Turner Syndrome FoundationArchives
Autoimmune Diseases and Turner Syndrome: a Brief Overview
This post provides a general overview of autoimmune diseases associated with Turner Syndrome (TS). Note: This post is solely intended to inform and educate readers. It should not be considered medical advice and is not a substitute for recommendations or…
Read MoreCyberbullying: How to Help your Child
Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…
Read MoreHow To Advocate for Your Child in School: Navigating 504 Plans and IEPs
Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…
Read MoreOvercoming Educational Challenges
Christina is a woman with Turner Syndrome, a wife, and a teacher. In this post, she shares her perspective on what unique educational challenges children with Turner Syndrome might face. She also discusses some strategies to support your child so…
Read MoreMy Daughter’s Turner Syndrome Journey: Q&A with a Mother
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…
Read MoreFinancial Resources for Growth Hormone Therapy
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…
Read MoreFinding Answers to Your Questions about Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreWhy I Love the TSF Autumn Retreat
The annual Turner Syndrome Foundation Autumn Retreat is always a great time! Bringing together women and girls who have Turner Syndrome offers the opportunity to form special connections with others who understand their point of view. We get together in…
Read MoreLearn about Hearing Loss
Many people don’t realize that Turner Syndrome is more than just short stature. It can lead to many different health concerns, including hearing loss. Up to 90% of TS patients have sensorineural hearing loss. Also, up to 80% of TS…
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