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A Chat about Education

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Leaping for Turner Syndrome Awareness

February Awareness Month may be over, but we want to raise awareness year-round! We asked for photo submissions on Leap Day, February 29th, a bonus day of Awareness Month that only comes once every four years. Thanks for sharing your…

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Positivity through the Journey

“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!“ Cassidy is a woman who has Turner Syndrome with a story to share….

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Preparing to Move it for Millie

Move it for Millie 2020

written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director  Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…

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Lori’s Scrapbooking for Awareness

Lori is board member for the Turner Syndrome Foundation. She has created a community of support for Turner Syndrome through her love for scrapbooking. Lori’ daughter, Julie, was diagnosed at six weeks old. When it came to caring for and…

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Welcome!

Learn the indications of TS and understand your diagnosis!

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Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Welcome Back Advocacy Coordinator, Liz Carmines!

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TS Podcast: The Butterfly Pod

butterfly pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

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