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Perspectives on Self-advocacy

self-advocacy for Turner Syndrome

Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…

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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Self-Advocacy Tips for Healthcare, School, and Work

self-advocacy

This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…

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Peer Chat: Self-Advocacy and Turner Syndrome

self-advocacy

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…

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Awareness Committee Video Project Increases Awareness of Turner Syndrome

Turner syndrome video campaign

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog post writer. TSF’s newest volunteer endeavor, the Awareness Committee, has started full speed ahead on its first project, a video project called The Questions Campaign. The Awareness Committee…

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Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

legislative advocacy for Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

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Turner Syndrome Research: AJ’s Journey

Turner syndrome research

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

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Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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Business Contributions

As a Foundation that relies 100% on the generosity of donors, we are very grateful to every partner and supporter that helps to grow and sustain our mission. In this post, you can learn about some of the businesses that…

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Turner Syndrome Research Opportunities

Ways to support turner syndrome research

Written by Liz Rivera, TSF intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to help them live…

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