Turner Syndrome FoundationArchives
Finding Answers to Your Questions about Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreWhy I Love the TSF Autumn Retreat
The annual Turner Syndrome Foundation Autumn Retreat is always a great time! Bringing together women and girls who have Turner Syndrome offers the opportunity to form special connections with others who understand their point of view. We get together in…
Read MoreLearn about Hearing Loss
Many people don’t realize that Turner Syndrome is more than just short stature. It can lead to many different health concerns, including hearing loss. Up to 90% of TS patients have sensorineural hearing loss. Also, up to 80% of TS…
Read MoreRecovering from Aortic Dissection Surgery
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the recovery process after…
Read MoreLeaping for Turner Syndrome Awareness
February Awareness Month may be over, but we want to raise awareness year-round! We asked for photo submissions on Leap Day, February 29th, a bonus day of Awareness Month that only comes once every four years. Thanks for sharing your…
Read MoreMeet Kierstyn- Our Social Media Coordinator
About Me Hello, Turner Syndrome Foundation community! My name is Kierstyn Holly & I am the Social Media Coordinator here at TSF. I am currently a junior Public Relations major at Monmouth University. I am gaining knowledge and experience in…
Read MoreSelf-Advocacy for Better Health
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that…
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Turner Syndrome Health Presentations at UTHealth
The University of Texas, Houston, recently hosted their annual “Turner Syndrome Community Day.” This is an event for patients and families to learn about a variety of health topics in a series of presentations. From clinical care guidelines, to dental…
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