning Survey
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/family-planning-survey/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Family-Planning-Survey-scaled.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260702T194627Z
CREATED:20260518T201711Z
LAST-MODIFIED:20260702T194627Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260702T194641Z
CREATED:20260409T171230Z
LAST-MODIFIED:20260702T194641Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260429T194156Z
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260420T154043Z
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260430T203225Z
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T200000
DTEND;TZID=America/New_York:20260401T210000
DTSTAMP:20260209T224133Z
CREATED:20260209T223522Z
LAST-MODIFIED:20260209T224133Z
UID:10002901-1775073600-1775077200@turnersyndromefoundation.org
SUMMARY:Webinar: Sharing Turner Syndrome Through Film - The Story Behind Like A Butterfly
DESCRIPTION:Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly\, her deeply personal and thought-provoking film. In this WE Learn webinar\, Brooke shares the inspiration behind the story\, why Turner Syndrome stories must be told\, and how film can be a powerful tool for awareness\, advocacy\, and connection. Discover how storytelling through media can amplify voices\, foster empathy\, and spark meaningful change.\n \nAbout the Presenter\nBrooke Gonsalves is an independent filmmaker and storyteller with experience across film\, digital media\, and podcasting. She produced and directed Like A Butterfly\, shepherding the project from initial concept through post-production. Brooke also hosts podcasts and runs a YouTube channel dedicated to highlighting Turner Syndrome stories—celebrating resilience\, raising awareness\, and uplifting the community through personal narratives and interviews. Her work blends creative storytelling with advocacy\, offering both emotional impact and meaningful insight. \nWhat You’ll Gain From Attending\nBehind-the-Scenes Insight\nLearn how Like A Butterfly was brought to life—from idea development to post-production decisions. \nAdvocacy Through Storytelling\nSee how film and digital media can raise awareness and amplify the voices of underrepresented people\, especially within the Turner Syndrome community. \nPersonal Inspiration\nHear Brooke’s journey as a filmmaker and advocate\, including challenges faced\, lessons learned\, and milestones achieved. \nLive Q&A Opportunity\nAsk questions directly about filmmaking\, Turner Syndrome advocacy\, or creating content with social impact. \nWhy This Webinar Matters Beyond Turner Syndrome\nUniversal Storytelling Skills\nLearn how to craft compelling stories\, build emotional resonance\, and engage audiences—valuable for filmmakers\, writers\, educators\, marketers\, and communicators of all kinds. \nInspiration & Resilience\nBrooke’s experience highlights creativity\, perseverance\, and problem-solving—lessons applicable to both personal and professional growth. \nSocial Impact Through Media\nExplore how storytelling can foster empathy\, raise awareness\, and spark meaningful conversations across diverse communities. \nPractical\, Engaging Discussion\nThe interactive Q&A makes this session relevant for professionals\, students\, creatives\, and anyone interested in storytelling with purpose. \nAbout the Presenter: \nBrooke Gonsalves is a filmmaker\, producer\, and Turner Syndrome advocate. She is the creator of Like a Butterfly\, a documentary film that explores identity\, resilience\, and lived experience through the lens of Turner Syndrome. \nIn addition to her work in film\, Brooke hosts podcasts focused on storytelling\, advocacy\, and the creative process\, and is committed to creating spaces where stories are seen and heard. Through her work\, she bridges personal experience and cinematic storytelling to foster understanding\, connection\, and conversation. \nShe holds a Bachelor’s degree in Psychology with a concentration in counseling and a Master’s degree in Applied Behavior Analysis. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-sharing-turner-syndrome-through-film-the-story-behind-like-a-butterfly/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Gonsalves.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260421
DTSTAMP:20260401T233353Z
CREATED:20260401T233353Z
LAST-MODIFIED:20260401T233353Z
UID:10002921-1775001600-1776729599@turnersyndromefoundation.org
SUMMARY:Pampered Chef Party benefit for TSF
DESCRIPTION:A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20.  This is the third year Marianne is supporting the cause. \nOrder https://table.pamperedchef.com/party/2852257aby \n  \nIf you have a small business and would like to support the cause\, submit an event form to market your event. 100% of all proceeds must support TSF. Thank you for your incredible support!
URL:https://turnersyndromefoundation.org/event/pampered-chef-party-benefit-for-tsf/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Fundraise.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260724T184506Z
CREATED:20260409T200310Z
LAST-MODIFIED:20260724T184506Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260306T203519Z
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260227T105821Z
CREATED:20260217T210542Z
LAST-MODIFIED:20260227T105821Z
UID:10002903-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:Webinar: Legislative Advocacy Information Session
DESCRIPTION:Join the Legislative Advocacy Information Session\n  \nThank you for being part of the Turner Syndrome community. As our efforts continue to grow\, we are expanding opportunities for community members to get involved in meaningful\, mission-driven advocacy. \nWhether you are an experienced advocate or just beginning to explore how you can make a difference\, we invite you to attend this information session to learn more about the work of the Turner Syndrome Foundation’s Legislative Advocacy Committee—and how you can contribute in ways that align with your skills\, interests\, and availability. \nYour voice\, perspective\, and commitment matter. We welcome you to join us in advancing change together.\n \nWho Should Attend \nIndividuals with lived experience of Turner syndrome \nParents\, caregivers\, and family members \nHealthcare\, education\, or social service professionals \nStudents and emerging advocates \nCommunity members interested in policy and social impact \nAnyone curious about how legislative advocacy works \nNo prior advocacy experience is required. \nParticipants will: \nLearn how to ethically and effectively advance Turner syndrome awareness within communities and through public policy \nGain a clearer understanding of how legislative advocacy works at local\, state\, and national levels \nExplore practical and responsible methods for engagement \nLeave better prepared with actionable strategies to support advocacy efforts \nWhy This Matters \nAdvocacy affects real lives. Nearly everyone has a family member\, friend\, colleague\, or community connection touched by Turner syndrome. Understanding how policies are shaped—and how you can contribute—helps create more informed\, inclusive\, and supportive communities. \nWhether you work in education\, healthcare\, counseling\, nonprofit leadership\, or simply want to be a more engaged citizen\, this session provides practical knowledge you can apply in meaningful ways. \nSign The Petition Here! \nEvent Link:\nCheck the email you provide at registration to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-legislative-advocacy-information-session/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Legislative-Advocacy-Information-Session.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260304T200000
DTEND;TZID=America/New_York:20260304T210000
DTSTAMP:20260209T232221Z
CREATED:20260209T231722Z
LAST-MODIFIED:20260209T232221Z
UID:10002902-1772654400-1772658000@turnersyndromefoundation.org
SUMMARY:Webinar: Hearing Loss Rehabilitation Counseling
DESCRIPTION:This session will review different types of hearing loss and causes of hearing loss.  It will also provide possible services and resources available.  Lastly\, it will identify reasonable accommodations that are needed in the home\, school\, or workplace.\n \nJoin an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused on understanding hearing loss and supporting individuals who experience it across the lifespan. This webinar will review the different types and causes of hearing loss\, explore available services and resources\, and identify reasonable accommodations that can be implemented in the home\, school\, and workplace. \nWith more than five decades of professional experience\, the presenter brings a deep and personal commitment to this field. After learning American Sign Language in 1972\, they worked for many years as an interpreter for the Deaf\, later serving as a Rehabilitation Counselor for the Deaf and State Coordinator for the Deaf in North Carolina. Currently\, they serve as Adjunct Faculty at Winston-Salem State University\, teaching courses such as Counseling Deaf People\, Psychosocial Aspects of Deafness\, and Vocational Evaluation of Deaf People. Their academic background includes a PhD in Rehabilitation Counseling & Rehabilitation Counselor Education from NC A&T State University\, a Master’s degree in Rehabilitation Counseling for the Deaf from Gallaudet University\, and a dual BA in Early Childhood Education and Deaf Education from Lenoir-Rhyne College. They are also a Certified Rehabilitation Counselor and Licensed Clinical Mental Health Counselor. \nWho Should Attend & What You’ll Gain \nParticipants will: \nLearn how to ethically and legally work with individuals who have hearing loss \nGain a clearer understanding of the symptoms and causes of hearing loss \nLeave better prepared to provide effective\, inclusive services \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences hearing loss. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-hearing-loss-rehab-counsel/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/LTanya-Therese-Fish-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T090000
DTEND;TZID=America/New_York:20260315T235900
DTSTAMP:20260303T191030Z
CREATED:20260126T213436Z
LAST-MODIFIED:20260303T191030Z
UID:10002885-1772269200-1773619140@turnersyndromefoundation.org
SUMMARY:Card Auction 2026
DESCRIPTION:THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation\nChoose from a beautiful array of custom-made designer greeting cards. \nBid Now Until 3/15! \nDonate \nTSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces for all occasions and donate them to benefit TSF. Greeting card connoisseurs and art enthusiasts will bid on their favorite cards. After the auction ends\, TSF will send the cards to the highest bidders. Card donations begin at $5.00. \nThe auction begins on February 28\, 2026\, at 9 AM EDT\, which is Rare Disease Day\, and ends on March 15\, 2026\, at midnight! \nPlace Your Bid Here With @MULCHLADY6 \nHow to BID on a card:\nAll Bids start at $5.00 with increasing bids of $1.00 \nShipping is free in the US unless you want priority shipping with tracking and that will be determined by the Post Office. International Shipping will also be determined by the post office. \n1) Please place your bid in US dollar amounts in the comment section under the photo of the card you want\n2) Please be sure to tag the highest bidder with your bid. Example #mulchlady6$10\n3) Once the auction is over and the winners are figured out the highest bidder will be contacted with a link of where to send their donation.\n4) Once proof of the donation is confirmed the card will be mailed out.\n5) If we do not hear back from the highest bidder within 24 hours\, we will move to the next highest bidder on that card. \n\n\n\nThe Turner Syndrome Awareness Card Auction is a collaborative Card Auction benefiting the Turner Syndrome Foundation\, which operates solely on donations. TS is a complex condition affecting 1 in every 2\,000 women and girls. Join Lori in supporting this cause! The very talented card designers who have donated their amazing cards are from all over the world and work on Design Teams for various crafting companies that sell dies\, stamps\, and other cardmaking supplies. They are the most generous and caring people! They have poured lots of love into each of their creations! \nAll sales are final. No refunds or warranties are promised or provided. This fundraiser supports the Turner Syndrome Foundation\, a 501(c)3 charitable organization. \nDesigners who wish to donate their cards may contact Lori at lkobular@tsfusa.org.\nMail checks payable to Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733 \nThank you all so much for your support!  
URL:https://turnersyndromefoundation.org/event/card-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Card-Auction-Graphic-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260225T200000
DTEND;TZID=America/New_York:20260225T210000
DTSTAMP:20260115T182914Z
CREATED:20260115T182914Z
LAST-MODIFIED:20260115T182914Z
UID:10002883-1772049600-1772053200@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Raising Awareness
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-raising-awareness/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-25.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T200000
DTEND;TZID=America/New_York:20260224T210000
DTSTAMP:20260304T211330Z
CREATED:20260209T213127Z
LAST-MODIFIED:20260304T211330Z
UID:10002900-1771963200-1771966800@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Awareness Month Patient & Parent Panel
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/turner-syndrome-awareness-month-patient-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/TSAM-Panel-2026.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T210000
DTSTAMP:20260115T182702Z
CREATED:20260115T182702Z
LAST-MODIFIED:20260115T182702Z
UID:10002882-1771444800-1771448400@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Careers
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-careers/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-18.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T200000
DTEND;TZID=America/New_York:20260211T210000
DTSTAMP:20260115T182409Z
CREATED:20260115T182409Z
LAST-MODIFIED:20260115T182409Z
UID:10002881-1770840000-1770843600@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Education
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-education/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-11.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260115T182140Z
CREATED:20260115T181550Z
LAST-MODIFIED:20260115T182140Z
UID:10002879-1770235200-1770238800@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Getting to Know You
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/getting-to-know-you/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-4.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20260201T110000
DTEND;TZID=America/Kentucky/Louisville:20260201T140000
DTSTAMP:20260119T213045Z
CREATED:20260119T213045Z
LAST-MODIFIED:20260119T213045Z
UID:10002884-1769943600-1769954400@turnersyndromefoundation.org
SUMMARY:LSU Lady Tigers Game Turner Syndrome Awareness Half-Time Photo Opportunity
DESCRIPTION:Alabama Crimson Tide at LSU Tiger Womens Basketball \nTURNER SYNDROME\nBATON ROUGE\, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome\, a cause close to Head Coach Kim Mulkey\, at the February 1 game against Alabama in the PMAC. \n(center) Coach Mulkey’s daughter Makenzie Fuller\, granddaughter Sage\, grandson Kannon\, & son-in-law Clay. Photo by Kristen Young\n“This cause is personal to me and my family because of the loss of Scout Marie\,” Mulkey said. “My daughter (Makenzie Fuller) had to deliver a stillborn at 20 weeks\, and she will always be a part of our lives. We will continue to talk about and raise awareness for Turner Syndrome\, now and always. I didn’t know about Turner Syndrome before it affected our family\, and I want to make sure everyone knows about the life-altering condition before it affects them.” \nAt the game on February 1\, LSU will honor Turner Syndrome survivors on the court. They are welcoming anyone affected by Turner syndrome to be recognized on the court at halftime as a group. \nT-shirt sales support the Turner Syndrome Foundation. The online order form has closed. \nBuy Tickets
URL:https://turnersyndromefoundation.org/event/lsu-lady-tigers-game-turner-syndrome-awareness-half-time-photo-opportunity/
LOCATION:Online
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2023/03/Believe-in-Miracles_LSU-Sports-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR