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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260605T104249
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
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DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T104249
CREATED:20260217T210542Z
LAST-MODIFIED:20260227T105821Z
UID:10002903-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:Webinar: Legislative Advocacy Information Session
DESCRIPTION:Join the Legislative Advocacy Information Session\n  \nThank you for being part of the Turner Syndrome community. As our efforts continue to grow\, we are expanding opportunities for community members to get involved in meaningful\, mission-driven advocacy. \nWhether you are an experienced advocate or just beginning to explore how you can make a difference\, we invite you to attend this information session to learn more about the work of the Turner Syndrome Foundation’s Legislative Advocacy Committee—and how you can contribute in ways that align with your skills\, interests\, and availability. \nYour voice\, perspective\, and commitment matter. We welcome you to join us in advancing change together.\n \nWho Should Attend \nIndividuals with lived experience of Turner syndrome \nParents\, caregivers\, and family members \nHealthcare\, education\, or social service professionals \nStudents and emerging advocates \nCommunity members interested in policy and social impact \nAnyone curious about how legislative advocacy works \nNo prior advocacy experience is required. \nParticipants will: \nLearn how to ethically and effectively advance Turner syndrome awareness within communities and through public policy \nGain a clearer understanding of how legislative advocacy works at local\, state\, and national levels \nExplore practical and responsible methods for engagement \nLeave better prepared with actionable strategies to support advocacy efforts \nWhy This Matters \nAdvocacy affects real lives. Nearly everyone has a family member\, friend\, colleague\, or community connection touched by Turner syndrome. Understanding how policies are shaped—and how you can contribute—helps create more informed\, inclusive\, and supportive communities. \nWhether you work in education\, healthcare\, counseling\, nonprofit leadership\, or simply want to be a more engaged citizen\, this session provides practical knowledge you can apply in meaningful ways. \nSign The Petition Here! \nEvent Link:\nCheck the email you provide at registration to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-legislative-advocacy-information-session/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Legislative-Advocacy-Information-Session.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T104249
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
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