BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Turner Syndrome Foundation - ECPv6.17.4.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20280312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20281105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260421T213102Z
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T000000
DTEND;TZID=America/New_York:20270731T235900
DTSTAMP:20260720T213303Z
CREATED:20260601T200733Z
LAST-MODIFIED:20260720T213303Z
UID:10002938-1780272000-1817078340@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Send a Card and Spread Kindness\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. \nSend a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. Make your donation and we will handle the rest! \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \n \n  \nPurchase more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260702
DTEND;VALUE=DATE:20270101
DTSTAMP:20260724T184846Z
CREATED:20260702T184206Z
LAST-MODIFIED:20260724T184846Z
UID:10003161-1782950400-1798761599@turnersyndromefoundation.org
SUMMARY:Research Opportunity: Positive Prenatal Screening for Turner Syndrome
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/research-opportunity-positive-prenatal-screening-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Research-Positive-Prenatal-screening-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260820
DTEND;VALUE=DATE:20280101
DTSTAMP:20260820T162144Z
CREATED:20260820T161216Z
LAST-MODIFIED:20260820T162144Z
UID:10004345-1787184000-1830297599@turnersyndromefoundation.org
SUMMARY:Wings of Hope - Book Fundraiser
DESCRIPTION:Wings of Hope’s Story\n\n\nWings of Hope was created to honor the strength\, resilience\, and beauty of those living with Turner syndrome. \nThis initiative accompanies the release of Wings of Hope\, a deeply personal book that shares the journey of a mother and daughter navigating Turner syndrome through faith\, perseverance\, and purpose. \nRead or purchase the book here \nSupporters may also choose to donate directly through this fundraiser page\, helping expand awareness and support the mission even further. \nWhy Wings of Hope\nThe butterfly symbolizes transformation\, endurance\, and hope—qualities that reflect the journey of individuals and families living with Turner syndrome. \nWings of Hope shares that journey through the lived experience of a mother and daughter\, highlighting both the challenges and the victories along the way. It is a story grounded in faith\, resilience\, and the belief that even the smallest wings can carry great hope. \nHow the Fundraiser Works \n\nWings of Hope is available for purchase on Amazon\n100% of book proceeds will be donated to the Turner Syndrome Foundation (TSF)\nSupporters can also donate directly through this fundraiser page\nSharing the fundraiser helps amplify awareness and support for the Turner syndrome community
URL:https://turnersyndromefoundation.org/event/wings-of-hope-book-fundraiser/
LOCATION:Online
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Screenshot-2026-08-20-at-12.05.41-PM.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260902
DTEND;VALUE=DATE:20270902
DTSTAMP:20260804T175932Z
CREATED:20260703T203603Z
LAST-MODIFIED:20260804T175932Z
UID:10003163-1788307200-1819843199@turnersyndromefoundation.org
SUMMARY:Group Coaching for Women with Turner Syndrome
DESCRIPTION:This is not therapy\, but a structured coaching program focused on turning goals into consistent action. \nSupporting the Turner Syndrome Foundation\nEnrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. \nA portion of the service fee may be donated to TSF at the client’s discretion.
URL:https://turnersyndromefoundation.org/event/f-nvld-cohort/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Screenshot-2026-07-03-at-4.26.06-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20250311T171335Z
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002115-1791230400-1791234000@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-10-05/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261008
DTEND;VALUE=DATE:20261009
DTSTAMP:20260826T215249Z
CREATED:20260826T185357Z
LAST-MODIFIED:20260826T215249Z
UID:10004346-1791417600-1791503999@turnersyndromefoundation.org
SUMMARY:DAFday 2026
DESCRIPTION:Make an Impact Through Your Donor-Advised Fund\nA Donor-Advised Fund (DAF) offers a simple\, flexible\, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. \nBy recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF\, you help advance our mission to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care for those affected by Turner syndrome. \nYour generosity helps TSF provide education\, patient and caregiver resources\, professional engagement\, advocacy\, and support—reaching individuals and families across the United States and around the world. \nRecommend a Grant Today\nClients of Fidelity Charitable\, Schwab Charitable\, Vanguard Charitable\, and other sponsoring organizations can recommend a grant to the Turner Syndrome Foundation using the DAF giving widget below. \n \nAlready have a Donor-Advised Fund? Put your charitable dollars to work for the Turner syndrome community today. \nGiving Directly Through Your DAF Sponsor\nIf you prefer to contact your financial institution or DAF sponsor directly\, please designate your charitable grant to: \n\nOrganization: Turner Syndrome Foundation\nTax ID (EIN): 27-1409942\nAddress: Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733\n\nAfter recommending your grant\, please notify us. DAF grants sometimes arrive without the donor’s complete contact information. Letting us know about your gift allows us to properly acknowledge your generosity and express our appreciation. \nWhy Your DAF Gift Matters\nTurner syndrome is a complex chromosomal condition affecting approximately 1 in every 2\,000 females born and requiring specialized healthcare throughout a lifetime. Yet awareness remains limited\, and many girls and women struggle to find knowledgeable providers\, appropriate resources\, and coordinated care. \nYour DAF can change that. \nYour charitable grant can help TSF: \n\nExpand free patient and caregiver education and support\nIncrease professional awareness of Turner syndrome\nConnect families with information and healthcare resources\nAdvance research and research participation\nStrengthen advocacy and public awareness\nBuild programs that improve care throughout every stage of life\n\nYour Charitable Dollars. Their Healthier Tomorrows.\nIf you have already established a DAF\, recommending a grant is one of the easiest ways to put those charitable funds into action. \nRecommend a grant to the Turner Syndrome Foundation today and help create a future where a missing chromosome never means missed opportunities. \nFor questions or assistance with a DAF gift\, please contact the Turner Syndrome Foundation at info@tsfusa.org | (800) 594-4585 x5.
URL:https://turnersyndromefoundation.org/event/dafday-2026/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/DAFday.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260804T180722Z
CREATED:20260521T182427Z
LAST-MODIFIED:20260804T180722Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \n  \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR