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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article…

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How To Open a Conversation About Turner Syndrome Diagnosis

One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…

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My Story: What I’ve Learned as an Angel Mommy

Chelsea Patterson is a make-up artist and blogger from Michigan. Since losing her unborn baby, Noa, to Turner Syndrome (TS)-related complications, she has been on a mission to spread awareness of TS and support other angel mommies. Below is the…

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Turner Syndrome and Celiac Disease

The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…

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Environmentally Friendly Ways To Promote TS Awareness & Fundraise

You can help members of the Turner Syndrome (TS) community and protect the environment at the same time. Learn more about environmentally friendly ways to promote TS awareness and how to support the Turner Syndrome Foundation (TSF), while also doing…

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When to Share the Turner Syndrome Diagnosis?

when to share the Turner syndrome diagnosis

In this post, we explore perspectives on when to share the diagnosis of Turner Syndrome with a child. This post is an update of an article published by TSF, based on a 2006 research study. Some personal perspectives shared within…

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Make Your Voice Heard!

“I have Turner Syndrome and it took a very long time to diagnose my condition. I would greatly appreciate any representation this community is given.” Shaylie, Oregon For February Awareness Month, Turner Syndrome Foundation launched a petition to advocate for…

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My Story: My Daughter Eliana

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…

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Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective

Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…

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Finding the Right Doctors for Your Daughter with Turner Syndrome

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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