Archives


“Love will find you and won’t know it.”

Meet Chandra. In her story and video below she tells us about her TS diagnosis, the struggles she faced, and how she met the love of her life. She even offers some dating advice for those who feel they will…

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Meet Rachel

Welcome Rachel Belmont, Team TSF Coordinator! Rachel is a junior in college studying Health Studies with plans on applying to physical therapy programs this summer. Rachel is an avid runner, but her running journey began on a rough note. In…

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Medical Providers Referral

Referral for Turner Syndrome health, learning, research, and other related service or material. Resource shared should benefit the care and outcomes of girls and women with Turner Syndrome. Help us grow our list of knowledgeable and compassionate resources.

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Visual Issues in Turner Syndrome Girls

About 35% of patients diagnosed with TS have multiple visual deficits. This story reveals the importance of receiving a comprehensive ophthalmological examination.

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The importance of writing to your legislators

Rally for Medical Research

We have been running our campaign to gain signatures on a letter to legislators for a few weeks now and have recieved great feedback! We’d like to further stress how simple it is to sign on to this legislative advocacy,…

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Turner Syndrome Patient Guide Available Upon Request

[sg_popup id=”1″ event=”onload”][/sg_popup] The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from…

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Making TS a National Priority

turner syndrome, awareness month, raise awareness

Sign the petition to urge legislator to make Turner Syndrome a national priority by declaring the month of February Turner Syndrome Awareness Month.

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From a daughter’s heart

Heather and her family

My mother, Paula, wearing  red and myself at 8 years of age on the right.            My story is a little unique, and hopefully inspiring, to others because as an adopted child Turner Syndrome affected my…

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“My Guy & Me”… Acknowledging the important males in your life.

Although Turner Syndrome only occurs in females, there is no denying the impact it can have on men as well. Fathers, grandfathers, brothers, sons, partners, doctors and friends can all have a connection to Turner Syndrome through the women in…

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Together we make a difference!

TS family

Standing Tall for Turner Syndrome

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