Turner Syndrome Foundation

Spring Auction 2026
2026-05-01 - 2026-05-14 | Online
Donate an item to be featured in the Spring Auction!
Only tangible items are accepted, and every approved donation must align with TSF’s mission.
Sign up to solicit an auction item today:
https://turnersyndromefoundation.org/volunteer_take_action/in-kind-donations/
You’ve been waiting to get involved.
This is a simple, powerful way to start—and your impact will be felt far beyond the auction.
Let’s make this Spring Auction unforgettable—together.

If you have any questions about this auction, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385.

Education Working Group
2026-05-04 20:00 - 21:00 (America/New_York) | Online
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals.

Understanding Lymphedema Webinar
2026-05-07 20:00 - 21:00 | Online
Come back soon for further details!
We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community.

Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include:
How lymphedema may present in infant patients with Turner syndrome
Causes of lymphedema
Short-term and long-term treatment approaches
Whether lymphedema can progress or resolve over time
Long-term impact of the condition
Health-related and insurance considerations
Strategies to manage and cope with lymphedema
Any relevant medical advancements or research developments

Star Sisters Monthly Meet Up Event
2026-05-29 20:00 - 22:00 | Online
Star Sisters Monthly Meet-Up Event
Be a Star Sister – Meet Others – Get Involved!
Sign Up Now
A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today and shine!
Sign up once to receive the virtual meet-up link, invitation to the private group, and meeting reminders, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking, writing, or conducting group discussions are encouraged to register and share their interests.
If you have any questions, email Nicole at ntopp@tsfusa.org
Policy and disclaimer- To be a Star Sister, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy, kindness, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution, as TSF is not responsible for any discussions or actions of others at any time, including those of group leaders or presenters. Thank you.

Jersey Shore BlueClaws X TSF
2026-06-20 19:00 - 22:00 | Jersey Shore BlueClaws, 2 Stadium Way, Lakewood, NJ, 08701, United States
The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive at ShoreTown Ballpark in Lakewood, NJ.

The BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome, join us.
Here are the details for the game on Saturday, June 20, 2026:

Opponent: Greenville Drive (Boston Red Sox affiliate)
Location: ShoreTown Ballpark, Lakewood, New Jersey
Time: 7:05 PM EDT
Special Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!

25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date!
Want to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org

TS Women in Medicine
2026-07-13 20:00 - 21:00
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today.
This working group will learn about:

The mission of the Foundation
Outreach Initiatives
Current Objectives
What TS women in medicine can do to improve care

In this discussion, you will:

Introduce & meet Turner Syndrome Women In Medicine
Share experiences
Exchange ideas
Contribute to next steps for professional awareness

WE Learn is a Turner Syndrome Foundation educational learning activity.
Every TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group.

SIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP
