Turner Syndrome FoundationArchives
Turner Syndrome & Verbal Skills: a Good-news Story!
We often hear a lot about the challenges of Turner syndrome (TS), which vary from patient to patient. But let’s make sure to look at the positives, too! One of those for individuals with TS is having above-average verbal skills….
Read MoreTurner Syndrome & Family History/Heredity
After a child receives a diagnosis of Turner Syndrome (TS), parents and caregivers are likely to have many questions regarding their child’s health and future. One common question is whether or not TS is hereditary or somehow preventable. While there…
Read MoreMy Story: From Pregnancy Loss to Cast-iron Endurance
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….
Read MoreSharing a Turner Syndrome Diagnosis with Your Child at Different Stages
Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis…
Read MoreTurner Syndrome Care Around the World
Throughout the years, the amount of available resources, treatments and educational material about Turner syndrome (TS) has steadily increased. TS is gaining much more attention in the medical field, with new research and more recognition around the world than in…
Read MoreManaging a Chronic Condition as a Young Adult
Managing a chronic condition like Turner syndrome (TS) can be challenging, especially as a young adult transitioning from pediatric to adult care. Let’s talk about taking control of your condition, developing a support system, and advocating for your own healthcare….
Read MoreMy Story: Becoming My Own Advocate
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….
Read MoreTurner Syndrome & Gastrointestinal Disorders
December 1-7 is Chron’s & Colitis Awareness Week. Given the prevalence of gastrointestinal disorders among patients with Turner syndrome (TS), increasing awareness of the symptoms and clinical indicators of autoimmune disorders is vital for proper management of TS. Early testing…
Read MoreA Day in the Life with Turner Syndrome: Throughout the Lifespan
With this post, we conclude our “Day in the Life” series and recall all the amazing individuals we’ve gotten to know! Canon Pham, a high school senior from California and Turner Syndrome Foundation (TSF) blog volunteer, came up with the…
Read MoreMy Story: Finding My Own “Normal”
The Turner Syndrome Foundation’s (TSF’s) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….
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