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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260410T180946Z
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260421T213102Z
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20260601T000000
DTEND;TZID=America/New_York:20270731T235900
DTSTAMP:20260720T213303Z
CREATED:20260601T200733Z
LAST-MODIFIED:20260720T213303Z
UID:10002938-1780272000-1817078340@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Send a Card and Spread Kindness\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. \nSend a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. Make your donation and we will handle the rest! \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \n \n  \nPurchase more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20261001
DTSTAMP:20260702T194540Z
CREATED:20260701T185442Z
LAST-MODIFIED:20260702T194540Z
UID:10003159-1782864000-1790812799@turnersyndromefoundation.org
SUMMARY:Film & Advocacy Opportunity: A Family Planning Survey
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/family-planning-survey/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Family-Planning-Survey-scaled.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260702
DTEND;VALUE=DATE:20270101
DTSTAMP:20260702T194342Z
CREATED:20260702T184206Z
LAST-MODIFIED:20260702T194342Z
UID:10003161-1782950400-1798761599@turnersyndromefoundation.org
SUMMARY:Research Opportunity: Positive Prenatal Screening for Turner Syndrome
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/research-opportunity-positive-prenatal-screening-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Research-Positive-Prenatal-screening-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260702T200000
DTEND;TZID=America/New_York:20260702T210000
DTSTAMP:20260702T194204Z
CREATED:20260618T174304Z
LAST-MODIFIED:20260702T194204Z
UID:10002940-1783022400-1783026000@turnersyndromefoundation.org
SUMMARY:Legislative Advocacy Meeting
DESCRIPTION:Legislative Advocacy Working Group\nThe Turner Syndrome Foundation’s Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy\, education\, and community engagement\, members help ensure that the voices of patients\, families\, caregivers\, and healthcare professionals are heard by local\, state\, and federal policymakers. \nWhat Does the Legislative Advocacy Working Group Do?\nThe Working Group monitors legislation and public policy issues that impact healthcare access\, rare disease awareness\, research funding\, education\, and patient support services. Members work together to: \n\nEducate elected officials about Turner syndrome and its lifelong health implications.\nAdvocate for policies that improve access to healthcare\, diagnosis\, treatment\, and support services.\nParticipate in letter-writing campaigns\, phone calls\, and meetings with legislators and their staff.\nRaise awareness of issues affecting the Turner syndrome community at the local\, state\, and national levels.\nCollaborate with other rare disease and patient advocacy organizations on shared policy priorities.\nShare updates on legislative developments and opportunities for community action.\n\nHow Can I Join?\nAnyone passionate about making a difference for the Turner syndrome community is welcome to participate. No prior advocacy experience is required.\nTo get started: \n\nComplete the Turner Syndrome Foundation Volunteer Application.\nSelect Legislative Advocacy when asked\, “In which areas would you like to volunteer?”\nComplete the online volunteer orientation.\nAttend our monthly virtual working group meetings and participate in advocacy activities at a level that fits your schedule.\n\nWhether you can make a phone call\, write a letter\, meet with a legislator\, or help organize advocacy efforts in your state\, your participation can help create meaningful change for individuals and families affected by Turner syndrome. \nTo learn more and get started: \n \nTogether\, we can amplify the voices of individuals and families affected by Turner syndrome and create lasting change.
URL:https://turnersyndromefoundation.org/event/legislative-advocacy-meeting/2026-07-02/
LOCATION:Online
CATEGORIES:Advocacy,Virtual,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Legislative-Advocacy-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260703
DTEND;VALUE=DATE:20261001
DTSTAMP:20260703T204305Z
CREATED:20260703T203603Z
LAST-MODIFIED:20260703T204305Z
UID:10003163-1783036800-1790812799@turnersyndromefoundation.org
SUMMARY:Group Coaching for Women with Turner Syndrome
DESCRIPTION:This is not therapy\, but a structured coaching program focused on turning goals into consistent action. \nSupporting the Turner Syndrome Foundation\nEnrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. \nA portion of the service fee may be donated to TSF at the client’s discretion.
URL:https://turnersyndromefoundation.org/event/f-nvld-cohort/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Screenshot-2026-07-03-at-4.26.06-PM.png
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