TSF Mission Archives | Turner Syndrome Foundation

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The Importance of Research

the importance of research

Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…

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Turner Syndrome Transition Study

All Turner Syndrome patients ages 12-25 are able to support research through this online survey! Check out this research opportunity from Nisha Patel, a two-year endocrinology fellow at Nationwide Children’s Hospital in Columbus, Ohio. She is studying the transition from…

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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

legislative advocacy for Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

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Why I Love the TSF Autumn Retreat

The annual Turner Syndrome Foundation Autumn Retreat is always a great time! Bringing together women and girls who have Turner Syndrome offers the opportunity to form special connections with others who understand their point of view. We get together in…

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Turner Syndrome Research: AJ’s Journey

Turner syndrome research

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

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Turner Syndrome Research Opportunities

Ways to support turner syndrome research

Written by Liz Rivera, TSF intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to help them live…

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Mental Health and Turner Syndrome

Written by Cassidy Hooper, Turner Syndrome woman and TSF volunteer Twitter Chat Facilitator What a great discussion about mental health and Turner Syndrome we had on Twitter on March 25th! We got to learn so much from women with Turner…

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Welcome!

Girl with Turner Syndrome

Learn the indications of TS and understand your diagnosis!

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Help Us Raise Awareness in Every State!

February is Turner Syndrome Awareness Month

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