Turner Syndrome FoundationArchives
My Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreA Doctor’s Turner Syndrome Story
Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…
Read MoreThankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
Read MoreFinding Your “Something”
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…
Read MoreTurner Syndrome and Relationships: Twitter Chat
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator Our Twitter discussion in May was about Turner Syndrome (TS) and relationships. It was so interesting and inspiring to learn about all the personal experiences with relationships as they relate to…
Read MoreMy Turner Syndrome Story: Susan Herman
Susan Herman is a woman with Turner Syndrome and a volunteer blog post editor for TSF. This is her story. “I was lucky enough to find the Turner Syndrome Foundation and other support resources. It has meant a lot to…
Read MoreWe Are Over-Comers
There will be obstacles that we may have to face in reaching our dreams and potential that others don’t, but we were born over-comers Written by Angela, TS woman and TSF volunteer, who shares about overcoming challenges My Diagnosis After…
Read MoreVolunteering to Make a Difference
As you read last week, Cassidy is a woman who volunteers with us to make a difference. She shared her story of overcoming challenges, finding support, and connecting with the community. This week, she shares why she volunteers and the…
Read MoreMeet Kierstyn- Our Social Media Coordinator
About Me Hello, Turner Syndrome Foundation community! My name is Kierstyn Holly & I am the Social Media Coordinator here at TSF. I am currently a junior Public Relations major at Monmouth University. I am gaining knowledge and experience in…
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