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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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TZID:America/New_York
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DTSTART:20240310T070000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250601
DTEND;VALUE=DATE:20250901
DTSTAMP:20260606T022516
CREATED:20250325T153751Z
LAST-MODIFIED:20250516T180527Z
UID:10002172-1748736000-1756684799@turnersyndromefoundation.org
SUMMARY:Summer Read-A-Thon
DESCRIPTION:Do you love to read?\nThe Turn a Page for Turner Syndrome Read-A-Thon is an opportunity for us all to come together to enjoy the love of reading while raising funds to support the Turner syndrome community!\n\nFrom June-August 2025\, set a goal for your summer reading and fundraising for TSF. Earn prizes for reaching your reading and fundraising goals! \n\n\nWho should participate? \nAnyone can participate. If you love to read or want to get more into reading\, this is a great opportunity to set goals and hold each other accountable to them while supporting TSF! Not only will you experience the benefits of reading\, you’ll feel great knowing you’re supporting a cause you care about. Get your home team involved in a virtual reading club to encourage reading through friendly competition for prizes.  \n\nHow do I sign up?  \nCreate your fundraising team or individual fundraising page using the form. The cost to participate is $5 and is a donation to TSF’s mission. \nOnce you have registered\, create and share your fundraiser as we get ready to kick off in June! Stay tuned for more updates about prizes\, events\, and more. \nREGISTER & SPONSOR A READER\n  \nPrizes include: \n\nMost funds raised – $100 Amazon gift card & Turn a Page t-shirt & tote\n2nd most funds raised – $50 Amazon gift card & Turn a Page merch of choice\nMost individual donors – Turn a Page merch of choice\nMost books read: adult – gift basket with reading light\, “her fight” bumper sticker\, wristband\, Turn a Page merch of choice\nMost books read: youth – gift basket with reading light\, TS book\, teddy bear\, Turn a Page merch of choice\nParticipation: everyone who signs up gets a bookmark
URL:https://turnersyndromefoundation.org/event/summer-read-a-thon/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/03/Read-A-Thon-2025-3.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250607
DTEND;VALUE=DATE:20250622
DTSTAMP:20260606T022516
CREATED:20250428T203841Z
LAST-MODIFIED:20250623T153531Z
UID:10002847-1749254400-1750550399@turnersyndromefoundation.org
SUMMARY:Fairbanks Strikeout for Turner Syndrome
DESCRIPTION:Tampa Bay Rays Major League Baseball Supports Turner Syndrome\nStrikeouts for Ellis All Season Long!\nPeter and Lydia Fairbanks invite you to support\nTurner Syndrome Foundation\n\nOrder Strikeouts for Ellis Merchandise\nDonate!\n \nDONATE & SPONSOR\n\nFairbanks Strikeout Stats \n  \nTS in the News \nMedia: https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia –https://x.com/Ry_Bass/status/1818298972886159671 \nMedia –  https://nypost.com/2024/07/31/business/tampa-rays-fire-sale-of-top-players-sparked-after-failure-to-sell-team-source/?utm_campaign=iphone_nyp&utm_source=message_app \nMedia – https://sports.yahoo.com/rays-trade-deadline-looming-over-223500132.html \nMedia –  7/30/24: https://www.newsnationnow.com/us-news/sports/rays-pitcher-tragedy-daughter-help-others/ \nMedia – MSN\, 7/30/2024 – MSNRays pitcher uses tragedy with infant daughter to help othersPete Fairbanks and his wife\, Lydia\, lost their baby daughter after 19 weeks and six days gestation due to Turner Syndrome..1 day ago \nMedia – NewsNation\, 7/30/2024 – NewsNationRays pitcher uses tragedy with infant daughter to help othersFairbanks and his wife\, Lydia\, lost their infant daughter after 19 weeks and six days gestation due to Turner Syndrome..2 days ago \nMedia – Awful Announcing\, 7/29/2024 – Awful AnnouncingRays’ Pete Fairbanks delivers touching interview after emotional saveDespite his usual interview charm\, Pete Fairbanks’ emotions ran high as he honored his late daughter with a crucial strikeout for the Rays..3 days ago \nMedia – Sports Illustrated\, 7/28/2024 – Sports IllustratedRays Fans Shower Pete Fairbanks’s Charity With Donations After Emotional SavePete Fairbanks got the  \n\nFollow This Game in the MLB App: https://mlb.app.link/mlbcalendar \nFollow This Game on MLB.com: https://www.mlb.com/gameday/745115?partnerId=rokt-calendar \nPlay Along With This Game on MLB Rally – Download iOS App: https://mlbrally.app.link/playrally \nPersonalize Your Visit with the MLB Ballpark App – Download the App: https://bp.mlb.com/bpcalendar Share – https://rokt.ca/Q8wG3 \n\n  \n 
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome/
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/04/IMG_2685-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250621T190000
DTEND;TZID=America/New_York:20250621T220000
DTSTAMP:20260606T022516
CREATED:20250224T192044Z
LAST-MODIFIED:20250226T203743Z
UID:10002165-1750532400-1750543200@turnersyndromefoundation.org
SUMMARY:TS Community Day at BlueClaws Baseball\, Lakewood\, NJ
DESCRIPTION:Turner Syndrome Community Day and Irish Heritage Night!\n7:05 PM –  Hudson Valley Renegades at Jersey Shore Blueclaws ShoreTown Ballpark Lakewood\, NJ 08701\nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nTickets: $20 per person | TS Patients are Free | Special Buy Four Tickets Get Two Free!\nPrices are subject to change.\n \nAbout the Event\nThe Turner Syndrome Foundation is a community partner of the the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. The Jersey BlueClaws are located in Lakewood\, New Jersey\, and are named for their location on the Jersey Shore and blue crabs native to the area. The BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. The event will feature Irish Night Festivities. Kids are invited to run the bases after the game. \nTSF Community Day \nWe’re growing a community and there will be a TS Awareness announcement and TSF group table to share information. Stop by to check in and you’ll be entered to win a PRIZE! \nWear your TSF shirts and hats! If you need to order merch before the event\, go to the online SHOP. \nBring your smiles and be ready for a group photo! \nA representative from TSF will throw the first game ball! \nOur own Olivia Sullivan\, a rising star\, will sing\, “Take Me Out to the Ball Game”. \nWhere will you find us? At the TSF charity section 110 \nEnter 3rd Base entrance gate \nQuestions? Email Lori Kobular lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/ts-community-day-at-blueclaws-baseball-lakewood-nj/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250627T200000
DTEND;TZID=America/New_York:20250627T220000
DTSTAMP:20260606T022516
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000062-1751054400-1751061600@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2025-06-27/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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