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Announcing Long Island’s Turner Syndrome Clinic

Turner Syndrome Clinics, otherwise known as Specialized Centers of Care, offer comprehensive health care for individuals with Turner Syndrome. We are happy to announce a newly-approved clinic in Long Island and share how you can find one near you! Turner…

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Sports and Other Activities for Children with Turner Syndrome

Sports Tips for Children with TS

This post highlights important tips for children with Turner Syndrome (TS) interested in sports and other activities. This information is based on a recent webinar on the Cognitive Impact of TS, hosted by the Turner Syndrome Foundation (TSF) and presented…

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Conflict-Resolution Strategies

conflict resolution strategies

Do you have a fear of conflict? Do you have a hard time not getting emotional during a conflict? In the Turner Syndrome Foundation’s (TSF) recent webinar with Janet Pfeiffer, President of Pfeiffer Power Seminars, LLC, we learned about strategies…

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Upcoming Webinar: the Cognitive Impact of Turner Syndrome

the cognitive impact of TS webinar

Learn about the Turner Syndrome Foundation’s (TSF) upcoming webinar, The Cognitive Impact of TS, presented by Dr. Ilyse O’Desky. This webinar will take place on January 27, 2021 at 7:00 p.m. EST. The Cognitive Impact of Turner Syndrome The cognitive…

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Choosing a Health Insurance Plan

Choosing a health insurance plan

In this post, we will discuss some tips on how to choose a health insurance plan based on a recent webinar presented by Pfizer and hosted by the Turner Syndrome Foundation (TSF). Particularly, we will focus on considerations to think…

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Health Insurance and Reimbursements FAQ’s- Accessing Growth Hormone

FAQ: Health insurance and reimbursement

This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…

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Discussing Infertility: Upcoming Webinar

Discussing Infertility Webinar

The upcoming webinar, Discussing Infertility, presented by NYU School of Medicine’s Dr. Gwendolyn Quinn, will help you learn how to approach conversations about infertility with others. Why is Discussing Infertility Important? Infertility is a wide-reaching issue that affects many. 10%…

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Adult Care Guidelines for Individuals with Turner Syndrome

adult care guidelines

In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…

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Pediatric Care Guidelines for Turner Syndrome

pediatric care guidelines

In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….

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Announcing 24/7 Caregivers Group

“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a…

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