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A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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Sign the Awareness Petition

Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…

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Why You Should Support Awareness Month

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Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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How Physicians Can Support Awareness Month

Doctors know the importance of preventative medicine for overall health and wellness. When it comes to Turner Syndrome, early diagnosis and preventative treatments are especially important. With a late diagnosis, treatment options like growth hormone therapy are unavailable. You can…

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My Story: No Diagnosis Without Awareness

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Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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Host a Casual Day Fundraiser

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Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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Awareness Month Fundraisers

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Raise awareness while you shop when you support your fellow volunteers’ Awareness Month fundraisers! Pampered Chef, Swarovski Jewelry, custom cards, and more!

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