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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260901
DTSTAMP:20260605T024859
CREATED:20260409T200310Z
LAST-MODIFIED:20260410T180946Z
UID:10002926-1775001600-1788220799@turnersyndromefoundation.org
SUMMARY:Study for Patient and Caregiver Perspectives of Genetics Care
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/study-for-patient-and-caregiver-perspectives-of-genetics-care/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Patient-and-caregiver-perspectivesjpg-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260605T024859
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260713T200000
DTEND;TZID=America/New_York:20260713T210000
DTSTAMP:20260605T024859
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002080-1783972800-1783976400@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-07-13/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260605T024859
CREATED:20260420T174445Z
LAST-MODIFIED:20260420T174445Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260731T200000
DTEND;TZID=America/New_York:20260731T220000
DTSTAMP:20260605T024859
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000075-1785528000-1785535200@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-07-31/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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