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X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260109T080000
DTEND;TZID=America/New_York:20260301T170000
DTSTAMP:20260605T162136
CREATED:20260109T230752Z
LAST-MODIFIED:20260109T231111Z
UID:10002872-1767945600-1772384400@turnersyndromefoundation.org
SUMMARY:Join the Turner Syndrome Awareness Crew
DESCRIPTION:Sign Up Form\nSmall actions = Big ripple effects = Meaningful awareness all year long!\nRaising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. \nThat’s why we created the Turner Syndrome Awareness Crew — a low-commitment\, high-impact way to help spread awareness in your community\, online\, and beyond all year round. \nWhen many people take simple actions together\, awareness grows farther than any one person could reach alone. \nWhat Is the Awareness Crew?\nThe Turner Syndrome Awareness Crew is a group of supporters who take small\, meaningful actions to help educate others and spark conversations about Turner syndrome. \nThere’s no minimum time requirement\, no pressure to do everything\, and no “right” way to raise awareness. \nWhat Kind of Actions Are We Talking About?\nThink simple and flexible\, yet high-impact: \n\n? Sharing or creating a social media post\n? Dropping off a flyer at a doctor’s office\, school\, or workplace\n?? Signing or sharing a petition\n? Talking with friends\, family\, or coworkers about Turner syndrome\n? Participating in Awareness Month activities\n\nEach action might only take a few minutes\, but when many of us come together to take action\, they create a powerful ripple effect. \n\n\nRaise Awareness and Bring Others Along\nEvery Awareness Crew member will receive a personal fundraising page\, making it easy to invite friends\, family\, and your community to support Turner syndrome awareness alongside you. \nYou don’t need to fundraise actively if you don’t want to. But if you do share your page\, you’re helping amplify awareness and support year-round. \nWhy It Matters\nAwareness leads to: \n\nEarlier diagnoses\nBetter understanding in doctors’ offices\, schools\, and workplaces\nStronger advocacy\nA more informed and compassionate community\n\nWhen many people take small steps\, the impact grows! \nReady to Be Part of the Crew?\nIf you’ve ever wanted to help raise awareness\, but weren’t sure how\, this is your invitation. \n? Join the Turner Syndrome Awareness Crew\n? Take simple actions when it works for you\n? Be part of something bigger than yourself \n? Shop for TSAM New Merch \nSign up today and start making an impact\, one small action at a time! \n\n\n\n\n\n 
URL:https://turnersyndromefoundation.org/event/%f0%9f%8c%9f-join-the-turner-syndrome-awareness-crew-%f0%9f%8c%9f/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/TSAM-Crew.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260605T162136
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T200000
DTEND;TZID=America/New_York:20260202T210000
DTSTAMP:20260605T162136
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002107-1770062400-1770066000@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-02-02/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260605T162136
CREATED:20260115T181550Z
LAST-MODIFIED:20260115T182140Z
UID:10002879-1770235200-1770238800@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Getting to Know You
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/getting-to-know-you/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-4.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T200000
DTEND;TZID=America/New_York:20260211T210000
DTSTAMP:20260605T162136
CREATED:20260115T182409Z
LAST-MODIFIED:20260115T182409Z
UID:10002881-1770840000-1770843600@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Education
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-education/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-11.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T210000
DTSTAMP:20260605T162136
CREATED:20260115T182702Z
LAST-MODIFIED:20260115T182702Z
UID:10002882-1771444800-1771448400@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Careers
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-careers/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-18.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T200000
DTEND;TZID=America/New_York:20260224T210000
DTSTAMP:20260605T162136
CREATED:20260209T213127Z
LAST-MODIFIED:20260304T211330Z
UID:10002900-1771963200-1771966800@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Awareness Month Patient & Parent Panel
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/turner-syndrome-awareness-month-patient-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/TSAM-Panel-2026.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260225T200000
DTEND;TZID=America/New_York:20260225T210000
DTSTAMP:20260605T162136
CREATED:20260115T182914Z
LAST-MODIFIED:20260115T182914Z
UID:10002883-1772049600-1772053200@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Raising Awareness
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-raising-awareness/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-25.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260227T200000
DTEND;TZID=America/New_York:20260227T220000
DTSTAMP:20260605T162136
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000070-1772222400-1772229600@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-02-27/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T090000
DTEND;TZID=America/New_York:20260315T235900
DTSTAMP:20260605T162136
CREATED:20260126T213436Z
LAST-MODIFIED:20260303T191030Z
UID:10002885-1772269200-1773619140@turnersyndromefoundation.org
SUMMARY:Card Auction 2026
DESCRIPTION:THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation\nChoose from a beautiful array of custom-made designer greeting cards. \nBid Now Until 3/15! \nDonate \nTSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces for all occasions and donate them to benefit TSF. Greeting card connoisseurs and art enthusiasts will bid on their favorite cards. After the auction ends\, TSF will send the cards to the highest bidders. Card donations begin at $5.00. \nThe auction begins on February 28\, 2026\, at 9 AM EDT\, which is Rare Disease Day\, and ends on March 15\, 2026\, at midnight! \nPlace Your Bid Here With @MULCHLADY6 \nHow to BID on a card:\nAll Bids start at $5.00 with increasing bids of $1.00 \nShipping is free in the US unless you want priority shipping with tracking and that will be determined by the Post Office. International Shipping will also be determined by the post office. \n1) Please place your bid in US dollar amounts in the comment section under the photo of the card you want\n2) Please be sure to tag the highest bidder with your bid. Example #mulchlady6$10\n3) Once the auction is over and the winners are figured out the highest bidder will be contacted with a link of where to send their donation.\n4) Once proof of the donation is confirmed the card will be mailed out.\n5) If we do not hear back from the highest bidder within 24 hours\, we will move to the next highest bidder on that card. \n\n\n\nThe Turner Syndrome Awareness Card Auction is a collaborative Card Auction benefiting the Turner Syndrome Foundation\, which operates solely on donations. TS is a complex condition affecting 1 in every 2\,000 women and girls. Join Lori in supporting this cause! The very talented card designers who have donated their amazing cards are from all over the world and work on Design Teams for various crafting companies that sell dies\, stamps\, and other cardmaking supplies. They are the most generous and caring people! They have poured lots of love into each of their creations! \nAll sales are final. No refunds or warranties are promised or provided. This fundraiser supports the Turner Syndrome Foundation\, a 501(c)3 charitable organization. \nDesigners who wish to donate their cards may contact Lori at lkobular@tsfusa.org.\nMail checks payable to Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733 \nThank you all so much for your support!  
URL:https://turnersyndromefoundation.org/event/card-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Card-Auction-Graphic-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260304T200000
DTEND;TZID=America/New_York:20260304T210000
DTSTAMP:20260605T162136
CREATED:20260209T231722Z
LAST-MODIFIED:20260209T232221Z
UID:10002902-1772654400-1772658000@turnersyndromefoundation.org
SUMMARY:Webinar: Hearing Loss Rehabilitation Counseling
DESCRIPTION:This session will review different types of hearing loss and causes of hearing loss.  It will also provide possible services and resources available.  Lastly\, it will identify reasonable accommodations that are needed in the home\, school\, or workplace.\n \nJoin an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused on understanding hearing loss and supporting individuals who experience it across the lifespan. This webinar will review the different types and causes of hearing loss\, explore available services and resources\, and identify reasonable accommodations that can be implemented in the home\, school\, and workplace. \nWith more than five decades of professional experience\, the presenter brings a deep and personal commitment to this field. After learning American Sign Language in 1972\, they worked for many years as an interpreter for the Deaf\, later serving as a Rehabilitation Counselor for the Deaf and State Coordinator for the Deaf in North Carolina. Currently\, they serve as Adjunct Faculty at Winston-Salem State University\, teaching courses such as Counseling Deaf People\, Psychosocial Aspects of Deafness\, and Vocational Evaluation of Deaf People. Their academic background includes a PhD in Rehabilitation Counseling & Rehabilitation Counselor Education from NC A&T State University\, a Master’s degree in Rehabilitation Counseling for the Deaf from Gallaudet University\, and a dual BA in Early Childhood Education and Deaf Education from Lenoir-Rhyne College. They are also a Certified Rehabilitation Counselor and Licensed Clinical Mental Health Counselor. \nWho Should Attend & What You’ll Gain \nParticipants will: \nLearn how to ethically and legally work with individuals who have hearing loss \nGain a clearer understanding of the symptoms and causes of hearing loss \nLeave better prepared to provide effective\, inclusive services \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences hearing loss. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-hearing-loss-rehab-counsel/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/LTanya-Therese-Fish-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T162136
CREATED:20260217T210542Z
LAST-MODIFIED:20260227T105821Z
UID:10002903-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:Webinar: Legislative Advocacy Information Session
DESCRIPTION:Join the Legislative Advocacy Information Session\n  \nThank you for being part of the Turner Syndrome community. As our efforts continue to grow\, we are expanding opportunities for community members to get involved in meaningful\, mission-driven advocacy. \nWhether you are an experienced advocate or just beginning to explore how you can make a difference\, we invite you to attend this information session to learn more about the work of the Turner Syndrome Foundation’s Legislative Advocacy Committee—and how you can contribute in ways that align with your skills\, interests\, and availability. \nYour voice\, perspective\, and commitment matter. We welcome you to join us in advancing change together.\n \nWho Should Attend \nIndividuals with lived experience of Turner syndrome \nParents\, caregivers\, and family members \nHealthcare\, education\, or social service professionals \nStudents and emerging advocates \nCommunity members interested in policy and social impact \nAnyone curious about how legislative advocacy works \nNo prior advocacy experience is required. \nParticipants will: \nLearn how to ethically and effectively advance Turner syndrome awareness within communities and through public policy \nGain a clearer understanding of how legislative advocacy works at local\, state\, and national levels \nExplore practical and responsible methods for engagement \nLeave better prepared with actionable strategies to support advocacy efforts \nWhy This Matters \nAdvocacy affects real lives. Nearly everyone has a family member\, friend\, colleague\, or community connection touched by Turner syndrome. Understanding how policies are shaped—and how you can contribute—helps create more informed\, inclusive\, and supportive communities. \nWhether you work in education\, healthcare\, counseling\, nonprofit leadership\, or simply want to be a more engaged citizen\, this session provides practical knowledge you can apply in meaningful ways. \nSign The Petition Here! \nEvent Link:\nCheck the email you provide at registration to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-legislative-advocacy-information-session/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Legislative-Advocacy-Information-Session.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T162136
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T162136
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260421
DTSTAMP:20260605T162136
CREATED:20260401T233353Z
LAST-MODIFIED:20260401T233353Z
UID:10002921-1775001600-1776729599@turnersyndromefoundation.org
SUMMARY:Pampered Chef Party benefit for TSF
DESCRIPTION:A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20.  This is the third year Marianne is supporting the cause. \nOrder https://table.pamperedchef.com/party/2852257aby \n  \nIf you have a small business and would like to support the cause\, submit an event form to market your event. 100% of all proceeds must support TSF. Thank you for your incredible support!
URL:https://turnersyndromefoundation.org/event/pampered-chef-party-benefit-for-tsf/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Fundraise.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T173000
DTEND;TZID=America/New_York:20260401T183000
DTSTAMP:20260605T162136
CREATED:20260318T171659Z
LAST-MODIFIED:20260318T171659Z
UID:10002919-1775064600-1775068200@turnersyndromefoundation.org
SUMMARY:TSF Butterfly Bake Sale
DESCRIPTION:Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. \n\nWestwood Village Mall – 2600 SW Barton Street\, Seattle\, WA\nApril 1st 5:30pm\n\n“I have been following TSF for about 3 years now and because my daughter was diagnosed with TS I didn’t know much about TS until I found TSF and I appreciate everything that TSF does” – Kaitlin \n  \n 
URL:https://turnersyndromefoundation.org/event/tsf-butterfly-bake-sale/
LOCATION:Westwood Village Mall\, 2600 SW Barton Street\, Seattle\, WA\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/Bake-Sale-Flyer-Kaitlin-Wagner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T200000
DTEND;TZID=America/New_York:20260401T210000
DTSTAMP:20260605T162136
CREATED:20260209T223522Z
LAST-MODIFIED:20260209T224133Z
UID:10002901-1775073600-1775077200@turnersyndromefoundation.org
SUMMARY:Webinar: Sharing Turner Syndrome Through Film - The Story Behind Like A Butterfly
DESCRIPTION:Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly\, her deeply personal and thought-provoking film. In this WE Learn webinar\, Brooke shares the inspiration behind the story\, why Turner Syndrome stories must be told\, and how film can be a powerful tool for awareness\, advocacy\, and connection. Discover how storytelling through media can amplify voices\, foster empathy\, and spark meaningful change.\n \nAbout the Presenter\nBrooke Gonsalves is an independent filmmaker and storyteller with experience across film\, digital media\, and podcasting. She produced and directed Like A Butterfly\, shepherding the project from initial concept through post-production. Brooke also hosts podcasts and runs a YouTube channel dedicated to highlighting Turner Syndrome stories—celebrating resilience\, raising awareness\, and uplifting the community through personal narratives and interviews. Her work blends creative storytelling with advocacy\, offering both emotional impact and meaningful insight. \nWhat You’ll Gain From Attending\nBehind-the-Scenes Insight\nLearn how Like A Butterfly was brought to life—from idea development to post-production decisions. \nAdvocacy Through Storytelling\nSee how film and digital media can raise awareness and amplify the voices of underrepresented people\, especially within the Turner Syndrome community. \nPersonal Inspiration\nHear Brooke’s journey as a filmmaker and advocate\, including challenges faced\, lessons learned\, and milestones achieved. \nLive Q&A Opportunity\nAsk questions directly about filmmaking\, Turner Syndrome advocacy\, or creating content with social impact. \nWhy This Webinar Matters Beyond Turner Syndrome\nUniversal Storytelling Skills\nLearn how to craft compelling stories\, build emotional resonance\, and engage audiences—valuable for filmmakers\, writers\, educators\, marketers\, and communicators of all kinds. \nInspiration & Resilience\nBrooke’s experience highlights creativity\, perseverance\, and problem-solving—lessons applicable to both personal and professional growth. \nSocial Impact Through Media\nExplore how storytelling can foster empathy\, raise awareness\, and spark meaningful conversations across diverse communities. \nPractical\, Engaging Discussion\nThe interactive Q&A makes this session relevant for professionals\, students\, creatives\, and anyone interested in storytelling with purpose. \nAbout the Presenter: \nBrooke Gonsalves is a filmmaker\, producer\, and Turner Syndrome advocate. She is the creator of Like a Butterfly\, a documentary film that explores identity\, resilience\, and lived experience through the lens of Turner Syndrome. \nIn addition to her work in film\, Brooke hosts podcasts focused on storytelling\, advocacy\, and the creative process\, and is committed to creating spaces where stories are seen and heard. Through her work\, she bridges personal experience and cinematic storytelling to foster understanding\, connection\, and conversation. \nShe holds a Bachelor’s degree in Psychology with a concentration in counseling and a Master’s degree in Applied Behavior Analysis. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-sharing-turner-syndrome-through-film-the-story-behind-like-a-butterfly/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Gonsalves.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T162136
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260605T162136
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002079-1776110400-1776114000@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-04-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260605T162136
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260605T162136
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260605T162136
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260605T162136
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260605T162136
CREATED:20260409T171230Z
LAST-MODIFIED:20260409T171327Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260605T162136
CREATED:20260518T201711Z
LAST-MODIFIED:20260518T201711Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260605T162136
CREATED:20260601T200733Z
LAST-MODIFIED:20260601T201454Z
UID:10002938-1780272000-1782863999@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Bringing Back Snail Mail\n \n\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. \nWith just a $5 donation\, you will have the opportunity to send a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \nView more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20260605T162136
CREATED:20260506T175708Z
LAST-MODIFIED:20260515T163842Z
UID:10002933-1780704000-1780790399@turnersyndromefoundation.org
SUMMARY:MLB Miami Marlins vs Tampa Rays Baseball Game 'Strikeouts for Ellis'
DESCRIPTION:Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation\n  \nTS Community Day on June 6\, 2026 \nMiami Marlins vs. Tampa Rays game in Miami\, FL \nGrab Bag Fundraiser\n\nOrder Tickets\nOrder Strikeouts for Ellis Merchandise \n  \nYour support brings hope to many. Thank you for your donation. \n \n \n \n \n \nORDER STRIKEOUTS FOR ELLIS MERCHANDISE \n \n  \n \nAfter an abnormal ultrasound and weeks of waiting for test results\, we were told that our daughter\, Ellis\, likely had Turner syndrome at 9 weeks gestation. Ellis was with us for a total of 19 weeks and six days gestation. Those weeks were extremely difficult. The unknown of the diagnosis\, difficulty receiving care\, and the odds that were repeated to us every appointment made it difficult to see the light. Despite the darkness at times\, we cherish those weeks because Ellis met milestones we were told she wouldn’t\, and she taught us the importance of life and being present. Ellis was a fighter. Throughout this journey of diagnosis and loss\, Peter and I have learned that there is a gap in the system. Reaching out to the Turner Syndrome Foundation taught us that there are many others experiencing the same battles. We are motivated to help the Turner Syndrome Foundation bridge the gap between diagnosis and care. This season\, we vow to honor Ellis and other families who have experienced loss. We vow to Rays Up for those who beat the odds and raise awareness for Turner Syndrome and the resources that are out there. \n \nThis season\, we will participate in two initiatives to raise awareness and support for the Turner Syndrome community: Strikeouts for Ellis and the Rays Up for Turner Syndrome online auction. We appreciate all the support in advance. Peter and I know we are not alone\, and we want others to know they are not alone\, either. \nWe can make a difference!\nWith Love\, Peter and Lydia Fairbanks \n \nStrikeouts for Ellis\nAll season-long\, when you hear “With that strikeout\, Peter Fairbanks and his wife\, Lydia\, will donate $200 to the Turner Syndrome Foundation. Follow Pete and the Major League Baseball team\, the Miami Marlins\, for more information and know that TSF is being supported in honor of Ellis. \nMLB Stats: https://www.mlb.com/player/pete-fairbanks-664126 \nMedia: https://www.espn.com/mlb/story/_/id/48406953/pete-fairbanks-gets-start-leaves-marlins-birth-child \nMedia:  https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia: https://x.com/Ry_Bass/status/1818298972886159671
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/
LOCATION:Tampa Bay Rays\, Tropicana Field\, St. Petersburg\, FL\, 33705\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/IMG_1273-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260605T162136
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260718T120000
DTEND;TZID=America/New_York:20260718T170000
DTSTAMP:20260605T162136
CREATED:20260511T214134Z
LAST-MODIFIED:20260511T220634Z
UID:10002934-1784376000-1784394000@turnersyndromefoundation.org
SUMMARY:Summer Social at Liberty Lake\, Bordentown\, NJ
DESCRIPTION:Summer Fun with Friends!\nA Day of Connection\, Nature\, and Community\nJoin the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls\, women\, and families living with Turner syndrome. Set in a peaceful\, nature-based environment\, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. For many\, this is more than an event—it’s a turning point. \nEvent Details \nLocation: Liberty Lake Picnic\nBordentown\, New Jersey \nDate: Saturday\, July 18\, 2026\nTime: 12:00 PM – 5:00 PM (EST) \nRain or shine\, the event will take place as scheduled. \nParticipants will: \n\nBuild genuine\, lasting friendships\nStrengthen confidence and independence\nLearn practical life and health insights\nExperience the relief of being seen\, understood\, and supported\n\nAs many attendees describe\, it is life-changing. \nWhat to Expect \nThis one-day social retreat is designed to foster connection in a relaxed\, welcoming outdoor setting. \nHighlights include: \n\nCommunity-building activities and group engagement\nOutdoor recreation\, including swimming\, games\, and seating under a shaded pavilion\nShared meals and informal networking\nA supportive\, inclusive atmosphere for all ages\nThis is a community-focused experience—centered on connection\, conversation\, and simply enjoying time together.\n\nRegistration includes: \n\nFull access to Liberty Lake activities\nMeals and refreshments throughout the day\nEntry into a safe\, welcoming community experience\nCapacity is limited to preserve a high-quality\, connected experience.  Early registration is strongly encouraged.\nScholarships are limited and reserved for individuals with Turner syndrome.  Availability is based on need and supported by donor funding.\n \n\nJoin the Turner Syndrome Foundation for its Annual Community Day for fun in the sun at Liberty Lake Picnic in Bordentown\, NJ. Rain or shine\, the event will go on!! This event is for all ages and is a great way to meet new people! \nCommunity Social!\nThis will be a strictly social and friendly networking event! Individuals and families affected by TS are invited to spend the day together\, interacting and having fun. Talking among yourselves and as a group. There will be no professional medical presentations. We want to get to know you and you to get to know one another! \nThere will be fun!\nActivities include enjoying the great outdoors with games\, swimming\, mini golf\, good food\, new friends\, and more! There are two pools and dressing rooms\, so be sure to bring your towels & swimsuits!  Food and drinks are provided all day\, right under our pavilion\, with gluten-free options available upon request. Coolers are permitted (no glass bottles\, please). Surrounded by nature\, nestled under a covered pavilion reserved just for our group\, you will find ample tables\, shade from the sun\, and seating. \nRegistration:\nEvent registration includes entrance to the park for the Turner Syndrome Foundation’s Community Day and meals. Family and friends are welcome to join the TSF Community Day. You can sponsor the event to support TSF in providing a limited number of free event tickets for individuals with TS.  Please support our efforts by sponsoring this event so everyone can enjoy this day! \nOvernight Accommodations \nWhile this is a one-day retreat\, guests traveling from outside the area are welcome to extend their stay. A curated list of nearby hotels and accommodations in the Bordentown area will be provided upon registration to help you plan your visit with ease. \nBecome a Sponsor: Make This Experience Possible \nRegistrations are non-refundable and non-transferable. A limited number of scholarships are available for individuals in need.  If you have questions\, please call (732) 847-3385 for assistance.
URL:https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/
LOCATION:Liberty Lake Picnic\, 1195 Florence Columbus Rd\, Bordentown\, NJ\, 08505\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2023/01/Liberty-Lake-Picnic_TSF-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260605T162136
CREATED:20260420T174445Z
LAST-MODIFIED:20260420T174445Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR