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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20261012T200000
DTEND;TZID=America/New_York:20261012T210000
DTSTAMP:20241213T032532Z
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002081-1791835200-1791838800@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-10-12/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20261110T200000
DTEND;TZID=America/New_York:20261110T210000
DTSTAMP:20260812T175436Z
CREATED:20260812T175223Z
LAST-MODIFIED:20260812T175436Z
UID:10004343-1794340800-1794344400@turnersyndromefoundation.org
SUMMARY:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations
DESCRIPTION:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations\n  \n \nJoin us for an informative webinar introducing NASCARR and its potential to advance research and clinical trial readiness for Turner syndrome. \nWith a combined 40+ years of experience in medicine and clinical research\, including the care of individuals with Turner syndrome and other sex chromosome aneuploidy (SCA) conditions\, this session will explore how NASCARR can help strengthen the research landscape and create new opportunities for progress. \nAttendees will gain a clearer understanding of this new funding mechanism\, emerging research initiatives\, and what greater clinical trial readiness could mean for the Turner syndrome community. We’ll also discuss how healthcare professionals\, researchers\, individuals with Turner syndrome\, and families can become involved and help shape the future of research. \nWhether you are a clinician\, researcher\, patient\, family member\, or advocate\, this webinar offers an opportunity to learn how NASCARR is working to accelerate meaningful research and build the foundation for future clinical trials. \n\nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/166374/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/NASCARR.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
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DTSTART;TZID=America/New_York:20261231T000000
DTEND;TZID=America/New_York:20261231T233000
DTSTAMP:20260914T183751Z
CREATED:20260706T192946Z
LAST-MODIFIED:20260914T183751Z
UID:10003158-1798675200-1798759800@turnersyndromefoundation.org
SUMMARY:TSF Campus Club Launch
DESCRIPTION:TSF Campus Club Launch Focus Group. We are presenting the TSF Campus Club Ambassador Program\, a new initiative designed to engage college students in raising awareness\, building community\, and advancing the mission of the Turner Syndrome Foundation. \nDate: To Be Determined\n  \nWe are here to listen to you. As we prepare to launch this program\, we want your perspective on what works\, what could be improved\, and what would inspire students to get involved.\nAs you watch the presentation\, please consider: \n\nIs the opportunity clear and compelling?\nWhat would motivate a student to start or join a TSF Campus Club?\nAre the expectations and benefits clear?\nWhat questions or concerns might a student have?\nHow can we best reach students\, campuses\, and organizations?\n\nThere are no right or wrong answers. Your candid feedback will help us strengthen the program before we introduce it more broadly.\nThank you for helping us build a program that can engage the next generation of leaders in advancing Turner syndrome awareness\, advocacy\, and support. \nThe Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness\, advocacy\, and education efforts for Turner syndrome—an often underrecognized and underserved condition. \nDespite affecting approximately 1 in 2\,000 females\, Turner syndrome remains widely underdiagnosed\, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness and connecting communities to education and services. \nWe are seeking motivated campus leaders who are passionate about advocacy and interested in making a meaningful impact by starting a club at their college or university. \nTSF campus leaders serve as ambassadors who: \n\n\n\nRaise awareness through events and campaigns\nEducate peers and faculty about Turner syndrome\nAdvocate for early diagnosis and improved care\nEngage with campus and local communities\nSupport outreach and fundraising efforts\n\n\n\nIf you are interested in creating your club\, fill out this form \n \nRegistration Information \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/tsf-campus-club-launch/
LOCATION:Online
CATEGORIES:Awareness,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/TSF-Club-Banner.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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