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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T210000
DTSTAMP:20260115T182702Z
CREATED:20260115T182702Z
LAST-MODIFIED:20260115T182702Z
UID:10002882-1771444800-1771448400@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Careers
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-careers/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-18.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T200000
DTEND;TZID=America/New_York:20260211T210000
DTSTAMP:20260115T182409Z
CREATED:20260115T182409Z
LAST-MODIFIED:20260115T182409Z
UID:10002881-1770840000-1770843600@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Education
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/facebook-chat-education/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-11.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260115T182140Z
CREATED:20260115T181550Z
LAST-MODIFIED:20260115T182140Z
UID:10002879-1770235200-1770238800@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Getting to Know You
DESCRIPTION:Mark your calendars! Every Wednesday in February at 8 PM EST\, we’re hosting Turner Syndrome Awareness Month Facebook Chats\, and we hope you’ll join the conversation! \nEach week\, we’ll dive into a new topic:\nFeb 4 – Getting to Know You\nFeb 11 – Education\nFeb 18 – Careers\nFeb 25 – Raising Awareness \nHere’s how it works:\nAt 8 PM EST each Wednesday\, we’ll post a series of questions related to the week’s theme right on our Facebook page. Whether you’re a TS patient or caregiver\, you can join the chat by commenting your answers and replying to others in the comments. \nIt’s a chance to connect\, reflect\, and learn from one another\, because every story matters\, and someone else might need to hear it. \nRSVP by following our Facebook page and turning on post notifications so you don’t miss a thing! https://www.facebook.com/turnersyndromefoundation
URL:https://turnersyndromefoundation.org/event/getting-to-know-you/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-4.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260114T203552Z
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
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DTSTART;TZID=America/New_York:20260109T080000
DTEND;TZID=America/New_York:20260301T170000
DTSTAMP:20260109T231111Z
CREATED:20260109T230752Z
LAST-MODIFIED:20260109T231111Z
UID:10002872-1767945600-1772384400@turnersyndromefoundation.org
SUMMARY:Join the Turner Syndrome Awareness Crew
DESCRIPTION:Sign Up Form\nSmall actions = Big ripple effects = Meaningful awareness all year long!\nRaising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. \nThat’s why we created the Turner Syndrome Awareness Crew — a low-commitment\, high-impact way to help spread awareness in your community\, online\, and beyond all year round. \nWhen many people take simple actions together\, awareness grows farther than any one person could reach alone. \nWhat Is the Awareness Crew?\nThe Turner Syndrome Awareness Crew is a group of supporters who take small\, meaningful actions to help educate others and spark conversations about Turner syndrome. \nThere’s no minimum time requirement\, no pressure to do everything\, and no “right” way to raise awareness. \nWhat Kind of Actions Are We Talking About?\nThink simple and flexible\, yet high-impact: \n\n? Sharing or creating a social media post\n? Dropping off a flyer at a doctor’s office\, school\, or workplace\n?? Signing or sharing a petition\n? Talking with friends\, family\, or coworkers about Turner syndrome\n? Participating in Awareness Month activities\n\nEach action might only take a few minutes\, but when many of us come together to take action\, they create a powerful ripple effect. \n\n\nRaise Awareness and Bring Others Along\nEvery Awareness Crew member will receive a personal fundraising page\, making it easy to invite friends\, family\, and your community to support Turner syndrome awareness alongside you. \nYou don’t need to fundraise actively if you don’t want to. But if you do share your page\, you’re helping amplify awareness and support year-round. \nWhy It Matters\nAwareness leads to: \n\nEarlier diagnoses\nBetter understanding in doctors’ offices\, schools\, and workplaces\nStronger advocacy\nA more informed and compassionate community\n\nWhen many people take small steps\, the impact grows! \nReady to Be Part of the Crew?\nIf you’ve ever wanted to help raise awareness\, but weren’t sure how\, this is your invitation. \n? Join the Turner Syndrome Awareness Crew\n? Take simple actions when it works for you\n? Be part of something bigger than yourself \n? Shop for TSAM New Merch \nSign up today and start making an impact\, one small action at a time! \n\n\n\n\n\n 
URL:https://turnersyndromefoundation.org/event/%f0%9f%8c%9f-join-the-turner-syndrome-awareness-crew-%f0%9f%8c%9f/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/TSAM-Crew.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251008T200000
DTEND;TZID=America/New_York:20251008T210000
DTSTAMP:20250820T141954Z
CREATED:20250425T220833Z
LAST-MODIFIED:20250820T141954Z
UID:10002173-1759953600-1759957200@turnersyndromefoundation.org
SUMMARY:Webinar Prenatal Monosomy X: What a Genetic Counselor Wants You to Know
DESCRIPTION:Register Now for This Webinar\nThis is a We Learn education activity presented by an expert in their field as part of the programming of the Turner Syndrome Foundation. Donations help our mission continue to develop and provide programs that support the TS community. Show your commitment to the cause – become a 1938 Sustaining Supporter. \nThe event will be rescheduled. The date will be determined. Signup to receive event notifications\, link\, and recording. \n\n  \nShort overview of the topic: \nThis presentation will focus on prenatal monosomy X from a clinical genetic counseling perspective. Topics covered will be current prenatal screening and diagnostic testing\, impact on prenatal care\, and resources for expectant parents.\nRegister Now for This Webinar \nShort overview of the topic: \nThis presentation will focus on prenatal monosomy X from a clinical genetic counseling perspective. Topics covered will be current prenatal screening and diagnostic testing\, impact on prenatal care\, and resources for expectant parents. \nWhat You Will Learn: \nI am a clinical prenatal genetic counselor. In my clinical practice I routinely care for patients who are carrying a pregnancy with a suspected or known prenatal diagnosis of monosomy X. I have also provided preconception counseling to patients who have mosaic or full Turner syndrome. Participants should have a better understanding of the benefits and limitations of current prenatal screening for monosomy X and the importance of additional clinical follow-up for positive screens. Participants will also learn about the wide clinical spectrum of monosomy X in the prenatal period. There continues to be broad misconceptions about the accuracy\, benefits\, and limitations of current prenatal screening\, and this talk will touch on many of these. Additionally\, every couple has a chance to have a child or pregnancy with TS\, so this information is relevant to any person considering having a child. Finally\, a cursory google search about prenatal turner syndrome or monosomy X often yields inaccurate information\, leading the general population to often have misconceptions about the prenatal features of TS. \nWho Should Attend:\nIndividuals\, allied health professionals\, educators\, administrators\, and policymakers are encouraged to attend. \nAbout the Presenter: \nEmily Green\, Masters of Genetic Counseling\, 2021 PhD in Cellular and Molecular Biology\, 2019 Masters of Cellular and Molecular Biology\, 2016 Certified Genetic Counselor\, 2022 \nI am a clinical genetic counselor specializing in prenatal and reproductive genetics at the University of Washington. I primarily see patients referred to our high-risk prenatal clinic\, though I also see patients for preconception counseling before or after pregnancy. I routinely see patients who have had abnormal noninvasive prenatal screening and/or abnormal ultrasound findings\, including cases of potential monosomy X. I am passionate about providing information and support to all my patients\, particularly those who experience an unexpected diagnosis during pregnancy. I am also a mentor and clinical supervisor for University of Washington genetic counseling students. \nI was raised in the Pacific Northwest and grew up with a passion for biology. This led me to pursue undergraduate studies at Western Washington University. While at Western I also continued studies in French\, which led me to a Masters and PhD in cellular and Molecular biology in Strasbourg\, France\, where I focused primarily on developing strategies to block malaria transmission by mosquitoes. A desire to move away from research and into applied work led me to genetic counseling\, which merges my interest in genetics with my desire to work with people and support patients. I graduated from the University of Arizona genetic counseling program in 2019 and since that time have been working at the University of Washington Medical Center. Outside of my clinical work\, I enjoy all the outdoor activities Washington has to offer\, as well as social dancing and knitting. \nPlease Donate!\nIt is free to register. We ask you to please donate\, if you can\, to support our work in providing enriching education programs for all. Your donation today helps to make programs like this one readily available to anyone virtually anywhere in the world. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity to be provided freely and accessible to everyone. Show your commitment to the cause – become a 1938 Sustaining Supporter.
URL:https://turnersyndromefoundation.org/event/webinar-prenatal-monosomy-x-what-a-genetic-counselor-wants-you-to-know/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2025/04/Prenatal-Monosomy-X-What-a-Genetic-Counselor-Wants-You-to-Know.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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