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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T044017
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260421
DTSTAMP:20260605T044017
CREATED:20260401T233353Z
LAST-MODIFIED:20260401T233353Z
UID:10002921-1775001600-1776729599@turnersyndromefoundation.org
SUMMARY:Pampered Chef Party benefit for TSF
DESCRIPTION:A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20.  This is the third year Marianne is supporting the cause. \nOrder https://table.pamperedchef.com/party/2852257aby \n  \nIf you have a small business and would like to support the cause\, submit an event form to market your event. 100% of all proceeds must support TSF. Thank you for your incredible support!
URL:https://turnersyndromefoundation.org/event/pampered-chef-party-benefit-for-tsf/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Fundraise.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T173000
DTEND;TZID=America/New_York:20260401T183000
DTSTAMP:20260605T044017
CREATED:20260318T171659Z
LAST-MODIFIED:20260318T171659Z
UID:10002919-1775064600-1775068200@turnersyndromefoundation.org
SUMMARY:TSF Butterfly Bake Sale
DESCRIPTION:Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. \n\nWestwood Village Mall – 2600 SW Barton Street\, Seattle\, WA\nApril 1st 5:30pm\n\n“I have been following TSF for about 3 years now and because my daughter was diagnosed with TS I didn’t know much about TS until I found TSF and I appreciate everything that TSF does” – Kaitlin \n  \n 
URL:https://turnersyndromefoundation.org/event/tsf-butterfly-bake-sale/
LOCATION:Westwood Village Mall\, 2600 SW Barton Street\, Seattle\, WA\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/Bake-Sale-Flyer-Kaitlin-Wagner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T200000
DTEND;TZID=America/New_York:20260401T210000
DTSTAMP:20260605T044017
CREATED:20260209T223522Z
LAST-MODIFIED:20260209T224133Z
UID:10002901-1775073600-1775077200@turnersyndromefoundation.org
SUMMARY:Webinar: Sharing Turner Syndrome Through Film - The Story Behind Like A Butterfly
DESCRIPTION:Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly\, her deeply personal and thought-provoking film. In this WE Learn webinar\, Brooke shares the inspiration behind the story\, why Turner Syndrome stories must be told\, and how film can be a powerful tool for awareness\, advocacy\, and connection. Discover how storytelling through media can amplify voices\, foster empathy\, and spark meaningful change.\n \nAbout the Presenter\nBrooke Gonsalves is an independent filmmaker and storyteller with experience across film\, digital media\, and podcasting. She produced and directed Like A Butterfly\, shepherding the project from initial concept through post-production. Brooke also hosts podcasts and runs a YouTube channel dedicated to highlighting Turner Syndrome stories—celebrating resilience\, raising awareness\, and uplifting the community through personal narratives and interviews. Her work blends creative storytelling with advocacy\, offering both emotional impact and meaningful insight. \nWhat You’ll Gain From Attending\nBehind-the-Scenes Insight\nLearn how Like A Butterfly was brought to life—from idea development to post-production decisions. \nAdvocacy Through Storytelling\nSee how film and digital media can raise awareness and amplify the voices of underrepresented people\, especially within the Turner Syndrome community. \nPersonal Inspiration\nHear Brooke’s journey as a filmmaker and advocate\, including challenges faced\, lessons learned\, and milestones achieved. \nLive Q&A Opportunity\nAsk questions directly about filmmaking\, Turner Syndrome advocacy\, or creating content with social impact. \nWhy This Webinar Matters Beyond Turner Syndrome\nUniversal Storytelling Skills\nLearn how to craft compelling stories\, build emotional resonance\, and engage audiences—valuable for filmmakers\, writers\, educators\, marketers\, and communicators of all kinds. \nInspiration & Resilience\nBrooke’s experience highlights creativity\, perseverance\, and problem-solving—lessons applicable to both personal and professional growth. \nSocial Impact Through Media\nExplore how storytelling can foster empathy\, raise awareness\, and spark meaningful conversations across diverse communities. \nPractical\, Engaging Discussion\nThe interactive Q&A makes this session relevant for professionals\, students\, creatives\, and anyone interested in storytelling with purpose. \nAbout the Presenter: \nBrooke Gonsalves is a filmmaker\, producer\, and Turner Syndrome advocate. She is the creator of Like a Butterfly\, a documentary film that explores identity\, resilience\, and lived experience through the lens of Turner Syndrome. \nIn addition to her work in film\, Brooke hosts podcasts focused on storytelling\, advocacy\, and the creative process\, and is committed to creating spaces where stories are seen and heard. Through her work\, she bridges personal experience and cinematic storytelling to foster understanding\, connection\, and conversation. \nShe holds a Bachelor’s degree in Psychology with a concentration in counseling and a Master’s degree in Applied Behavior Analysis. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-sharing-turner-syndrome-through-film-the-story-behind-like-a-butterfly/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Gonsalves.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T044017
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260406T200000
DTEND;TZID=America/New_York:20260406T210000
DTSTAMP:20260605T044017
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002109-1775505600-1775509200@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-04-06/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260605T044017
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002079-1776110400-1776114000@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-04-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T200000
DTEND;TZID=America/New_York:20260424T220000
DTSTAMP:20260605T044017
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000072-1777060800-1777068000@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-04-24/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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