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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20250601
DTEND;VALUE=DATE:20250901
DTSTAMP:20260605T220630
CREATED:20250325T153751Z
LAST-MODIFIED:20250516T180527Z
UID:10002172-1748736000-1756684799@turnersyndromefoundation.org
SUMMARY:Summer Read-A-Thon
DESCRIPTION:Do you love to read?\nThe Turn a Page for Turner Syndrome Read-A-Thon is an opportunity for us all to come together to enjoy the love of reading while raising funds to support the Turner syndrome community!\n\nFrom June-August 2025\, set a goal for your summer reading and fundraising for TSF. Earn prizes for reaching your reading and fundraising goals! \n\n\nWho should participate? \nAnyone can participate. If you love to read or want to get more into reading\, this is a great opportunity to set goals and hold each other accountable to them while supporting TSF! Not only will you experience the benefits of reading\, you’ll feel great knowing you’re supporting a cause you care about. Get your home team involved in a virtual reading club to encourage reading through friendly competition for prizes.  \n\nHow do I sign up?  \nCreate your fundraising team or individual fundraising page using the form. The cost to participate is $5 and is a donation to TSF’s mission. \nOnce you have registered\, create and share your fundraiser as we get ready to kick off in June! Stay tuned for more updates about prizes\, events\, and more. \nREGISTER & SPONSOR A READER\n  \nPrizes include: \n\nMost funds raised – $100 Amazon gift card & Turn a Page t-shirt & tote\n2nd most funds raised – $50 Amazon gift card & Turn a Page merch of choice\nMost individual donors – Turn a Page merch of choice\nMost books read: adult – gift basket with reading light\, “her fight” bumper sticker\, wristband\, Turn a Page merch of choice\nMost books read: youth – gift basket with reading light\, TS book\, teddy bear\, Turn a Page merch of choice\nParticipation: everyone who signs up gets a bookmark
URL:https://turnersyndromefoundation.org/event/summer-read-a-thon/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/03/Read-A-Thon-2025-3.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20250707T200000
DTEND;TZID=America/New_York:20250707T210000
DTSTAMP:20260605T220630
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002100-1751918400-1751922000@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2025-07-07/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250714T200000
DTEND;TZID=America/New_York:20250714T210000
DTSTAMP:20260605T220630
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002076-1752523200-1752526800@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2025-07-14/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250725T200000
DTEND;TZID=America/New_York:20250725T220000
DTSTAMP:20260605T220630
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000063-1753473600-1753480800@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2025-07-25/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250727T130000
DTEND;TZID=America/New_York:20250727T160000
DTSTAMP:20260605T220630
CREATED:20250621T145704Z
LAST-MODIFIED:20250621T145704Z
UID:10002849-1753621200-1753632000@turnersyndromefoundation.org
SUMMARY:TS Community Day at BlueClaws Baseball\, Lakewood\, NJ
DESCRIPTION:Turner Syndrome Community Day\n1:05 PM –  Wilmington Blue Rocks at Jersey Shore BlueClaws ShoreTown Ballpark Lakewood\, NJ 08701\nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nTickets: $20 per person | TS Patients are Free | Special Buy Four Tickets Get Two Free!\nPrices are subject to change. \n\n  \nAbout the Event\nThe Turner Syndrome Foundation is a community partner of the the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. The Jersey BlueClaws are located in Lakewood\, New Jersey\, and are named for their location on the Jersey Shore and blue crabs native to the area. The BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. \nTSF Community Day \nWe’re growing a community! Wear your TSF shirts and hats. If you need to order merch before the event\, go to the online SHOP. \nBring your smiles and be ready for a group photo! \nQuestions? Email Lori Kobular lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/ts-community-day-at-blueclaws-baseball-lakewood-nj-2/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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