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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260916T110000
DTEND;TZID=America/New_York:20260916T120000
DTSTAMP:20260728T184240Z
CREATED:20260727T183934Z
LAST-MODIFIED:20260728T184240Z
UID:10003167-1789556400-1789560000@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Wednesdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \n\nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\n\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours/2026-09-16/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260728T184559Z
CREATED:20260727T184227Z
LAST-MODIFIED:20260728T184559Z
UID:10003334-1789675200-1789678800@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Thursdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours-2/2026-09-17/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261008
DTEND;VALUE=DATE:20261009
DTSTAMP:20260826T215249Z
CREATED:20260826T185357Z
LAST-MODIFIED:20260826T215249Z
UID:10004346-1791417600-1791503999@turnersyndromefoundation.org
SUMMARY:DAFday 2026
DESCRIPTION:Make an Impact Through Your Donor-Advised Fund\nA Donor-Advised Fund (DAF) offers a simple\, flexible\, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. \nBy recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF\, you help advance our mission to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care for those affected by Turner syndrome. \nYour generosity helps TSF provide education\, patient and caregiver resources\, professional engagement\, advocacy\, and support—reaching individuals and families across the United States and around the world. \nRecommend a Grant Today\nClients of Fidelity Charitable\, Schwab Charitable\, Vanguard Charitable\, and other sponsoring organizations can recommend a grant to the Turner Syndrome Foundation using the DAF giving widget below. \n \nAlready have a Donor-Advised Fund? Put your charitable dollars to work for the Turner syndrome community today. \nGiving Directly Through Your DAF Sponsor\nIf you prefer to contact your financial institution or DAF sponsor directly\, please designate your charitable grant to: \n\nOrganization: Turner Syndrome Foundation\nTax ID (EIN): 27-1409942\nAddress: Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733\n\nAfter recommending your grant\, please notify us. DAF grants sometimes arrive without the donor’s complete contact information. Letting us know about your gift allows us to properly acknowledge your generosity and express our appreciation. \nWhy Your DAF Gift Matters\nTurner syndrome is a complex chromosomal condition affecting approximately 1 in every 2\,000 females born and requiring specialized healthcare throughout a lifetime. Yet awareness remains limited\, and many girls and women struggle to find knowledgeable providers\, appropriate resources\, and coordinated care. \nYour DAF can change that. \nYour charitable grant can help TSF: \n\nExpand free patient and caregiver education and support\nIncrease professional awareness of Turner syndrome\nConnect families with information and healthcare resources\nAdvance research and research participation\nStrengthen advocacy and public awareness\nBuild programs that improve care throughout every stage of life\n\nYour Charitable Dollars. Their Healthier Tomorrows.\nIf you have already established a DAF\, recommending a grant is one of the easiest ways to put those charitable funds into action. \nRecommend a grant to the Turner Syndrome Foundation today and help create a future where a missing chromosome never means missed opportunities. \nFor questions or assistance with a DAF gift\, please contact the Turner Syndrome Foundation at info@tsfusa.org | (800) 594-4585 x5.
URL:https://turnersyndromefoundation.org/event/dafday-2026/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/DAFday.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260804T180722Z
CREATED:20260521T182427Z
LAST-MODIFIED:20260804T180722Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \n  \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T200000
DTEND;TZID=America/New_York:20261110T210000
DTSTAMP:20260812T175436Z
CREATED:20260812T175223Z
LAST-MODIFIED:20260812T175436Z
UID:10004343-1794340800-1794344400@turnersyndromefoundation.org
SUMMARY:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations
DESCRIPTION:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations\n  \n \nJoin us for an informative webinar introducing NASCARR and its potential to advance research and clinical trial readiness for Turner syndrome. \nWith a combined 40+ years of experience in medicine and clinical research\, including the care of individuals with Turner syndrome and other sex chromosome aneuploidy (SCA) conditions\, this session will explore how NASCARR can help strengthen the research landscape and create new opportunities for progress. \nAttendees will gain a clearer understanding of this new funding mechanism\, emerging research initiatives\, and what greater clinical trial readiness could mean for the Turner syndrome community. We’ll also discuss how healthcare professionals\, researchers\, individuals with Turner syndrome\, and families can become involved and help shape the future of research. \nWhether you are a clinician\, researcher\, patient\, family member\, or advocate\, this webinar offers an opportunity to learn how NASCARR is working to accelerate meaningful research and build the foundation for future clinical trials. \n\nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/166374/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/NASCARR.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261231T000000
DTEND;TZID=America/New_York:20261231T233000
DTSTAMP:20260914T183751Z
CREATED:20260706T192946Z
LAST-MODIFIED:20260914T183751Z
UID:10003158-1798675200-1798759800@turnersyndromefoundation.org
SUMMARY:TSF Campus Club Launch
DESCRIPTION:TSF Campus Club Launch Focus Group. We are presenting the TSF Campus Club Ambassador Program\, a new initiative designed to engage college students in raising awareness\, building community\, and advancing the mission of the Turner Syndrome Foundation. \nDate: To Be Determined\n  \nWe are here to listen to you. As we prepare to launch this program\, we want your perspective on what works\, what could be improved\, and what would inspire students to get involved.\nAs you watch the presentation\, please consider: \n\nIs the opportunity clear and compelling?\nWhat would motivate a student to start or join a TSF Campus Club?\nAre the expectations and benefits clear?\nWhat questions or concerns might a student have?\nHow can we best reach students\, campuses\, and organizations?\n\nThere are no right or wrong answers. Your candid feedback will help us strengthen the program before we introduce it more broadly.\nThank you for helping us build a program that can engage the next generation of leaders in advancing Turner syndrome awareness\, advocacy\, and support. \nThe Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness\, advocacy\, and education efforts for Turner syndrome—an often underrecognized and underserved condition. \nDespite affecting approximately 1 in 2\,000 females\, Turner syndrome remains widely underdiagnosed\, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness and connecting communities to education and services. \nWe are seeking motivated campus leaders who are passionate about advocacy and interested in making a meaningful impact by starting a club at their college or university. \nTSF campus leaders serve as ambassadors who: \n\n\n\nRaise awareness through events and campaigns\nEducate peers and faculty about Turner syndrome\nAdvocate for early diagnosis and improved care\nEngage with campus and local communities\nSupport outreach and fundraising efforts\n\n\n\nIf you are interested in creating your club\, fill out this form \n \nRegistration Information \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/tsf-campus-club-launch/
LOCATION:Online
CATEGORIES:Awareness,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/TSF-Club-Banner.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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