Turner Syndrome is largely viewed as a pediatric condition. However, a lifetime of specialized treatment and access to care is necessary especially for adult women with Turner Syndrome. Turner Syndrome Foundation is introducing a women’s health initiative to bring awareness and education to this area of concern. We need your help to make it a success!
If you are over the age of 18, please take a few minutes to complete a brief questionnaire. Your responses will help us to understand access to adult specialized care in all regions across the country. Whether you can or cannot find accessible care, we want to hear from you!
Your access to care experience with adult Turner Syndrome care is an essential part of this story! Voice your concerns and be an active part of the solution! You can be a hero for young girls who will one day like you need adult care!