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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

legislative advocacy for Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

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Events for Awareness

Planning an event is a great way to raise awareness! There are so many different activities that could be used as an opportunity to raise awareness. Think- a fun run, karaoke night, wine and cheese tasting, yoga session, scavenger hunt,…

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Turner Syndrome affects 1 in 2,000 females

Girl with Turner Syndrome

She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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The importance of writing to your legislators

Rally for Medical Research

We have been running our campaign to gain signatures on a letter to legislators for a few weeks now and have recieved great feedback! We’d like to further stress how simple it is to sign on to this legislative advocacy,…

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Together we make a difference!

TS family

Standing Tall for Turner Syndrome

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Youth Contributors

Internship

Social consciousness of Turner Syndrome is evident through our solid base of youth activists. TAKE ACTION and visit https://turnersyndromefoundation.org/volunteer/ to get involved.

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