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PRODID:-//Turner Syndrome Foundation - ECPv6.16.3//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T025056
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T025056
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260605T025056
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260605T025056
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T200000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260605T025056
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002110-1777924800-1777928400@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-05-04/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260605T025056
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260605T025056
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260605T025056
CREATED:20260409T171230Z
LAST-MODIFIED:20260409T171327Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260605T025056
CREATED:20260518T201711Z
LAST-MODIFIED:20260518T201711Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260529T200000
DTEND;TZID=America/New_York:20260529T220000
DTSTAMP:20260605T025056
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000073-1780084800-1780092000@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-05-29/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
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