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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T122228
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T122228
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260713T200000
DTEND;TZID=America/New_York:20260713T210000
DTSTAMP:20260605T122228
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002080-1783972800-1783976400@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-07-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260718T120000
DTEND;TZID=America/New_York:20260718T170000
DTSTAMP:20260605T122228
CREATED:20260511T214134Z
LAST-MODIFIED:20260511T220634Z
UID:10002934-1784376000-1784394000@turnersyndromefoundation.org
SUMMARY:Summer Social at Liberty Lake\, Bordentown\, NJ
DESCRIPTION:Summer Fun with Friends!\nA Day of Connection\, Nature\, and Community\nJoin the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls\, women\, and families living with Turner syndrome. Set in a peaceful\, nature-based environment\, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. For many\, this is more than an event—it’s a turning point. \nEvent Details \nLocation: Liberty Lake Picnic\nBordentown\, New Jersey \nDate: Saturday\, July 18\, 2026\nTime: 12:00 PM – 5:00 PM (EST) \nRain or shine\, the event will take place as scheduled. \nParticipants will: \n\nBuild genuine\, lasting friendships\nStrengthen confidence and independence\nLearn practical life and health insights\nExperience the relief of being seen\, understood\, and supported\n\nAs many attendees describe\, it is life-changing. \nWhat to Expect \nThis one-day social retreat is designed to foster connection in a relaxed\, welcoming outdoor setting. \nHighlights include: \n\nCommunity-building activities and group engagement\nOutdoor recreation\, including swimming\, games\, and seating under a shaded pavilion\nShared meals and informal networking\nA supportive\, inclusive atmosphere for all ages\nThis is a community-focused experience—centered on connection\, conversation\, and simply enjoying time together.\n\nRegistration includes: \n\nFull access to Liberty Lake activities\nMeals and refreshments throughout the day\nEntry into a safe\, welcoming community experience\nCapacity is limited to preserve a high-quality\, connected experience.  Early registration is strongly encouraged.\nScholarships are limited and reserved for individuals with Turner syndrome.  Availability is based on need and supported by donor funding.\n \n\nJoin the Turner Syndrome Foundation for its Annual Community Day for fun in the sun at Liberty Lake Picnic in Bordentown\, NJ. Rain or shine\, the event will go on!! This event is for all ages and is a great way to meet new people! \nCommunity Social!\nThis will be a strictly social and friendly networking event! Individuals and families affected by TS are invited to spend the day together\, interacting and having fun. Talking among yourselves and as a group. There will be no professional medical presentations. We want to get to know you and you to get to know one another! \nThere will be fun!\nActivities include enjoying the great outdoors with games\, swimming\, mini golf\, good food\, new friends\, and more! There are two pools and dressing rooms\, so be sure to bring your towels & swimsuits!  Food and drinks are provided all day\, right under our pavilion\, with gluten-free options available upon request. Coolers are permitted (no glass bottles\, please). Surrounded by nature\, nestled under a covered pavilion reserved just for our group\, you will find ample tables\, shade from the sun\, and seating. \nRegistration:\nEvent registration includes entrance to the park for the Turner Syndrome Foundation’s Community Day and meals. Family and friends are welcome to join the TSF Community Day. You can sponsor the event to support TSF in providing a limited number of free event tickets for individuals with TS.  Please support our efforts by sponsoring this event so everyone can enjoy this day! \nOvernight Accommodations \nWhile this is a one-day retreat\, guests traveling from outside the area are welcome to extend their stay. A curated list of nearby hotels and accommodations in the Bordentown area will be provided upon registration to help you plan your visit with ease. \nBecome a Sponsor: Make This Experience Possible \nRegistrations are non-refundable and non-transferable. A limited number of scholarships are available for individuals in need.  If you have questions\, please call (732) 847-3385 for assistance.
URL:https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/
LOCATION:Liberty Lake Picnic\, 1195 Florence Columbus Rd\, Bordentown\, NJ\, 08505\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2023/01/Liberty-Lake-Picnic_TSF-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260605T122228
CREATED:20260420T174445Z
LAST-MODIFIED:20260420T174445Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260731T200000
DTEND;TZID=America/New_York:20260731T220000
DTSTAMP:20260605T122228
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000075-1785528000-1785535200@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-07-31/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260803T200000
DTEND;TZID=America/New_York:20260803T210000
DTSTAMP:20260605T122228
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002113-1785787200-1785790800@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-08-03/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260605T122228
CREATED:20260414T001830Z
LAST-MODIFIED:20260414T001830Z
UID:10002927-1786392000-1786395600@turnersyndromefoundation.org
SUMMARY:WE Learn Education Panel Discussion
DESCRIPTION:Save the date…. more to follow!
URL:https://turnersyndromefoundation.org/event/we-learn-education-panel-discussion/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2023/11/education-day-arrangement-table-with-copy-space-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260605T122228
CREATED:20260521T182427Z
LAST-MODIFIED:20260521T182604Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:WE- NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/we-nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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