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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T044804
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T044804
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260605T044804
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260605T044804
CREATED:20260227T115026Z
LAST-MODIFIED:20260420T154043Z
UID:10002904-1778184000-1778187600@turnersyndromefoundation.org
SUMMARY:Understanding Lymphedema Webinar
DESCRIPTION:We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. \nTurner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: \n\nHow lymphedema may present in infant patients with Turner syndrome\nCauses of lymphedema\nShort-term and long-term treatment approaches\nWhether lymphedema can progress or resolve over time\nLong-term impact of the condition\nHealth-related and insurance considerations\nStrategies to manage and cope with lymphedema\nAny relevant medical advancements or research developments\nResources for compression\n\n \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences lymphedema. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply. \nAbout the Presenter\nLauren Brown\, MSOT\, OTR/L\, CLT-LANA\nRocky Mountain Lymphedema and Cancer Rehab  \nLauren Brown represents the National Lymphedema Network and operates a private practice dedicated to providing individualized lymphedema care\, having transitioned from corporate healthcare. Since 2018\, she has specialized in lymphedema services and oncology rehabilitation\, working with patients across the lifespan—from infancy through end of life—with and without cancer diagnoses. \nRecognizing the limited availability of lymphedema therapy resources\, Lauren has forged an independent path\, using a highly personalized\, trial-and-response approach to adapt treatments based on each patient’s needs. She has successfully delivered care both in person and through telehealth consultations worldwide\, creating meaningful outcomes for individuals with primary and secondary lymphedema. Lauren is also actively developing standardized care protocols for pediatric lymphedema\, advancing the field and expanding access to specialized treatment. \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated.
URL:https://turnersyndromefoundation.org/event/understanding-lymphedema-webinar/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Lymphedema.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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