Archives


From 1938 to 2020: It’s Time for Change

Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…

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How YOU Can Support the Turner Syndrome Community

Want to make a difference and help people in your community? This article will explain how you can support the Turner Syndrome (TS) community, as well as the Turner Syndrome Foundation (TSF). All About Turner Syndrome What Is Turner Syndrome?…

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A Doctor’s Turner Syndrome Story

Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…

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Physicians Making a Difference!

physicians making a difference

The Professional Membership is an opportunity for professionals such as physicians to get involved with TSF to advance our mission. You can help us improve resources and supports for individuals with Turner Syndrome! Physician Spotlight Dr. Mary Gwyn Roper, Pediatric…

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How to Help Your Child Overcome Their Reading Challenges

tips for overcoming reading challenges

Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…

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TSF Volunteers Making an Impact

Do you want to positively impact your community but don’t know how? Read the stories of several new Turner Syndrome Foundation (TSF) volunteers who are making an impact by dedicating their time and talent. In this post, you will see…

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Perspectives on Self-advocacy

self-advocacy for Turner Syndrome

Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…

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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Self-Advocacy Tips for Healthcare, School, and Work

self-advocacy

This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…

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Peer Chat: Self-Advocacy and Turner Syndrome

self-advocacy

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…

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