TS Stories Archives | Turner Syndrome Foundation

Archives


Insights on Education: Ask Star Sisters

We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…

Read More

Coping with Miscarriage: Sara’s Story

Coping with Miscarriage

Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…

Read More

In Celebration of Education

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….

Read More

My Daughter’s Turner Syndrome Journey: Q&A with a Mother

Woman with Turner syndrome

Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…

Read More

I Had Heart Surgery During a Pandemic

I have Turner Syndrome. I had heart surgery during a pandemic. . . and this is what it was like!

Nicole, a woman who has Turner Syndrome (TS), shares her experience undergoing heart surgery during the COVID-19 pandemic. Her heart surgery is not uncommon among those with TS, so many with TS can relate to her experience. I am a…

Read More

Loud and Clear: My Hormone Replacement Therapy Journey

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical…

Read More

Finding Answers to Your Questions about Turner Syndrome

Turner syndrome blog

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

Read More

A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

Read More

Peer Chat: Self-Advocacy and Turner Syndrome

self-advocacy

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…

Read More

Recognizing Your Beauty

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on…

Read More

©2020 Copyright Turner Syndrome Foundation - All rights Reserved.

X