Turner Syndrome FoundationArchives
TS Podcast: The Butterfly Pod
Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…
Read MoreShare a Photo, Support Research
Genetics Home Reference is partnering with Genetic Alliance to give a face to Turner Syndrome. You can help the world understand Turner Syndrome by sharing your photos! Genetics Home Reference is gathering images and photographs to add to their website to…
Read MoreSupport TSF at Work
Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!
Read More10 Ways to Raise Awareness after February
Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…
Read MoreSign the Awareness Petition
Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…
Read MoreWhy You Should Support Awareness Month
Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….
Read MoreHost a Casual Day Fundraiser
Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…
Read MoreFebruary is Turner Syndrome Awareness Month
Why is Awareness Month Important? February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more! Everyone wants to…
Read MoreMy Story: “It’s Rewarding to Help Others”
A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…
Read MoreThe Power Within You
These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you?
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