My ultimate goal is for the citizens of our country to be educated on Turner Syndrome and to show them all the positive side of the disorder. Many Americans do not understand that there are many women living positive and fulfilling lives with Turner Syndrome. During pregnancy, Turner Syndrome babies are given a 2% chance of survival and many of those butterflies beat the odds every single day. Turner Syndrome women are miracles who are the strongest and most beautiful individuals that walk this earth. They should be celebrated and honored and with my outreach goal, that will ultimately happen for them. – Heather Benoit
“Perhaps the butterfly is proof that you can go through a great deal of darkness yet become something beautiful”
TSF provides many ways for the community to connect, be social and contribute to the community outreach efforts. Many of our activities are virtual, so anyone, anywhere can participate. Check our event calendar to find out about our online events and to see if there is an event in a location near you!
Choose from exciting program areas to get involved in a big or small way: Raise Awareness, Share Education Resources, Advocate for Change, Research Initiatives and so much more. TSF offers orientation & ongoing support for your success.
Your State Resources:
- Contact State Legislators
- Department of Education
- Department of Health & Human Services
- Health Insurance
- Workforce Development
- 211 Helpline