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PRODID:-//Turner Syndrome Foundation - ECPv6.16.3//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T004945
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T004945
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260605T004945
CREATED:20260601T200733Z
LAST-MODIFIED:20260601T201454Z
UID:10002938-1780272000-1782863999@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Bringing Back Snail Mail\n \n\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. \nWith just a $5 donation\, you will have the opportunity to send a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \nView more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20260605T004945
CREATED:20260506T175708Z
LAST-MODIFIED:20260515T163842Z
UID:10002933-1780704000-1780790399@turnersyndromefoundation.org
SUMMARY:MLB Miami Marlins vs Tampa Rays Baseball Game 'Strikeouts for Ellis'
DESCRIPTION:Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation\n  \nTS Community Day on June 6\, 2026 \nMiami Marlins vs. Tampa Rays game in Miami\, FL \nGrab Bag Fundraiser\n\nOrder Tickets\nOrder Strikeouts for Ellis Merchandise \n  \nYour support brings hope to many. Thank you for your donation. \n \n \n \n \n \nORDER STRIKEOUTS FOR ELLIS MERCHANDISE \n \n  \n \nAfter an abnormal ultrasound and weeks of waiting for test results\, we were told that our daughter\, Ellis\, likely had Turner syndrome at 9 weeks gestation. Ellis was with us for a total of 19 weeks and six days gestation. Those weeks were extremely difficult. The unknown of the diagnosis\, difficulty receiving care\, and the odds that were repeated to us every appointment made it difficult to see the light. Despite the darkness at times\, we cherish those weeks because Ellis met milestones we were told she wouldn’t\, and she taught us the importance of life and being present. Ellis was a fighter. Throughout this journey of diagnosis and loss\, Peter and I have learned that there is a gap in the system. Reaching out to the Turner Syndrome Foundation taught us that there are many others experiencing the same battles. We are motivated to help the Turner Syndrome Foundation bridge the gap between diagnosis and care. This season\, we vow to honor Ellis and other families who have experienced loss. We vow to Rays Up for those who beat the odds and raise awareness for Turner Syndrome and the resources that are out there. \n \nThis season\, we will participate in two initiatives to raise awareness and support for the Turner Syndrome community: Strikeouts for Ellis and the Rays Up for Turner Syndrome online auction. We appreciate all the support in advance. Peter and I know we are not alone\, and we want others to know they are not alone\, either. \nWe can make a difference!\nWith Love\, Peter and Lydia Fairbanks \n \nStrikeouts for Ellis\nAll season-long\, when you hear “With that strikeout\, Peter Fairbanks and his wife\, Lydia\, will donate $200 to the Turner Syndrome Foundation. Follow Pete and the Major League Baseball team\, the Miami Marlins\, for more information and know that TSF is being supported in honor of Ellis. \nMLB Stats: https://www.mlb.com/player/pete-fairbanks-664126 \nMedia: https://www.espn.com/mlb/story/_/id/48406953/pete-fairbanks-gets-start-leaves-marlins-birth-child \nMedia:  https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia: https://x.com/Ry_Bass/status/1818298972886159671
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/
LOCATION:Tampa Bay Rays\, Tropicana Field\, St. Petersburg\, FL\, 33705\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/IMG_1273-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260605T004945
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260626T200000
DTEND;TZID=America/New_York:20260626T220000
DTSTAMP:20260605T004945
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000074-1782504000-1782511200@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-06-26/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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