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Turner Syndrome and Celiac Disease

The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…

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Environmentally Friendly Ways To Promote TS Awareness & Fundraise

You can help members of the Turner Syndrome (TS) community and protect the environment at the same time. Learn more about environmentally friendly ways to promote TS awareness and how to support the Turner Syndrome Foundation (TSF), while also doing…

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When to Share the Turner Syndrome Diagnosis?

when to share the Turner syndrome diagnosis

In this post, we explore perspectives on when to share the diagnosis of Turner Syndrome with a child. This post is an update of an article published by TSF, based on a 2006 research study. Some personal perspectives shared within…

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Make Your Voice Heard!

“I have Turner Syndrome and it took a very long time to diagnose my condition. I would greatly appreciate any representation this community is given.” Shaylie, Oregon For February Awareness Month, Turner Syndrome Foundation launched a petition to advocate for…

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My Story: My Daughter Eliana

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…

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Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective

Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…

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Finding the Right Doctors for Your Daughter with Turner Syndrome

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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Figure and Ground: Perceptions of Living with Turner Syndrome

blog series with Katie Steedly curling

Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome describes her perceptions of living with Turner Syndrome throughout her life using the concept of figure and ground. Our perceptions of our experiences, including living with Turner Syndrome,…

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Coping with Diagnosis – Two Parents’ Perspectives

coping with Turner syndrome diagnosis parents

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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Expecting a Baby Girl with Turner Syndrome

If you are a parent expecting a baby girl with Turner Syndrome, first of all, congratulations! This is an exciting time of life, despite the questions and concerns a Turner Syndrome diagnosis might bring. Turner Syndrome is completely random, and…

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