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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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TZID:America/New_York
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T200000
DTEND;TZID=America/New_York:20251201T210000
DTSTAMP:20260605T141127
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002105-1764619200-1764622800@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2025-12-01/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251212
DTEND;VALUE=DATE:20260101
DTSTAMP:20260605T141127
CREATED:20251212T214515Z
LAST-MODIFIED:20251212T214515Z
UID:10002869-1765497600-1767225599@turnersyndromefoundation.org
SUMMARY:Paid Research Opportunity
DESCRIPTION:Are you an adult with Turner syndrome?\n\nWe would love to hear about your experiences moving from pediatric to adult healthcare!\n  \nWe’re inviting you to join a research study about the transition from pediatric to adult care for people with Turner Syndrome. Help us make medical care more accessible and affirming for everyone. \nWhat does participation involve? \n• 10-15 minute survey with basic background questions.\n• 45-60 minute Zoom interview about your transition to adult\nhealthcare.\n• All responses are confidential.\n• Receive a $25 Amazon gift card for completing both! \nIf you’re interested in participating or want to learn more about the study\, please go to:\nhttps://bit.ly/49riJis. \nLed by Haylie McSwaney\, a Genetic Counseling graduate student at Boston University\, with\nguidance from experienced genetic counselors and a clinical social worker.
URL:https://turnersyndromefoundation.org/event/paid-research-opportunity/
LOCATION:virtual
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/12/Screenshot-2025-12-12-at-4.36.00-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251226T200000
DTEND;TZID=America/New_York:20251226T220000
DTSTAMP:20260605T141127
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000068-1766779200-1766786400@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2025-12-26/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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