Turner Syndrome FoundationArchives
Thankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
Read MoreMy Story: I Wouldn’t Change a Thing
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…
Read MoreMy Story: Living with an Autoimmune Disease and Other Medical Issues
This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with other…
Read MoreFinding Your “Something”
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…
Read MoreMy Story: My Daughter Is Not Defined by Turner Syndrome
This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Toyin, mother of Gbemisola, a…
Read MoreLessons Learned as Parents of a Girl with Turner Syndrome
Having a child with Turner Syndrome (TS) can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They hare long-time advocates for TS awareness, having navigated the stages of diagnosis, finding…
Read MoreMy Story: My Daughter Eliana
This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…
Read MoreSusan’s Educational Journey
Susan is a volunteer blog post editor and translator for the Turner Syndrome Foundation (TSF). Her Turner Syndrome (TS) journey began when she was 19, after testing by the genetics department at her university. She is now 51. While TS…
Read MoreInsights on Education: Ask Star Sisters
We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…
Read MoreCoping with Miscarriage: Sara’s Story
Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…
Read More
English
العربية
简体中文
Nederlands
Français
Deutsch
Italiano
Português
Русский
Español