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TS Podcast: The Butterfly Pod

butterfly pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

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Share a Photo, Support Research

Genetics Home Reference is partnering with Genetic Alliance to give a face to Turner Syndrome. You can help the world understand Turner Syndrome by sharing your photos! Genetics Home Reference is gathering images and photographs to add to their website to…

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Support TSF at Work

turner syndrome foundation employee volunteer

Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!

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10 Ways to Raise Awareness after February

Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…

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Sign the Awareness Petition

Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…

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Why You Should Support Awareness Month

turner syndrome, awareness month, raise awareness

Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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February is Turner Syndrome Awareness Month

turner syndrome awareness month

Why is Awareness Month Important? February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more! Everyone wants to…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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The Power Within You

volunteer take action turner syndrome

These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you?

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