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A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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From Heartbroken to Hopeful

Kourtney’s Story “My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At…

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How I handle my anxiety

By: Josey Petz, TSF Volunteer I am sure not many of you know this, but women with Turners Syndrome can easily develop anxiety. I definitely have had anxiety for as long as I can remember. I am constantly worried about…

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A mother’s lament. A heartbreaking truth

October is National Bullying Prevention Month, an issue that affects everyone without discrimination. Here is a mother’s lament on the bullying of her daughter. A heartbreaking truth for many. This is an email sent to a superintendent of schools: “This morning…

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A Stellar Video: This is my story

Eager to spread awareness of Turner Syndrome, Stella decided to share her Turner Syndrome journey. This courageous and beautiful young lady is making a difference. Watch her video, read her story and be inspired!  Don’t let anyone discourage you from…

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Running the NJ Marathon with TSF

Running the 2018 NJ Marathon was one of the most memorable races of my life. In addition to completing the race in 3 hours 26 minutes, I also re-qualified for the Boston Marathon, matching my personal marathon record I ran…

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