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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T200000
DTEND;TZID=America/New_York:20260601T210000
DTSTAMP:20260605T024540
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002111-1780344000-1780347600@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-06-01/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260529T200000
DTEND;TZID=America/New_York:20260529T220000
DTSTAMP:20260605T024540
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000073-1780084800-1780092000@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-05-29/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260605T024540
CREATED:20260518T201711Z
LAST-MODIFIED:20260518T201711Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260605T024540
CREATED:20260409T171230Z
LAST-MODIFIED:20260409T171327Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260605T024540
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260605T024540
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260605T024540
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260605T024540
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260605T024540
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002079-1776110400-1776114000@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-04-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T200000
DTEND;TZID=America/New_York:20260401T210000
DTSTAMP:20260605T024540
CREATED:20260209T223522Z
LAST-MODIFIED:20260209T224133Z
UID:10002901-1775073600-1775077200@turnersyndromefoundation.org
SUMMARY:Webinar: Sharing Turner Syndrome Through Film - The Story Behind Like A Butterfly
DESCRIPTION:Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly\, her deeply personal and thought-provoking film. In this WE Learn webinar\, Brooke shares the inspiration behind the story\, why Turner Syndrome stories must be told\, and how film can be a powerful tool for awareness\, advocacy\, and connection. Discover how storytelling through media can amplify voices\, foster empathy\, and spark meaningful change.\n \nAbout the Presenter\nBrooke Gonsalves is an independent filmmaker and storyteller with experience across film\, digital media\, and podcasting. She produced and directed Like A Butterfly\, shepherding the project from initial concept through post-production. Brooke also hosts podcasts and runs a YouTube channel dedicated to highlighting Turner Syndrome stories—celebrating resilience\, raising awareness\, and uplifting the community through personal narratives and interviews. Her work blends creative storytelling with advocacy\, offering both emotional impact and meaningful insight. \nWhat You’ll Gain From Attending\nBehind-the-Scenes Insight\nLearn how Like A Butterfly was brought to life—from idea development to post-production decisions. \nAdvocacy Through Storytelling\nSee how film and digital media can raise awareness and amplify the voices of underrepresented people\, especially within the Turner Syndrome community. \nPersonal Inspiration\nHear Brooke’s journey as a filmmaker and advocate\, including challenges faced\, lessons learned\, and milestones achieved. \nLive Q&A Opportunity\nAsk questions directly about filmmaking\, Turner Syndrome advocacy\, or creating content with social impact. \nWhy This Webinar Matters Beyond Turner Syndrome\nUniversal Storytelling Skills\nLearn how to craft compelling stories\, build emotional resonance\, and engage audiences—valuable for filmmakers\, writers\, educators\, marketers\, and communicators of all kinds. \nInspiration & Resilience\nBrooke’s experience highlights creativity\, perseverance\, and problem-solving—lessons applicable to both personal and professional growth. \nSocial Impact Through Media\nExplore how storytelling can foster empathy\, raise awareness\, and spark meaningful conversations across diverse communities. \nPractical\, Engaging Discussion\nThe interactive Q&A makes this session relevant for professionals\, students\, creatives\, and anyone interested in storytelling with purpose. \nAbout the Presenter: \nBrooke Gonsalves is a filmmaker\, producer\, and Turner Syndrome advocate. She is the creator of Like a Butterfly\, a documentary film that explores identity\, resilience\, and lived experience through the lens of Turner Syndrome. \nIn addition to her work in film\, Brooke hosts podcasts focused on storytelling\, advocacy\, and the creative process\, and is committed to creating spaces where stories are seen and heard. Through her work\, she bridges personal experience and cinematic storytelling to foster understanding\, connection\, and conversation. \nShe holds a Bachelor’s degree in Psychology with a concentration in counseling and a Master’s degree in Applied Behavior Analysis. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-sharing-turner-syndrome-through-film-the-story-behind-like-a-butterfly/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Gonsalves.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T173000
DTEND;TZID=America/New_York:20260401T183000
DTSTAMP:20260605T024540
CREATED:20260318T171659Z
LAST-MODIFIED:20260318T171659Z
UID:10002919-1775064600-1775068200@turnersyndromefoundation.org
SUMMARY:TSF Butterfly Bake Sale
DESCRIPTION:Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. \n\nWestwood Village Mall – 2600 SW Barton Street\, Seattle\, WA\nApril 1st 5:30pm\n\n“I have been following TSF for about 3 years now and because my daughter was diagnosed with TS I didn’t know much about TS until I found TSF and I appreciate everything that TSF does” – Kaitlin \n  \n 
URL:https://turnersyndromefoundation.org/event/tsf-butterfly-bake-sale/
LOCATION:Westwood Village Mall\, 2600 SW Barton Street\, Seattle\, WA\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/Bake-Sale-Flyer-Kaitlin-Wagner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260421
DTSTAMP:20260605T024540
CREATED:20260401T233353Z
LAST-MODIFIED:20260401T233353Z
UID:10002921-1775001600-1776729599@turnersyndromefoundation.org
SUMMARY:Pampered Chef Party benefit for TSF
DESCRIPTION:A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20.  This is the third year Marianne is supporting the cause. \nOrder https://table.pamperedchef.com/party/2852257aby \n  \nIf you have a small business and would like to support the cause\, submit an event form to market your event. 100% of all proceeds must support TSF. Thank you for your incredible support!
URL:https://turnersyndromefoundation.org/event/pampered-chef-party-benefit-for-tsf/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Fundraise.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T024540
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T024540
CREATED:20260217T210542Z
LAST-MODIFIED:20260227T105821Z
UID:10002903-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:Webinar: Legislative Advocacy Information Session
DESCRIPTION:Join the Legislative Advocacy Information Session\n  \nThank you for being part of the Turner Syndrome community. As our efforts continue to grow\, we are expanding opportunities for community members to get involved in meaningful\, mission-driven advocacy. \nWhether you are an experienced advocate or just beginning to explore how you can make a difference\, we invite you to attend this information session to learn more about the work of the Turner Syndrome Foundation’s Legislative Advocacy Committee—and how you can contribute in ways that align with your skills\, interests\, and availability. \nYour voice\, perspective\, and commitment matter. We welcome you to join us in advancing change together.\n \nWho Should Attend \nIndividuals with lived experience of Turner syndrome \nParents\, caregivers\, and family members \nHealthcare\, education\, or social service professionals \nStudents and emerging advocates \nCommunity members interested in policy and social impact \nAnyone curious about how legislative advocacy works \nNo prior advocacy experience is required. \nParticipants will: \nLearn how to ethically and effectively advance Turner syndrome awareness within communities and through public policy \nGain a clearer understanding of how legislative advocacy works at local\, state\, and national levels \nExplore practical and responsible methods for engagement \nLeave better prepared with actionable strategies to support advocacy efforts \nWhy This Matters \nAdvocacy affects real lives. Nearly everyone has a family member\, friend\, colleague\, or community connection touched by Turner syndrome. Understanding how policies are shaped—and how you can contribute—helps create more informed\, inclusive\, and supportive communities. \nWhether you work in education\, healthcare\, counseling\, nonprofit leadership\, or simply want to be a more engaged citizen\, this session provides practical knowledge you can apply in meaningful ways. \nSign The Petition Here! \nEvent Link:\nCheck the email you provide at registration to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-legislative-advocacy-information-session/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Legislative-Advocacy-Information-Session.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260304T200000
DTEND;TZID=America/New_York:20260304T210000
DTSTAMP:20260605T024540
CREATED:20260209T231722Z
LAST-MODIFIED:20260209T232221Z
UID:10002902-1772654400-1772658000@turnersyndromefoundation.org
SUMMARY:Webinar: Hearing Loss Rehabilitation Counseling
DESCRIPTION:This session will review different types of hearing loss and causes of hearing loss.  It will also provide possible services and resources available.  Lastly\, it will identify reasonable accommodations that are needed in the home\, school\, or workplace.\n \nJoin an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused on understanding hearing loss and supporting individuals who experience it across the lifespan. This webinar will review the different types and causes of hearing loss\, explore available services and resources\, and identify reasonable accommodations that can be implemented in the home\, school\, and workplace. \nWith more than five decades of professional experience\, the presenter brings a deep and personal commitment to this field. After learning American Sign Language in 1972\, they worked for many years as an interpreter for the Deaf\, later serving as a Rehabilitation Counselor for the Deaf and State Coordinator for the Deaf in North Carolina. Currently\, they serve as Adjunct Faculty at Winston-Salem State University\, teaching courses such as Counseling Deaf People\, Psychosocial Aspects of Deafness\, and Vocational Evaluation of Deaf People. Their academic background includes a PhD in Rehabilitation Counseling & Rehabilitation Counselor Education from NC A&T State University\, a Master’s degree in Rehabilitation Counseling for the Deaf from Gallaudet University\, and a dual BA in Early Childhood Education and Deaf Education from Lenoir-Rhyne College. They are also a Certified Rehabilitation Counselor and Licensed Clinical Mental Health Counselor. \nWho Should Attend & What You’ll Gain \nParticipants will: \nLearn how to ethically and legally work with individuals who have hearing loss \nGain a clearer understanding of the symptoms and causes of hearing loss \nLeave better prepared to provide effective\, inclusive services \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences hearing loss. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-hearing-loss-rehab-counsel/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/LTanya-Therese-Fish-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T090000
DTEND;TZID=America/New_York:20260315T235900
DTSTAMP:20260605T024540
CREATED:20260126T213436Z
LAST-MODIFIED:20260303T191030Z
UID:10002885-1772269200-1773619140@turnersyndromefoundation.org
SUMMARY:Card Auction 2026
DESCRIPTION:THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation\nChoose from a beautiful array of custom-made designer greeting cards. \nBid Now Until 3/15! \nDonate \nTSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces for all occasions and donate them to benefit TSF. Greeting card connoisseurs and art enthusiasts will bid on their favorite cards. After the auction ends\, TSF will send the cards to the highest bidders. Card donations begin at $5.00. \nThe auction begins on February 28\, 2026\, at 9 AM EDT\, which is Rare Disease Day\, and ends on March 15\, 2026\, at midnight! \nPlace Your Bid Here With @MULCHLADY6 \nHow to BID on a card:\nAll Bids start at $5.00 with increasing bids of $1.00 \nShipping is free in the US unless you want priority shipping with tracking and that will be determined by the Post Office. International Shipping will also be determined by the post office. \n1) Please place your bid in US dollar amounts in the comment section under the photo of the card you want\n2) Please be sure to tag the highest bidder with your bid. Example #mulchlady6$10\n3) Once the auction is over and the winners are figured out the highest bidder will be contacted with a link of where to send their donation.\n4) Once proof of the donation is confirmed the card will be mailed out.\n5) If we do not hear back from the highest bidder within 24 hours\, we will move to the next highest bidder on that card. \n\n\n\nThe Turner Syndrome Awareness Card Auction is a collaborative Card Auction benefiting the Turner Syndrome Foundation\, which operates solely on donations. TS is a complex condition affecting 1 in every 2\,000 women and girls. Join Lori in supporting this cause! The very talented card designers who have donated their amazing cards are from all over the world and work on Design Teams for various crafting companies that sell dies\, stamps\, and other cardmaking supplies. They are the most generous and caring people! They have poured lots of love into each of their creations! \nAll sales are final. No refunds or warranties are promised or provided. This fundraiser supports the Turner Syndrome Foundation\, a 501(c)3 charitable organization. \nDesigners who wish to donate their cards may contact Lori at lkobular@tsfusa.org.\nMail checks payable to Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733 \nThank you all so much for your support!  
URL:https://turnersyndromefoundation.org/event/card-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Card-Auction-Graphic-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260225T200000
DTEND;TZID=America/New_York:20260225T210000
DTSTAMP:20260605T024540
CREATED:20260115T182914Z
LAST-MODIFIED:20260115T182914Z
UID:10002883-1772049600-1772053200@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Raising Awareness
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-raising-awareness/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-25.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T200000
DTEND;TZID=America/New_York:20260224T210000
DTSTAMP:20260605T024540
CREATED:20260209T213127Z
LAST-MODIFIED:20260304T211330Z
UID:10002900-1771963200-1771966800@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Awareness Month Patient & Parent Panel
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/turner-syndrome-awareness-month-patient-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/TSAM-Panel-2026.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T210000
DTSTAMP:20260605T024540
CREATED:20260115T182702Z
LAST-MODIFIED:20260115T182702Z
UID:10002882-1771444800-1771448400@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Careers
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-careers/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-18.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T200000
DTEND;TZID=America/New_York:20260211T210000
DTSTAMP:20260605T024540
CREATED:20260115T182409Z
LAST-MODIFIED:20260115T182409Z
UID:10002881-1770840000-1770843600@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Education
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-education/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-11.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260605T024540
CREATED:20260115T181550Z
LAST-MODIFIED:20260115T182140Z
UID:10002879-1770235200-1770238800@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Getting to Know You
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/getting-to-know-you/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-4.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20260201T110000
DTEND;TZID=America/Kentucky/Louisville:20260201T140000
DTSTAMP:20260605T024540
CREATED:20260119T213045Z
LAST-MODIFIED:20260119T213045Z
UID:10002884-1769943600-1769954400@turnersyndromefoundation.org
SUMMARY:LSU Lady Tigers Game Turner Syndrome Awareness Half-Time Photo Opportunity
DESCRIPTION:Alabama Crimson Tide at LSU Tiger Womens Basketball \nTURNER SYNDROME\nBATON ROUGE\, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome\, a cause close to Head Coach Kim Mulkey\, at the February 1 game against Alabama in the PMAC. \n(center) Coach Mulkey’s daughter Makenzie Fuller\, granddaughter Sage\, grandson Kannon\, & son-in-law Clay. Photo by Kristen Young\n“This cause is personal to me and my family because of the loss of Scout Marie\,” Mulkey said. “My daughter (Makenzie Fuller) had to deliver a stillborn at 20 weeks\, and she will always be a part of our lives. We will continue to talk about and raise awareness for Turner Syndrome\, now and always. I didn’t know about Turner Syndrome before it affected our family\, and I want to make sure everyone knows about the life-altering condition before it affects them.” \nAt the game on February 1\, LSU will honor Turner Syndrome survivors on the court. They are welcoming anyone affected by Turner syndrome to be recognized on the court at halftime as a group. \nT-shirt sales support the Turner Syndrome Foundation. The online order form has closed. \nBuy Tickets
URL:https://turnersyndromefoundation.org/event/lsu-lady-tigers-game-turner-syndrome-awareness-half-time-photo-opportunity/
LOCATION:Online
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2023/03/Believe-in-Miracles_LSU-Sports-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260605T024540
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260109T080000
DTEND;TZID=America/New_York:20260301T170000
DTSTAMP:20260605T024540
CREATED:20260109T230752Z
LAST-MODIFIED:20260109T231111Z
UID:10002872-1767945600-1772384400@turnersyndromefoundation.org
SUMMARY:Join the Turner Syndrome Awareness Crew
DESCRIPTION:Sign Up Form\nSmall actions = Big ripple effects = Meaningful awareness all year long!\nRaising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. \nThat’s why we created the Turner Syndrome Awareness Crew — a low-commitment\, high-impact way to help spread awareness in your community\, online\, and beyond all year round. \nWhen many people take simple actions together\, awareness grows farther than any one person could reach alone. \nWhat Is the Awareness Crew?\nThe Turner Syndrome Awareness Crew is a group of supporters who take small\, meaningful actions to help educate others and spark conversations about Turner syndrome. \nThere’s no minimum time requirement\, no pressure to do everything\, and no “right” way to raise awareness. \nWhat Kind of Actions Are We Talking About?\nThink simple and flexible\, yet high-impact: \n\n? Sharing or creating a social media post\n? Dropping off a flyer at a doctor’s office\, school\, or workplace\n?? Signing or sharing a petition\n? Talking with friends\, family\, or coworkers about Turner syndrome\n? Participating in Awareness Month activities\n\nEach action might only take a few minutes\, but when many of us come together to take action\, they create a powerful ripple effect. \n\n\nRaise Awareness and Bring Others Along\nEvery Awareness Crew member will receive a personal fundraising page\, making it easy to invite friends\, family\, and your community to support Turner syndrome awareness alongside you. \nYou don’t need to fundraise actively if you don’t want to. But if you do share your page\, you’re helping amplify awareness and support year-round. \nWhy It Matters\nAwareness leads to: \n\nEarlier diagnoses\nBetter understanding in doctors’ offices\, schools\, and workplaces\nStronger advocacy\nA more informed and compassionate community\n\nWhen many people take small steps\, the impact grows! \nReady to Be Part of the Crew?\nIf you’ve ever wanted to help raise awareness\, but weren’t sure how\, this is your invitation. \n? Join the Turner Syndrome Awareness Crew\n? Take simple actions when it works for you\n? Be part of something bigger than yourself \n? Shop for TSAM New Merch \nSign up today and start making an impact\, one small action at a time! \n\n\n\n\n\n 
URL:https://turnersyndromefoundation.org/event/%f0%9f%8c%9f-join-the-turner-syndrome-awareness-crew-%f0%9f%8c%9f/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/TSAM-Crew.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260107
DTEND;VALUE=DATE:20260201
DTSTAMP:20260605T024540
CREATED:20260107T214913Z
LAST-MODIFIED:20260107T214913Z
UID:10002870-1767744000-1769903999@turnersyndromefoundation.org
SUMMARY:Study Opportunity
DESCRIPTION:Virtual Social Skills Group
URL:https://turnersyndromefoundation.org/event/study-opportunity/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251212
DTEND;VALUE=DATE:20260101
DTSTAMP:20260605T024540
CREATED:20251212T214515Z
LAST-MODIFIED:20251212T214515Z
UID:10002869-1765497600-1767225599@turnersyndromefoundation.org
SUMMARY:Paid Research Opportunity
DESCRIPTION:Are you an adult with Turner syndrome?\n\nWe would love to hear about your experiences moving from pediatric to adult healthcare!\n  \nWe’re inviting you to join a research study about the transition from pediatric to adult care for people with Turner Syndrome. Help us make medical care more accessible and affirming for everyone. \nWhat does participation involve? \n• 10-15 minute survey with basic background questions.\n• 45-60 minute Zoom interview about your transition to adult\nhealthcare.\n• All responses are confidential.\n• Receive a $25 Amazon gift card for completing both! \nIf you’re interested in participating or want to learn more about the study\, please go to:\nhttps://bit.ly/49riJis. \nLed by Haylie McSwaney\, a Genetic Counseling graduate student at Boston University\, with\nguidance from experienced genetic counselors and a clinical social worker.
URL:https://turnersyndromefoundation.org/event/paid-research-opportunity/
LOCATION:virtual
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/12/Screenshot-2025-12-12-at-4.36.00-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251024T200000
DTEND;TZID=America/New_York:20251024T220000
DTSTAMP:20260605T024540
CREATED:20251021T222535Z
LAST-MODIFIED:20251021T222535Z
UID:10002852-1761336000-1761343200@turnersyndromefoundation.org
SUMMARY:Star Sister's Costume Party
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community is offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-costume-party/
LOCATION:Online
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2025/10/Star-Sister-Costume.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251024T180000
DTEND;TZID=America/New_York:20251024T200000
DTSTAMP:20260605T024540
CREATED:20251023T182610Z
LAST-MODIFIED:20251023T182716Z
UID:10002853-1761328800-1761336000@turnersyndromefoundation.org
SUMMARY:BooClaws Spooktacular October 24th with Ghostbusters
DESCRIPTION:Family Fun Night…. Who ya gonna watch? \nThe sixth annual BooClaws Spooktacular returns to ShoreTown Ballpark on Friday\, October 24th when the 1984 classic Ghostbusters is shown on the video board! Tickets are $10 pp \nFans are encouraged to come in costume. Gates open at 6:00 pm\, and the movie begins at 7:00 pm. \nActivities surrounding the movie include early trick-or-treating on the concourse\, a costume parade\, a costume contest\, and much more. \n“The BooClaws Spooktacular is one of our favorite events of the year\,” said BlueClaws General Manager Bob McLane. “This year\, we’re excited to combine the BooClaws Spooktacular and our own Buster\, with Ghostbusters! It’s a night you don’t want to miss!” \nEveryone is encouraged to watch the movie from the field or the seating bowl.\nBlankets and chairs are welcome.\n \n-Tickets donated by the Jersey Shore BlueClaws-
URL:https://turnersyndromefoundation.org/event/booclaws-spooktacular-october-24th-with-ghostbusters/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/BlueClaws-Cover-Photo.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251008T200000
DTEND;TZID=America/New_York:20251008T210000
DTSTAMP:20260605T024540
CREATED:20250425T220833Z
LAST-MODIFIED:20250820T141954Z
UID:10002173-1759953600-1759957200@turnersyndromefoundation.org
SUMMARY:Webinar Prenatal Monosomy X: What a Genetic Counselor Wants You to Know
DESCRIPTION:Register Now for This Webinar\nThis is a We Learn education activity presented by an expert in their field as part of the programming of the Turner Syndrome Foundation. Donations help our mission continue to develop and provide programs that support the TS community. Show your commitment to the cause – become a 1938 Sustaining Supporter. \nThe event will be rescheduled. The date will be determined. Signup to receive event notifications\, link\, and recording. \n\n  \nShort overview of the topic: \nThis presentation will focus on prenatal monosomy X from a clinical genetic counseling perspective. Topics covered will be current prenatal screening and diagnostic testing\, impact on prenatal care\, and resources for expectant parents.\nRegister Now for This Webinar \nShort overview of the topic: \nThis presentation will focus on prenatal monosomy X from a clinical genetic counseling perspective. Topics covered will be current prenatal screening and diagnostic testing\, impact on prenatal care\, and resources for expectant parents. \nWhat You Will Learn: \nI am a clinical prenatal genetic counselor. In my clinical practice I routinely care for patients who are carrying a pregnancy with a suspected or known prenatal diagnosis of monosomy X. I have also provided preconception counseling to patients who have mosaic or full Turner syndrome. Participants should have a better understanding of the benefits and limitations of current prenatal screening for monosomy X and the importance of additional clinical follow-up for positive screens. Participants will also learn about the wide clinical spectrum of monosomy X in the prenatal period. There continues to be broad misconceptions about the accuracy\, benefits\, and limitations of current prenatal screening\, and this talk will touch on many of these. Additionally\, every couple has a chance to have a child or pregnancy with TS\, so this information is relevant to any person considering having a child. Finally\, a cursory google search about prenatal turner syndrome or monosomy X often yields inaccurate information\, leading the general population to often have misconceptions about the prenatal features of TS. \nWho Should Attend:\nIndividuals\, allied health professionals\, educators\, administrators\, and policymakers are encouraged to attend. \nAbout the Presenter: \nEmily Green\, Masters of Genetic Counseling\, 2021 PhD in Cellular and Molecular Biology\, 2019 Masters of Cellular and Molecular Biology\, 2016 Certified Genetic Counselor\, 2022 \nI am a clinical genetic counselor specializing in prenatal and reproductive genetics at the University of Washington. I primarily see patients referred to our high-risk prenatal clinic\, though I also see patients for preconception counseling before or after pregnancy. I routinely see patients who have had abnormal noninvasive prenatal screening and/or abnormal ultrasound findings\, including cases of potential monosomy X. I am passionate about providing information and support to all my patients\, particularly those who experience an unexpected diagnosis during pregnancy. I am also a mentor and clinical supervisor for University of Washington genetic counseling students. \nI was raised in the Pacific Northwest and grew up with a passion for biology. This led me to pursue undergraduate studies at Western Washington University. While at Western I also continued studies in French\, which led me to a Masters and PhD in cellular and Molecular biology in Strasbourg\, France\, where I focused primarily on developing strategies to block malaria transmission by mosquitoes. A desire to move away from research and into applied work led me to genetic counseling\, which merges my interest in genetics with my desire to work with people and support patients. I graduated from the University of Arizona genetic counseling program in 2019 and since that time have been working at the University of Washington Medical Center. Outside of my clinical work\, I enjoy all the outdoor activities Washington has to offer\, as well as social dancing and knitting. \nPlease Donate!\nIt is free to register. We ask you to please donate\, if you can\, to support our work in providing enriching education programs for all. Your donation today helps to make programs like this one readily available to anyone virtually anywhere in the world. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity to be provided freely and accessible to everyone. Show your commitment to the cause – become a 1938 Sustaining Supporter.
URL:https://turnersyndromefoundation.org/event/webinar-prenatal-monosomy-x-what-a-genetic-counselor-wants-you-to-know/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2025/04/Prenatal-Monosomy-X-What-a-Genetic-Counselor-Wants-You-to-Know.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250921T120000
DTEND;TZID=America/New_York:20250921T170000
DTSTAMP:20260605T024540
CREATED:20250822T180625Z
LAST-MODIFIED:20250822T180625Z
UID:10002851-1758456000-1758474000@turnersyndromefoundation.org
SUMMARY:Picnic in the Park (Hummlestown PA)
DESCRIPTION:Hello\, Pennsylvania Friends! Join us for a meetup in the park! Enjoy the autumn weather for a wonderful afternoon outdoors. We will meet in the pavilion. \nWhy is Kayla Ganger planning this event? Because women need more places to find connection and belonging. \nFood will not be provided\, but feel free to bring your own picnic lunch or food to share with the group (potluck style). The park has a playground\, walking trails\, and a disc golf course that are all open for use. Bring family and friends\, if you wish\, for a delightful day of togetherness. \nDress for the weather and enter at your own risk. There is no fee to attend\, but you will need to register.
URL:https://turnersyndromefoundation.org/event/picnic-in-the-park-hummlestown-pa/
CATEGORIES:In person,Star Sisters
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/08/PA-Picnic.png
ORGANIZER;CN="Kayla Ganger":MAILTO:kganger@tsfusa.org
END:VEVENT
END:VCALENDAR