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My Story: Moving from Pain to Purpose

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…

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Turner Syndrome and Celiac Disease

The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…

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My Story: Never Stop Fighting

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals affected by Turner Syndrome (TS). Meet Kym, a TSF volunteer from NJ who will never stop fighting for increased awareness and earlier diagnosis. Note: Everyone’s journey…

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My Story: I Feel So Lucky

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…

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My Story: Giving a Voice to Turner Syndrome

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Rebecca, a 23-year-old woman who was diagnosed with TS in utero, shares her…

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My Story: We Are Unstoppable

we are unstoppable!

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old,…

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My Story: I’ve Never Let Turner Syndrome Slow Me Down

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, Dori, a 43-year-old woman who was diagnosed with TS at four years old, shares her…

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Why I Fundraise: Ideas for In-person and Virtual Fundraisers

Why I Fundraise

In this post, Lori, a mother of a woman with Turner Syndrome (TS), details two awareness and fundraising events she organized and how she has pivoted to virtual activities since then. My Motivation People ask me why I fundraise for…

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My Story: Navigating Turner Syndrome Under the Radar

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…

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My Story: Never Let a Diagnosis Get in Your Way

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…

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