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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260724T184506Z
CREATED:20260409T200310Z
LAST-MODIFIED:20260724T184506Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260421
DTSTAMP:20260401T233353Z
CREATED:20260401T233353Z
LAST-MODIFIED:20260401T233353Z
UID:10002921-1775001600-1776729599@turnersyndromefoundation.org
SUMMARY:Pampered Chef Party benefit for TSF
DESCRIPTION:A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20.  This is the third year Marianne is supporting the cause. \nOrder https://table.pamperedchef.com/party/2852257aby \n  \nIf you have a small business and would like to support the cause\, submit an event form to market your event. 100% of all proceeds must support TSF. Thank you for your incredible support!
URL:https://turnersyndromefoundation.org/event/pampered-chef-party-benefit-for-tsf/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Fundraise.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260421T213102Z
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T200000
DTEND;TZID=America/New_York:20260424T220000
DTSTAMP:20250113T215344Z
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000072-1777060800-1777068000@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-04-24/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260430T203225Z
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260409T193146Z
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T200000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20250311T171335Z
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002110-1777924800-1777928400@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-05-04/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260420T154043Z
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260429T194156Z
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260702T194641Z
CREATED:20260409T171230Z
LAST-MODIFIED:20260702T194641Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260702T194627Z
CREATED:20260518T201711Z
LAST-MODIFIED:20260702T194627Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T000000
DTEND;TZID=America/New_York:20270731T235900
DTSTAMP:20260720T213303Z
CREATED:20260601T200733Z
LAST-MODIFIED:20260720T213303Z
UID:10002938-1780272000-1817078340@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Send a Card and Spread Kindness\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. \nSend a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. Make your donation and we will handle the rest! \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \n \n  \nPurchase more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20260515T163842Z
CREATED:20260506T175708Z
LAST-MODIFIED:20260515T163842Z
UID:10002933-1780704000-1780790399@turnersyndromefoundation.org
SUMMARY:MLB Miami Marlins vs Tampa Rays Baseball Game 'Strikeouts for Ellis'
DESCRIPTION:Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation\n  \nTS Community Day on June 6\, 2026 \nMiami Marlins vs. Tampa Rays game in Miami\, FL \nGrab Bag Fundraiser\n\nOrder Tickets\nOrder Strikeouts for Ellis Merchandise \n  \nYour support brings hope to many. Thank you for your donation. \n \n \n \n \n \nORDER STRIKEOUTS FOR ELLIS MERCHANDISE \n \n  \n \nAfter an abnormal ultrasound and weeks of waiting for test results\, we were told that our daughter\, Ellis\, likely had Turner syndrome at 9 weeks gestation. Ellis was with us for a total of 19 weeks and six days gestation. Those weeks were extremely difficult. The unknown of the diagnosis\, difficulty receiving care\, and the odds that were repeated to us every appointment made it difficult to see the light. Despite the darkness at times\, we cherish those weeks because Ellis met milestones we were told she wouldn’t\, and she taught us the importance of life and being present. Ellis was a fighter. Throughout this journey of diagnosis and loss\, Peter and I have learned that there is a gap in the system. Reaching out to the Turner Syndrome Foundation taught us that there are many others experiencing the same battles. We are motivated to help the Turner Syndrome Foundation bridge the gap between diagnosis and care. This season\, we vow to honor Ellis and other families who have experienced loss. We vow to Rays Up for those who beat the odds and raise awareness for Turner Syndrome and the resources that are out there. \n \nThis season\, we will participate in two initiatives to raise awareness and support for the Turner Syndrome community: Strikeouts for Ellis and the Rays Up for Turner Syndrome online auction. We appreciate all the support in advance. Peter and I know we are not alone\, and we want others to know they are not alone\, either. \nWe can make a difference!\nWith Love\, Peter and Lydia Fairbanks \n \nStrikeouts for Ellis\nAll season-long\, when you hear “With that strikeout\, Peter Fairbanks and his wife\, Lydia\, will donate $200 to the Turner Syndrome Foundation. Follow Pete and the Major League Baseball team\, the Miami Marlins\, for more information and know that TSF is being supported in honor of Ellis. \nMLB Stats: https://www.mlb.com/player/pete-fairbanks-664126 \nMedia: https://www.espn.com/mlb/story/_/id/48406953/pete-fairbanks-gets-start-leaves-marlins-birth-child \nMedia:  https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia: https://x.com/Ry_Bass/status/1818298972886159671
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/
LOCATION:Tampa Bay Rays\, Tropicana Field\, St. Petersburg\, FL\, 33705\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/IMG_1273-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260506T182506Z
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20261001
DTSTAMP:20260724T184817Z
CREATED:20260701T185442Z
LAST-MODIFIED:20260724T184817Z
UID:10003159-1782864000-1790812799@turnersyndromefoundation.org
SUMMARY:Film & Advocacy Opportunity: A Family Planning Survey
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/family-planning-survey/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Family-Planning-Survey-scaled.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260702
DTEND;VALUE=DATE:20270101
DTSTAMP:20260724T184846Z
CREATED:20260702T184206Z
LAST-MODIFIED:20260724T184846Z
UID:10003161-1782950400-1798761599@turnersyndromefoundation.org
SUMMARY:Research Opportunity: Positive Prenatal Screening for Turner Syndrome
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/research-opportunity-positive-prenatal-screening-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Research-Positive-Prenatal-screening-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260702T200000
DTEND;TZID=America/New_York:20260702T210000
DTSTAMP:20260702T194204Z
CREATED:20260618T174304Z
LAST-MODIFIED:20260702T194204Z
UID:10002940-1783022400-1783026000@turnersyndromefoundation.org
SUMMARY:Legislative Advocacy Meeting
DESCRIPTION:Legislative Advocacy Working Group\nThe Turner Syndrome Foundation’s Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy\, education\, and community engagement\, members help ensure that the voices of patients\, families\, caregivers\, and healthcare professionals are heard by local\, state\, and federal policymakers. \nWhat Does the Legislative Advocacy Working Group Do?\nThe Working Group monitors legislation and public policy issues that impact healthcare access\, rare disease awareness\, research funding\, education\, and patient support services. Members work together to: \n\nEducate elected officials about Turner syndrome and its lifelong health implications.\nAdvocate for policies that improve access to healthcare\, diagnosis\, treatment\, and support services.\nParticipate in letter-writing campaigns\, phone calls\, and meetings with legislators and their staff.\nRaise awareness of issues affecting the Turner syndrome community at the local\, state\, and national levels.\nCollaborate with other rare disease and patient advocacy organizations on shared policy priorities.\nShare updates on legislative developments and opportunities for community action.\n\nHow Can I Join?\nAnyone passionate about making a difference for the Turner syndrome community is welcome to participate. No prior advocacy experience is required.\nTo get started: \n\nComplete the Turner Syndrome Foundation Volunteer Application.\nSelect Legislative Advocacy when asked\, “In which areas would you like to volunteer?”\nComplete the online volunteer orientation.\nAttend our monthly virtual working group meetings and participate in advocacy activities at a level that fits your schedule.\n\nWhether you can make a phone call\, write a letter\, meet with a legislator\, or help organize advocacy efforts in your state\, your participation can help create meaningful change for individuals and families affected by Turner syndrome. \nTo learn more and get started: \n \nTogether\, we can amplify the voices of individuals and families affected by Turner syndrome and create lasting change.
URL:https://turnersyndromefoundation.org/event/legislative-advocacy-meeting/2026-07-02/
LOCATION:Online
CATEGORIES:Advocacy,Virtual,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Legislative-Advocacy-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260713T200000
DTEND;TZID=America/New_York:20260713T210000
DTSTAMP:20241213T032532Z
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002080-1783972800-1783976400@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-07-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260715T200000
DTEND;TZID=America/New_York:20260715T210000
DTSTAMP:20260702T194125Z
CREATED:20260622T204821Z
LAST-MODIFIED:20260702T194125Z
UID:10003156-1784145600-1784149200@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Growth Experiences
DESCRIPTION:Growth Experiences\nJuly 15: 8-9pm\nJoin us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. \nFeel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on Growth Charts\, taking place July 22nd at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
URL:https://turnersyndromefoundation.org/event/facebook-chat-growth-experiences/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Growth-FB-Chat.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260702T193741Z
CREATED:20260420T174445Z
LAST-MODIFIED:20260702T193741Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260812T142010Z
CREATED:20260414T001830Z
LAST-MODIFIED:20260812T142010Z
UID:10002927-1786392000-1786395600@turnersyndromefoundation.org
SUMMARY:Turner Syndrome in the Classroom: Educator Insights and Academic Accommodations
DESCRIPTION:Monday\, August 10\, 2026 | 8:00 PM ET\nComplimentary Live Webinar \nEvery student deserves an educational environment where they are understood\, supported\, and empowered to succeed. \nJoin the Turner Syndrome Foundation’s Educating the Educator Initiative for an informative webinar designed to help educators\, school psychologists\, counselors\, administrators\, therapists\, and families better understand the educational implications of Turner syndrome. \nTurner syndrome is a chromosomal condition that can affect physical development\, cardiovascular health\, hearing\, executive functioning\, visual-spatial skills\, mathematics\, social communication\, and fertility. While every individual is unique\, increased awareness among educational professionals can make a lasting difference in a student’s academic experience and overall well-being. \nThis webinar will explore: \n\nThe educational profile and learning characteristics are commonly associated with Turner syndrome\nStrategies for creating an empathetic\, student-centered learning environment\nClassroom accommodations and supports that promote academic success\nNavigating educational milestones from elementary school through higher education\nBuilding effective partnerships between educators\, families\, and healthcare professionals\nPractical tools to help students with Turner syndrome thrive both academically and socially\n\nWhether you are an educator\, healthcare professional\, parent\, caregiver\, or advocate\, this session will provide practical guidance and evidence-informed strategies that can be implemented immediately in the classroom. \nTogether\, we can bridge the gap between diagnosis and educational success by ensuring every student with Turner syndrome has the opportunity to reach her full potential. \nRegistration is free\, but advance registration is required. \n  \n\n \n\n\nHelp Us Reach More Educators\nWe would greatly appreciate your support in sharing this complimentary educational opportunity with your colleagues\, professional networks\, members\, schools\, universities\, and students. Expanding awareness among educators is an important step toward improving educational outcomes\, fostering inclusion\, and advancing advocacy for individuals with Turner syndrome.
URL:https://turnersyndromefoundation.org/event/we-learn-education-panel-discussion/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/TS-in-the-Classroom.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260820
DTEND;VALUE=DATE:20280101
DTSTAMP:20260820T162144Z
CREATED:20260820T161216Z
LAST-MODIFIED:20260820T162144Z
UID:10004345-1787184000-1830297599@turnersyndromefoundation.org
SUMMARY:Wings of Hope - Book Fundraiser
DESCRIPTION:Wings of Hope’s Story\n\n\nWings of Hope was created to honor the strength\, resilience\, and beauty of those living with Turner syndrome. \nThis initiative accompanies the release of Wings of Hope\, a deeply personal book that shares the journey of a mother and daughter navigating Turner syndrome through faith\, perseverance\, and purpose. \nRead or purchase the book here \nSupporters may also choose to donate directly through this fundraiser page\, helping expand awareness and support the mission even further. \nWhy Wings of Hope\nThe butterfly symbolizes transformation\, endurance\, and hope—qualities that reflect the journey of individuals and families living with Turner syndrome. \nWings of Hope shares that journey through the lived experience of a mother and daughter\, highlighting both the challenges and the victories along the way. It is a story grounded in faith\, resilience\, and the belief that even the smallest wings can carry great hope. \nHow the Fundraiser Works \n\nWings of Hope is available for purchase on Amazon\n100% of book proceeds will be donated to the Turner Syndrome Foundation (TSF)\nSupporters can also donate directly through this fundraiser page\nSharing the fundraiser helps amplify awareness and support for the Turner syndrome community
URL:https://turnersyndromefoundation.org/event/wings-of-hope-book-fundraiser/
LOCATION:Online
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Screenshot-2026-08-20-at-12.05.41-PM.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T120000
DTEND;TZID=America/New_York:20260822T170000
DTSTAMP:20260717T183237Z
CREATED:20260511T214134Z
LAST-MODIFIED:20260717T183237Z
UID:10002934-1787400000-1787418000@turnersyndromefoundation.org
SUMMARY:Summer Social at Liberty Lake\, Bordentown\, NJ
DESCRIPTION:Summer Fun with Friends!\nA Day of Connection\, Nature\, and Community\nJoin the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls\, women\, and families living with Turner syndrome. Set in a peaceful\, nature-based environment\, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. For many\, this is more than an event—it’s a turning point.\n  \n \nEvent Details \nLocation: Liberty Lake Picnic\nBordentown\, New Jersey \nDate: Saturday\, August 22\, 2026\nTime: 12:00 PM – 5:00 PM (EST) \nRain or shine\, the event will take place as scheduled. \nSpread the word and print out a flyer! \nParticipants will: \n\nBuild genuine\, lasting friendships\nStrengthen confidence and independence\nLearn practical life and health insights\nExperience the relief of being seen\, understood\, and supported\n\nAs many attendees describe\, it is life-changing. \nWhat to Expect \nThis one-day social retreat is designed to foster connection in a relaxed\, welcoming outdoor setting. \nHighlights include: \n\nCommunity-building activities and group engagement\nOutdoor recreation\, including swimming\, games\, and seating under a shaded pavilion\nShared meals and informal networking\nA supportive\, inclusive atmosphere for all ages\nThis is a community-focused experience—centered on connection\, conversation\, and simply enjoying time together.\n\nRegistration includes: \n\n\n\nFull access to Liberty Lake activities\nMeals and refreshments throughout the day\nEntry into a safe\, welcoming community experience\nCapacity is limited to preserve a high-quality\, connected experience.  Early registration is strongly encouraged.\nScholarships are limited and reserved for individuals with Turner syndrome.  Availability is based on need and supported by donor funding.\n\n\n\nJoin the Turner Syndrome Foundation for its Annual Community Day for fun in the sun at Liberty Lake Picnic in Bordentown\, NJ. Rain or shine\, the event will go on!! This event is for all ages and is a great way to meet new people! \nCommunity Social!\nThis will be a strictly social and friendly networking event! Individuals and families affected by TS are invited to spend the day together\, interacting and having fun. Talking among yourselves and as a group. There will be no professional medical presentations. We want to get to know you and you to get to know one another! \nThere will be fun!\nActivities include enjoying the great outdoors with games\, swimming\, mini golf\, good food\, new friends\, and more! There are two pools and dressing rooms\, so be sure to bring your towels & swimsuits!  Food and drinks are provided all day\, right under our pavilion\, with gluten-free options available upon request. Coolers are permitted (no glass bottles\, please). Surrounded by nature\, nestled under a covered pavilion reserved just for our group\, you will find ample tables\, shade from the sun\, and seating. \nRegistration:\nEvent registration includes entrance to the park for the Turner Syndrome Foundation’s Community Day and meals. Family and friends are welcome to join the TSF Community Day. You can sponsor the event to support TSF in providing a limited number of free event tickets for individuals with TS.  Please support our efforts by sponsoring this event so everyone can enjoy this day! \nOvernight Accommodations \nWhile this is a one-day retreat\, guests traveling from outside the area are welcome to extend their stay. A curated list of nearby hotels and accommodations in the Bordentown area will be provided upon registration to help you plan your visit with ease. \nBecome a Sponsor: Make This Experience Possible \nRegistrations are non-refundable and non-transferable. A limited number of scholarships are available for individuals in need.  If you have questions\, please call (732) 847-3385 for assistance.
URL:https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/
LOCATION:Liberty Lake Picnic\, 1195 Florence Columbus Rd\, Bordentown\, NJ\, 08505\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Liberty-Lake-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260827T200000
DTEND;TZID=America/New_York:20260827T210000
DTSTAMP:20260818T171904Z
CREATED:20260818T171904Z
LAST-MODIFIED:20260818T171904Z
UID:10004344-1787860800-1787864400@turnersyndromefoundation.org
SUMMARY:Facebook Chat: TSF Campus Club Launch
DESCRIPTION:Join us for a live conversation on Facebook to discuss the Campus Life\, Aug 27\, 8pm ET. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, TSF Campus Club Launch\, taking place Sep 2nd at 8 PM ET. Register for the webinar.
URL:https://turnersyndromefoundation.org/event/facebook-chat-tsf-campus-club-launch/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Campus-Club-Facebook-Chat.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260828T190000
DTEND;TZID=America/New_York:20260828T210000
DTSTAMP:20260805T172121Z
CREATED:20260702T171221Z
LAST-MODIFIED:20260805T172121Z
UID:10003160-1787943600-1787950800@turnersyndromefoundation.org
SUMMARY:BlueClaws vs Wilmington Blue Rocks
DESCRIPTION:Turner Syndrome Community Event\n8/28 7:05 PM – Jersey Shore BlueClaws VS Wilmington Blue Rocks at ShoreTown Ballpark Lakewood\, NJ 08701 \n \nBaseball and Turner Syndrome… As good as it gets! \nJoin us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are $20 per person. TS patients are free. This year\, we are offering a special 6-pack of tickets for the price of four. We hope the event will be a sell-out! \nTurner Syndrome Foundation is a community partner of the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. \n \nThe Jersey BlueClaws Stadium is located in Lakewood\, New Jersey\, and is named for their location on the Jersey Shore and blue crabs native to the area. \nThe BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. \n \nThe BlueClaws are going to play ball with Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nQuestions? Email Lori Kobular lkobular@tsfusa.org —– Turner Syndrome affects 1 in 2\,000 females. We can help.
URL:https://turnersyndromefoundation.org/event/blueclaws-vs-wilmington-blue-rocks/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/BlueClaws-Cover-Photo.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260902
DTEND;VALUE=DATE:20270902
DTSTAMP:20260804T175932Z
CREATED:20260703T203603Z
LAST-MODIFIED:20260804T175932Z
UID:10003163-1788307200-1819843199@turnersyndromefoundation.org
SUMMARY:Group Coaching for Women with Turner Syndrome
DESCRIPTION:This is not therapy\, but a structured coaching program focused on turning goals into consistent action. \nSupporting the Turner Syndrome Foundation\nEnrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. \nA portion of the service fee may be donated to TSF at the client’s discretion.
URL:https://turnersyndromefoundation.org/event/f-nvld-cohort/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Screenshot-2026-07-03-at-4.26.06-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260912
DTEND;VALUE=DATE:20260913
DTSTAMP:20260810T171329Z
CREATED:20260703T195944Z
LAST-MODIFIED:20260810T171329Z
UID:10003162-1789171200-1789257599@turnersyndromefoundation.org
SUMMARY:FXT Golf Outing
DESCRIPTION:Join the Arensdorf family for the 1st Annual Golf Outing Fundraiser benefiting the Fragile X Foundation and the Turner Syndrome Foundation. The event will feature an 18-hole shotgun start at 8:00 AM with a meal to follow. Registration will begin at 7am. All proceeds from the outing will be distributed between the two foundations\, supporting their missions to advance research\, education\, advocacy\, and family support programs. We look forward to a day of golf\, camaraderie\, and giving back to these important causes. If you’re not a golfer or can’t attend the outing\, you can still be part of the event by making a donation to one of our benefiting foundations. \nSupport the Fundraiser:\nDonate online\nhttps://givebutter.com/gtFZVj/fxtgolfouting \nMail your donation:\nTurner Syndrome Foundation\nPO Box 726\, Holmdel\, NJ 07733 \nLearn more: https://www.facebook.com/events/995941449474752/ \n 
URL:https://turnersyndromefoundation.org/event/fxt-golf-outing/
LOCATION:19858 E Pleasant Grove Rd\, 19858 E Pleasant Grove Rd\, Peosta\, 52068\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/FXT-Golf-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T110000
DTEND;TZID=America/New_York:20260916T120000
DTSTAMP:20260728T184240Z
CREATED:20260727T183934Z
LAST-MODIFIED:20260728T184240Z
UID:10003167-1789556400-1789560000@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Wednesdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \n\nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\n\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours/2026-09-16/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260728T184559Z
CREATED:20260727T184227Z
LAST-MODIFIED:20260728T184559Z
UID:10003334-1789675200-1789678800@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Thursdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours-2/2026-09-17/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261008
DTEND;VALUE=DATE:20261009
DTSTAMP:20260826T215249Z
CREATED:20260826T185357Z
LAST-MODIFIED:20260826T215249Z
UID:10004346-1791417600-1791503999@turnersyndromefoundation.org
SUMMARY:DAFday 2026
DESCRIPTION:Make an Impact Through Your Donor-Advised Fund\nA Donor-Advised Fund (DAF) offers a simple\, flexible\, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. \nBy recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF\, you help advance our mission to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care for those affected by Turner syndrome. \nYour generosity helps TSF provide education\, patient and caregiver resources\, professional engagement\, advocacy\, and support—reaching individuals and families across the United States and around the world. \nRecommend a Grant Today\nClients of Fidelity Charitable\, Schwab Charitable\, Vanguard Charitable\, and other sponsoring organizations can recommend a grant to the Turner Syndrome Foundation using the DAF giving widget below. \n \nAlready have a Donor-Advised Fund? Put your charitable dollars to work for the Turner syndrome community today. \nGiving Directly Through Your DAF Sponsor\nIf you prefer to contact your financial institution or DAF sponsor directly\, please designate your charitable grant to: \n\nOrganization: Turner Syndrome Foundation\nTax ID (EIN): 27-1409942\nAddress: Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733\n\nAfter recommending your grant\, please notify us. DAF grants sometimes arrive without the donor’s complete contact information. Letting us know about your gift allows us to properly acknowledge your generosity and express our appreciation. \nWhy Your DAF Gift Matters\nTurner syndrome is a complex chromosomal condition affecting approximately 1 in every 2\,000 females born and requiring specialized healthcare throughout a lifetime. Yet awareness remains limited\, and many girls and women struggle to find knowledgeable providers\, appropriate resources\, and coordinated care. \nYour DAF can change that. \nYour charitable grant can help TSF: \n\nExpand free patient and caregiver education and support\nIncrease professional awareness of Turner syndrome\nConnect families with information and healthcare resources\nAdvance research and research participation\nStrengthen advocacy and public awareness\nBuild programs that improve care throughout every stage of life\n\nYour Charitable Dollars. Their Healthier Tomorrows.\nIf you have already established a DAF\, recommending a grant is one of the easiest ways to put those charitable funds into action. \nRecommend a grant to the Turner Syndrome Foundation today and help create a future where a missing chromosome never means missed opportunities. \nFor questions or assistance with a DAF gift\, please contact the Turner Syndrome Foundation at info@tsfusa.org | (800) 594-4585 x5.
URL:https://turnersyndromefoundation.org/event/dafday-2026/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/DAFday.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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