Personal Stories

How I handle my anxiety

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By: Josey Petz, TSF Volunteer I am sure not many of you know this, but women with Turners Syndrome can easily develop anxiety. I definitely have had anxiety for as long as I can remember. I am constantly worried about what other people think of me or if I am being too weird. The second they quit responding (because they’re busy) or their body language changes I immediately think it is because they don’t like

A Stellar Video: This is my story

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Eager to spread awareness of Turner Syndrome, Stella decided to share her Turner Syndrome journey. This courageous and beautiful young lady is making a difference. Watch her video, read her story and be inspired!  Don’t let anyone discourage you from being the best version of yourself. Turner Syndrome does not limit you to be great, and like Stella said: “it’s very easy to prove [anyone who disagree] wrong.” You can learn more about Stella’s story

A story of love, hope & perseverance

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Our Turner Syndrome Story… On December 11th, 2017 I was at work anticipating a call to find out the gender of our baby that would ultimately change our lives. From week 7 I had a feeling so strong she was a girl but I decided to do the blood test to determine the gender at 11 weeks pregnant despite my husbands request not to. The test had the potential to tell us if there were

Pennsylvania legislature

Legislative Advocacy in PA

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One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter, Carly Joy, went before the Pennsylvania State Senate on behalf of Turner Syndrome Awareness Month. Dana has successfully advocated for February as awareness month for six years in a row, and her story can inspire

“Love will find you and won’t know it.”

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Meet Chandra. In her story and video below she tells us about her TS diagnosis, the struggles she faced, and how she met the love of her life. She even offers some dating advice for those who feel they will never find their significant other. Like she said, love can find you when you least expect it. Hello my name is Chandra and I was born in 1982. I have been small my whole life.

“Why me” to “What for?” A remarkable story.

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I never thought I would have the opportunity to write about my personal Turner Syndrome story as a physician-immunologist, researcher and mother. It was an ordinary day, like any other day. I opened my email and received my daughter’s karyotype test. Her pediatrician and endocrinologist had decided to ask for this specific exam because she was worried about growth stopping in a 12-year-old girl. I just took my daughter to the pediatrician for the annual

From a daughter’s heart

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My mother, Paula, wearing  red and myself at 8 years of age on the right.            My story is a little unique, and hopefully inspiring, to others because as an adopted child Turner Syndrome affected my life in such a big way.              My mother, Paula, was diagnosed in the 1950’s with the second known case of TS. Of course at this time little progress in research was made and my
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