Turner Syndrome FoundationArchives
My Story: Moving from Pain to Purpose
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…
Read MoreMy Story: Never Stop Fighting
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals affected by Turner Syndrome (TS). Meet Kym, a TSF volunteer from NJ who will never stop fighting for increased awareness and earlier diagnosis. Note: Everyone’s journey…
Read MoreMy Story: I Feel So Lucky
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…
Read MoreMy Story: Giving a Voice to Turner Syndrome
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Rebecca, a 23-year-old woman who was diagnosed with TS in utero, shares her…
Read MoreYou Are Enough (It’s a Girl Thing)
February is Turner Syndrome (TS) Awareness Month, and the Turner Syndrome Foundation (TSF) has several awareness and educational activities throughout the month. One of them is a blog hop and cardmaking challenge (see more information below). As a woman with…
Read MoreMy Story: We Are Unstoppable
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old,…
Read MoreMy Story: I’ve Never Let Turner Syndrome Slow Me Down
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, Dori, a 43-year-old woman who was diagnosed with TS at four years old, shares her…
Read MoreMy Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreThankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
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