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Defining Key Terms in Discussing Turner Syndrome

Turner syndrome definitions

Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…

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Autoimmune Diseases Common in Turner Syndrome

autoimmune diseases common in turner syndrome

In this post, we will discuss some of the autoimmune diseases commonly associated with Turner Syndrome (TS), including Hashimoto’s thyroiditis, diabetes, and celiac disease. Learn more about the causes, symptoms, diagnosis, and treatment of these conditions below. Note: The information…

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Autoimmune Diseases and Turner Syndrome: a Brief Overview

This post provides a general overview of autoimmune diseases associated with Turner Syndrome (TS). Note: This post is solely intended to inform and educate readers. It should not be considered medical advice and is not a substitute for recommendations or…

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Cyberbullying: How to Help your Child

 Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…

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How To Advocate for Your Child in School: Navigating 504 Plans and IEPs

Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…

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Overcoming Educational Challenges

Christina is a woman with Turner Syndrome, a wife, and a teacher. In this post, she shares her perspective on what unique educational challenges children with Turner Syndrome might face. She also discusses some strategies to support your child so…

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My Daughter’s Turner Syndrome Journey: Q&A with a Mother

Woman with Turner syndrome

Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…

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Financial Resources for Growth Hormone Therapy

Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…

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Finding Answers to Your Questions about Turner Syndrome

Turner syndrome blog

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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Peer Chat: Self-Advocacy and Turner Syndrome

self-advocacy

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…

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