Personal Stories

turner syndrome and infertility

Twitter Chat: Turner Syndrome and Women’s Health

 Liz Carmines  

 No Comments

May25
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator In anticipation of Women’s Health Month this month, we had a wonderful Twitter discussion in April about Turner Syndrome and women’s health. We talked about different women’s experiences with Turner Syndrome and their health. It is important that we highlight the special needs of girls and women with Turner Syndrome to ensure they receive the unique care they need. Make sure to join us for our next Twitter chat

Returning to the New “Normal”

 sherman126  

 No Comments

May14
Written by Susan Herman, a woman with Turner Syndrome and volunteer blog post editor and translator with the Turner Syndrome Foundation. In a previous blog post, we examined coping with grief during the current pandemic, In this post, we examine how to deal with returning to the the new “normal.” “In the rush to return to normal, use this time to consider which parts of normal are worth rushing back to.”Dave Hollis, CEO of the

blog series with Katie Steedly curling

My First Pelvic Ultrasound: Reflecting on Love and Normalcy

 Liz Carmines  

 No Comments

May12
Katie Steedly Curling, PhD, writer & guest blogger for TSF, describes her first experience with a pelvic ultrasound and reflects on this “normal” part of womanhood. A Big Deal My first pelvic ultrasound occurred when I was 37 at the National Institutes of Health (NIH). I was participating in a Turner Syndrome study, and it was a big deal for me. I knew the ultrasound had been prescribed to assess my health, not to evaluate

Turner syndrome woman and family

Turner Syndrome and Pregnancy: Against All Odds

 Liz Carmines  

 No Comments

May09
Heather, a woman who has Turner Syndrome, shares how she was able to successfully use IVF to start her family. The majority of females who have Turner Syndrome are unable to have children, and even if they can, pregnancy often presents a major risk to the life of the mother and the child. In Heather’s case, she was able to work with her health care team to navigate a healthy pregnancy and start a beautiful

Positivity through the Journey

 Liz Carmines  

 No Comments

Mar19
“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!“ Cassidy is a woman who has Turner Syndrome with a story to share. She spreads a message of positivity despite challenges she has faced through her life journey. Diagnosed with Turner Syndrome at Birth Hello! My name is Cassidy Hooper and I’m from Mississippi. I’m 26 years old.

Turner Girls Can

“Turner Girls Can”: Rebranding TSF Alaska

 Liz Carmines  

 No Comments

Jan07
Over several years TSF Alaska has become an uplifting page on Facebook for members of the Turner Syndrome community to share photos of their girls doing amazing things. We have decided to embrace this change and officially rebrand the page, as it represents the primary purpose it has naturally taken-on for some time. The rebranded page will be called “Turner Girls Can.” We invite families across the country, and the world, to share photos and

coming out turner syndrome diagnosis

A Woman’s Perspective on Infertility

 Liz Carmines  

 No Comments

Dec10
by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF The Topic of Infertility Infertility is definitely not a typical holiday topic, but it is a quiet discussion that whispers around the corners of my holidays: at family gatherings, in annual Christmas cards, on Christmas morning. Reminders are everywhere. These are the times when my path, that has not included giving birth to my own children, hurts with the pain of wondering, “what if?”

How I handle my anxiety

 monicatsf  

 No Comments

Oct08
By: Josey Petz, TSF Volunteer I am sure not many of you know this, but women with Turners Syndrome can easily develop anxiety. I definitely have had anxiety for as long as I can remember. I am constantly worried about what other people think of me or if I am being too weird. The second they quit responding (because they’re busy) or their body language changes I immediately think it is because they don’t like

A Stellar Video: This is my story

 monicatsf  

 2 Comments

Aug14
Eager to spread awareness of Turner Syndrome, Stella decided to share her Turner Syndrome journey. This courageous and beautiful young lady is making a difference. Watch her video, read her story and be inspired!  Don’t let anyone discourage you from being the best version of yourself. Turner Syndrome does not limit you to be great, and like Stella said: “it’s very easy to prove [anyone who disagree] wrong.” You can learn more about Stella’s story

Pennsylvania legislature

Legislative Advocacy in PA

 Liz Carmines  

 No Comments

Feb08
One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter, Carly Joy, went before the Pennsylvania State Senate on behalf of Turner Syndrome Awareness Month. Dana has successfully advocated for February as awareness month for six years in a row, and her story can inspire

Leave a Reply

X
%d bloggers like this: