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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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TZID:America/New_York
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DTSTART:20260308T070000
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DTSTART;TZID=America/New_York:20270301T200000
DTEND;TZID=America/New_York:20270301T210000
DTSTAMP:20250311T171335Z
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002120-1803931200-1803934800@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2027-03-01/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270304T200000
DTEND;TZID=America/New_York:20270304T210000
DTSTAMP:20260702T194204Z
CREATED:20260618T174304Z
LAST-MODIFIED:20260702T194204Z
UID:10003111-1804190400-1804194000@turnersyndromefoundation.org
SUMMARY:Legislative Advocacy Meeting
DESCRIPTION:Legislative Advocacy Working Group\nThe Turner Syndrome Foundation’s Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy\, education\, and community engagement\, members help ensure that the voices of patients\, families\, caregivers\, and healthcare professionals are heard by local\, state\, and federal policymakers. \nWhat Does the Legislative Advocacy Working Group Do?\nThe Working Group monitors legislation and public policy issues that impact healthcare access\, rare disease awareness\, research funding\, education\, and patient support services. Members work together to: \n\nEducate elected officials about Turner syndrome and its lifelong health implications.\nAdvocate for policies that improve access to healthcare\, diagnosis\, treatment\, and support services.\nParticipate in letter-writing campaigns\, phone calls\, and meetings with legislators and their staff.\nRaise awareness of issues affecting the Turner syndrome community at the local\, state\, and national levels.\nCollaborate with other rare disease and patient advocacy organizations on shared policy priorities.\nShare updates on legislative developments and opportunities for community action.\n\nHow Can I Join?\nAnyone passionate about making a difference for the Turner syndrome community is welcome to participate. No prior advocacy experience is required.\nTo get started: \n\nComplete the Turner Syndrome Foundation Volunteer Application.\nSelect Legislative Advocacy when asked\, “In which areas would you like to volunteer?”\nComplete the online volunteer orientation.\nAttend our monthly virtual working group meetings and participate in advocacy activities at a level that fits your schedule.\n\nWhether you can make a phone call\, write a letter\, meet with a legislator\, or help organize advocacy efforts in your state\, your participation can help create meaningful change for individuals and families affected by Turner syndrome. \nTo learn more and get started: \n \nTogether\, we can amplify the voices of individuals and families affected by Turner syndrome and create lasting change.
URL:https://turnersyndromefoundation.org/event/legislative-advocacy-meeting/2027-03-04/
LOCATION:Online
CATEGORIES:Advocacy,Virtual,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Legislative-Advocacy-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270317T110000
DTEND;TZID=America/New_York:20270317T120000
DTSTAMP:20260728T184240Z
CREATED:20260727T183934Z
LAST-MODIFIED:20260728T184240Z
UID:10004199-1805281200-1805284800@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Wednesdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \n\nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\n\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours/2027-03-17/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270318T200000
DTEND;TZID=America/New_York:20270318T210000
DTSTAMP:20260728T184559Z
CREATED:20260727T184227Z
LAST-MODIFIED:20260728T184559Z
UID:10004297-1805400000-1805403600@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Thursdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours-2/2027-03-18/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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