TS Stories Archives | Turner Syndrome Foundation

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Thankful for Turner Syndrome

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…

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My Story: I Wouldn’t Change a Thing

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…

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My Story: Living with an Autoimmune Disease and Other Medical Issues

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with other…

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Finding Your “Something”

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…

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My Story: My Daughter Is Not Defined by Turner Syndrome

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Toyin, mother of Gbemisola, a…

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Lessons Learned as Parents of a Girl with Turner Syndrome

lessons learned as parents

Having a child with Turner Syndrome (TS) can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They hare long-time advocates for TS awareness, having navigated the stages of diagnosis, finding…

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My Story: My Daughter Eliana

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…

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Susan’s Educational Journey

Susan is a volunteer blog post editor and translator for the Turner Syndrome Foundation (TSF). Her Turner Syndrome (TS) journey began when she was 19, after testing by the genetics department at her university. She is now 51. While TS…

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Insights on Education: Ask Star Sisters

We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…

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Coping with Miscarriage: Sara’s Story

Coping with Miscarriage

Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…

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