Turner Syndrome FoundationArchives
How to Help Your Child Overcome Their Reading Challenges
Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…
Read MoreTSF Volunteers Making an Impact
Do you want to positively impact your community but don’t know how? Read the stories of several new Turner Syndrome Foundation (TSF) volunteers who are making an impact by dedicating their time and talent. In this post, you will see…
Read MoreTurner Syndrome Transition Study
All Turner Syndrome patients ages 12-25 are able to support research through this online survey! Check out this research opportunity from Nisha Patel, a two-year endocrinology fellow at Nationwide Children’s Hospital in Columbus, Ohio. She is studying the transition from…
Read MorePerspectives on Self-advocacy
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…
Read MoreA Turner Syndrome Advocacy Success Story
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…
Read MoreSelf-Advocacy Tips for Healthcare, School, and Work
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreAwareness Committee Video Project Increases Awareness of Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog post writer. TSF’s newest volunteer endeavor, the Awareness Committee, has started full speed ahead on its first project, a video project called The Questions Campaign. The Awareness Committee…
Read MoreGrassroots Activism for Turner Syndrome: YOU Can Make a Difference!
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…
Read MoreTurner Syndrome Research: AJ’s Journey
Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…
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