Turner Syndrome FoundationArchives
My Story: I Feel So Lucky
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…
Read MoreMy Story: Giving a Voice to Turner Syndrome
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Rebecca, a 23-year-old woman who was diagnosed with TS in utero, shares her…
Read MoreMy Story: We Are Unstoppable
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old,…
Read MoreMy Story: I’ve Never Let Turner Syndrome Slow Me Down
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, Dori, a 43-year-old woman who was diagnosed with TS at four years old, shares her…
Read MoreWhy I Fundraise: Ideas for In-person and Virtual Fundraisers
In this post, Lori, a mother of a woman with Turner Syndrome (TS), details two awareness and fundraising events she organized and how she has pivoted to virtual activities since then. My Motivation People ask me why I fundraise for…
Read MoreMy Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreA Doctor’s Turner Syndrome Story
Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…
Read MoreThankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
Read MoreFinding Your “Something”
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…
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