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10 Ways to Raise Awareness after February

Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…

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Sign the Awareness Petition

Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…

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Why You Should Support Awareness Month

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Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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Host a Casual Day Fundraiser

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Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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February is Turner Syndrome Awareness Month

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Why is Awareness Month Important? February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more! Everyone wants to…

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My Story: “It’s Rewarding to Help Others”

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A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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The Power Within You

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These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you?

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Keep February Awareness Going!

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Since February has been deemed Awareness Month for Turner Syndrome, it is the time of year we always look forward to. February is an opportunity to take extra strides in passing along information about Turner Syndrome to our connected community…

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A Girl on a Mission

Jenna is a twelve-year old student at St. Raymond Elementary, a parochial school, located in Bronx, NY. She is a high-spirited student that illuminates with a natural talent of song and theatrical presence representative of any Broadway bound starlet. Jenna…

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