Turner Syndrome FoundationArchives
When to Share the Turner Syndrome Diagnosis?
In this post, we explore perspectives on when to share the diagnosis of Turner Syndrome with a child. This post is an update of an article published by TSF, based on a 2006 research study. Some personal perspectives shared within…
Read MoreMake Your Voice Heard!
“I have Turner Syndrome and it took a very long time to diagnose my condition. I would greatly appreciate any representation this community is given.” Shaylie, Oregon For February Awareness Month, Turner Syndrome Foundation launched a petition to advocate for…
Read MoreMy Story: My Daughter Eliana
This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…
Read MoreSharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…
Read MoreFinding the Right Doctors for Your Daughter with Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MoreFigure and Ground: Perceptions of Living with Turner Syndrome
Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome describes her perceptions of living with Turner Syndrome throughout her life using the concept of figure and ground. Our perceptions of our experiences, including living with Turner Syndrome,…
Read MoreCoping with Diagnosis – Two Parents’ Perspectives
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MoreExpecting a Baby Girl with Turner Syndrome
If you are a parent expecting a baby girl with Turner Syndrome, first of all, congratulations! This is an exciting time of life, despite the questions and concerns a Turner Syndrome diagnosis might bring. Turner Syndrome is completely random, and…
Read MoreMy Turner Syndrome Story: Susan Herman
Susan Herman is a woman with Turner Syndrome and a volunteer blog post editor for TSF. This is her story. “I was lucky enough to find the Turner Syndrome Foundation and other support resources. It has meant a lot to…
Read MoreWe Are Over-Comers
There will be obstacles that we may have to face in reaching our dreams and potential that others don’t, but we were born over-comers Written by Angela, TS woman and TSF volunteer, who shares about overcoming challenges My Diagnosis After…
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