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How do you Raise Awareness?

February Awareness Month just ended and we want to know how you participated! We have created a survey to find out just that. There are so many ways to spread the word about TS. Whether you just share your story…

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Help Us Raise Awareness in Every State!

February is Turner Syndrome Awareness Month

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Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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“Taking Action this Awareness Month” Webinar

Awareness Webinar

We have a very special free webinar planned for Thursday, January 9th at 8 pm EST! This will be a webinar to discuss all the things we have prepared for you in Awareness Month this February. Additionally, you will hear…

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A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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Why You Should Support Awareness Month

turner syndrome, awareness month, raise awareness

Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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