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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260605T164354
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260718T120000
DTEND;TZID=America/New_York:20260718T170000
DTSTAMP:20260605T164354
CREATED:20260511T214134Z
LAST-MODIFIED:20260511T220634Z
UID:10002934-1784376000-1784394000@turnersyndromefoundation.org
SUMMARY:Summer Social at Liberty Lake\, Bordentown\, NJ
DESCRIPTION:Summer Fun with Friends!\nA Day of Connection\, Nature\, and Community\nJoin the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls\, women\, and families living with Turner syndrome. Set in a peaceful\, nature-based environment\, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. For many\, this is more than an event—it’s a turning point. \nEvent Details \nLocation: Liberty Lake Picnic\nBordentown\, New Jersey \nDate: Saturday\, July 18\, 2026\nTime: 12:00 PM – 5:00 PM (EST) \nRain or shine\, the event will take place as scheduled. \nParticipants will: \n\nBuild genuine\, lasting friendships\nStrengthen confidence and independence\nLearn practical life and health insights\nExperience the relief of being seen\, understood\, and supported\n\nAs many attendees describe\, it is life-changing. \nWhat to Expect \nThis one-day social retreat is designed to foster connection in a relaxed\, welcoming outdoor setting. \nHighlights include: \n\nCommunity-building activities and group engagement\nOutdoor recreation\, including swimming\, games\, and seating under a shaded pavilion\nShared meals and informal networking\nA supportive\, inclusive atmosphere for all ages\nThis is a community-focused experience—centered on connection\, conversation\, and simply enjoying time together.\n\nRegistration includes: \n\nFull access to Liberty Lake activities\nMeals and refreshments throughout the day\nEntry into a safe\, welcoming community experience\nCapacity is limited to preserve a high-quality\, connected experience.  Early registration is strongly encouraged.\nScholarships are limited and reserved for individuals with Turner syndrome.  Availability is based on need and supported by donor funding.\n \n\nJoin the Turner Syndrome Foundation for its Annual Community Day for fun in the sun at Liberty Lake Picnic in Bordentown\, NJ. Rain or shine\, the event will go on!! This event is for all ages and is a great way to meet new people! \nCommunity Social!\nThis will be a strictly social and friendly networking event! Individuals and families affected by TS are invited to spend the day together\, interacting and having fun. Talking among yourselves and as a group. There will be no professional medical presentations. We want to get to know you and you to get to know one another! \nThere will be fun!\nActivities include enjoying the great outdoors with games\, swimming\, mini golf\, good food\, new friends\, and more! There are two pools and dressing rooms\, so be sure to bring your towels & swimsuits!  Food and drinks are provided all day\, right under our pavilion\, with gluten-free options available upon request. Coolers are permitted (no glass bottles\, please). Surrounded by nature\, nestled under a covered pavilion reserved just for our group\, you will find ample tables\, shade from the sun\, and seating. \nRegistration:\nEvent registration includes entrance to the park for the Turner Syndrome Foundation’s Community Day and meals. Family and friends are welcome to join the TSF Community Day. You can sponsor the event to support TSF in providing a limited number of free event tickets for individuals with TS.  Please support our efforts by sponsoring this event so everyone can enjoy this day! \nOvernight Accommodations \nWhile this is a one-day retreat\, guests traveling from outside the area are welcome to extend their stay. A curated list of nearby hotels and accommodations in the Bordentown area will be provided upon registration to help you plan your visit with ease. \nBecome a Sponsor: Make This Experience Possible \nRegistrations are non-refundable and non-transferable. A limited number of scholarships are available for individuals in need.  If you have questions\, please call (732) 847-3385 for assistance.
URL:https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/
LOCATION:Liberty Lake Picnic\, 1195 Florence Columbus Rd\, Bordentown\, NJ\, 08505\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2023/01/Liberty-Lake-Picnic_TSF-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260605T164354
CREATED:20260420T174445Z
LAST-MODIFIED:20260420T174445Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260605T164354
CREATED:20260414T001830Z
LAST-MODIFIED:20260414T001830Z
UID:10002927-1786392000-1786395600@turnersyndromefoundation.org
SUMMARY:WE Learn Education Panel Discussion
DESCRIPTION:Save the date…. more to follow!
URL:https://turnersyndromefoundation.org/event/we-learn-education-panel-discussion/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2023/11/education-day-arrangement-table-with-copy-space-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260605T164354
CREATED:20260521T182427Z
LAST-MODIFIED:20260521T182604Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:WE- NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/we-nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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