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PRODID:-//Turner Syndrome Foundation - ECPv6.17.4.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260724T184506Z
CREATED:20260409T200310Z
LAST-MODIFIED:20260724T184506Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260421T213102Z
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T000000
DTEND;TZID=America/New_York:20270731T235900
DTSTAMP:20260720T213303Z
CREATED:20260601T200733Z
LAST-MODIFIED:20260720T213303Z
UID:10002938-1780272000-1817078340@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Send a Card and Spread Kindness\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. \nSend a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. Make your donation and we will handle the rest! \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \n \n  \nPurchase more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20261001
DTSTAMP:20260724T184817Z
CREATED:20260701T185442Z
LAST-MODIFIED:20260724T184817Z
UID:10003159-1782864000-1790812799@turnersyndromefoundation.org
SUMMARY:Film & Advocacy Opportunity: A Family Planning Survey
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/family-planning-survey/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Family-Planning-Survey-scaled.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260702
DTEND;VALUE=DATE:20270101
DTSTAMP:20260724T184846Z
CREATED:20260702T184206Z
LAST-MODIFIED:20260724T184846Z
UID:10003161-1782950400-1798761599@turnersyndromefoundation.org
SUMMARY:Research Opportunity: Positive Prenatal Screening for Turner Syndrome
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/research-opportunity-positive-prenatal-screening-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Research-Positive-Prenatal-screening-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260820
DTEND;VALUE=DATE:20280101
DTSTAMP:20260820T162144Z
CREATED:20260820T161216Z
LAST-MODIFIED:20260820T162144Z
UID:10004345-1787184000-1830297599@turnersyndromefoundation.org
SUMMARY:Wings of Hope - Book Fundraiser
DESCRIPTION:Wings of Hope’s Story\n\n\nWings of Hope was created to honor the strength\, resilience\, and beauty of those living with Turner syndrome. \nThis initiative accompanies the release of Wings of Hope\, a deeply personal book that shares the journey of a mother and daughter navigating Turner syndrome through faith\, perseverance\, and purpose. \nRead or purchase the book here \nSupporters may also choose to donate directly through this fundraiser page\, helping expand awareness and support the mission even further. \nWhy Wings of Hope\nThe butterfly symbolizes transformation\, endurance\, and hope—qualities that reflect the journey of individuals and families living with Turner syndrome. \nWings of Hope shares that journey through the lived experience of a mother and daughter\, highlighting both the challenges and the victories along the way. It is a story grounded in faith\, resilience\, and the belief that even the smallest wings can carry great hope. \nHow the Fundraiser Works \n\nWings of Hope is available for purchase on Amazon\n100% of book proceeds will be donated to the Turner Syndrome Foundation (TSF)\nSupporters can also donate directly through this fundraiser page\nSharing the fundraiser helps amplify awareness and support for the Turner syndrome community
URL:https://turnersyndromefoundation.org/event/wings-of-hope-book-fundraiser/
LOCATION:Online
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Screenshot-2026-08-20-at-12.05.41-PM.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260827T200000
DTEND;TZID=America/New_York:20260827T210000
DTSTAMP:20260818T171904Z
CREATED:20260818T171904Z
LAST-MODIFIED:20260818T171904Z
UID:10004344-1787860800-1787864400@turnersyndromefoundation.org
SUMMARY:Facebook Chat: TSF Campus Club Launch
DESCRIPTION:Join us for a live conversation on Facebook to discuss the Campus Life\, Aug 27\, 8pm ET. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, TSF Campus Club Launch\, taking place Sep 2nd at 8 PM ET. Register for the webinar.
URL:https://turnersyndromefoundation.org/event/facebook-chat-tsf-campus-club-launch/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Campus-Club-Facebook-Chat.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260828T190000
DTEND;TZID=America/New_York:20260828T210000
DTSTAMP:20260805T172121Z
CREATED:20260702T171221Z
LAST-MODIFIED:20260805T172121Z
UID:10003160-1787943600-1787950800@turnersyndromefoundation.org
SUMMARY:BlueClaws vs Wilmington Blue Rocks
DESCRIPTION:Turner Syndrome Community Event\n8/28 7:05 PM – Jersey Shore BlueClaws VS Wilmington Blue Rocks at ShoreTown Ballpark Lakewood\, NJ 08701 \n \nBaseball and Turner Syndrome… As good as it gets! \nJoin us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are $20 per person. TS patients are free. This year\, we are offering a special 6-pack of tickets for the price of four. We hope the event will be a sell-out! \nTurner Syndrome Foundation is a community partner of the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. \n \nThe Jersey BlueClaws Stadium is located in Lakewood\, New Jersey\, and is named for their location on the Jersey Shore and blue crabs native to the area. \nThe BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. \n \nThe BlueClaws are going to play ball with Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nQuestions? Email Lori Kobular lkobular@tsfusa.org —– Turner Syndrome affects 1 in 2\,000 females. We can help.
URL:https://turnersyndromefoundation.org/event/blueclaws-vs-wilmington-blue-rocks/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/BlueClaws-Cover-Photo.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260828T200000
DTEND;TZID=America/New_York:20260828T220000
DTSTAMP:20250113T215344Z
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000076-1787947200-1787954400@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-08-28/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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