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Everything You Need To Know about the TSRX-PIN Registry

One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…

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New Resource for Parents Expecting a Baby with Turner Syndrome

prenatal diagnosis

New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more

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Making Exercise Enjoyable

We all know that exercise is good for us, but for someone with a chronic condition like Turner Syndrome (TS), it is even more important. Read below for some tips for making exercise more enjoyable for you and your children….

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How To Open a Conversation About Turner Syndrome Diagnosis

One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…

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Why are wills important?

The Pandemic and Leaving a Legacy Ever since the pandemic started, people across all ages have thought more about their body’s ability to fall fatally ill to chronic conditions like diabetes and diseases like COVID-19. As a result, this has…

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Stress Free Health Care

The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as…

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How to Live Courageously With Type 2 Diabetes: Webinar

Confronting T2 Diabetes in Turner Syndrome Did you know that the Turner Syndrome community is at a heightened risk for developing type II diabetes? Sugary drinks and other sweet treats lovingly doled out to children may not have been the…

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Balancing Emotional Wellness

balancing emotional wellbeing

From time to time, we all need a little support to maintain emotional wellness. After months of sheltering in place, we must find balance in managing health and emotional wellness as we begin anew. WEBINAR TOPIC Balancing Emotional Wellness REGISTER…

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Turner Syndrome and Celiac Disease

The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…

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Thyroid Disorders in TS: The Definitive Guide

This post is based on the recent webinar by Dr. Schweiger on “Thyroid Disorders in Turner Syndrome.” It briefly highlights the two common thyroid-related autoimmune conditions, hypothyroidism and hyperthyroidism, that greatly affect the Turner Syndrome community—hypothyroidism and hyperthyroidism. Note: The…

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