Archives


Help Us Raise Awareness in Every State!

February is Turner Syndrome Awareness Month

Read More

Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

Read More

A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

Read More

Join us for a Live Awareness Chat!

This February, we want to raise awareness and amplify the voices of this community! That’s why every Wednesday, we will be hosting a Twitter Chat. Join us at 8pm, EST, to participate in a Q and A. Share your perspectives…

Read More

"Taking Action this Awareness Month" Webinar

Awareness Webinar

We have a very special free webinar planned for Thursday, January 9th at 8 pm EST! This will be a webinar to discuss all the things we have prepared for you in Awareness Month this February. Additionally, you will hear…

Read More

A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

Read More

Why You Should Support Awareness Month

turner syndrome, awareness month, raise awareness

Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

Read More

How Physicians Can Support Awareness Month

Doctors know the importance of preventative medicine for overall health and wellness. When it comes to Turner Syndrome, early diagnosis and preventative treatments are especially important. With a late diagnosis, treatment options like growth hormone therapy are unavailable. You can…

Read More

My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

Read More

Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

Read More
X