Legislative Advocacy in PA
One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter, Carly Joy, went before the Pennsylvania State Senate on behalf of Turner Syndrome Awareness Month. Dana has successfully advocated for February as awareness month for six years in a row, and her story can inspire
“Love will find you and won’t know it.”
Meet Chandra. In her story and video below she tells us about her TS diagnosis, the struggles she faced, and how she met the love of her life. She even offers some dating advice for those who feel they will never find their significant other. Like she said, love can find you when you least expect it. Hello my name is Chandra and I was born in 1982. I have been small my whole life.
“Why me” to “What for?” A remarkable story.
I never thought I would have the opportunity to write about my personal Turner Syndrome story as a physician-immunologist, researcher and mother. It was an ordinary day, like any other day. I opened my email and received my daughter’s karyotype test. Her pediatrician and endocrinologist had decided to ask for this specific exam because she was worried about growth stopping in a 12-year-old girl. I just took my daughter to the pediatrician for the annual
From a daughter’s heart
My mother, Paula, wearing red and myself at 8 years of age on the right. My story is a little unique, and hopefully inspiring, to others because as an adopted child Turner Syndrome affected my life in such a big way. My mother, Paula, was diagnosed in the 1950’s with the second known case of TS. Of course at this time little progress in research was made and my