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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260109T080000
DTEND;TZID=America/New_York:20260301T170000
DTSTAMP:20260605T043255
CREATED:20260109T230752Z
LAST-MODIFIED:20260109T231111Z
UID:10002872-1767945600-1772384400@turnersyndromefoundation.org
SUMMARY:Join the Turner Syndrome Awareness Crew
DESCRIPTION:Sign Up Form\nSmall actions = Big ripple effects = Meaningful awareness all year long!\nRaising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. \nThat’s why we created the Turner Syndrome Awareness Crew — a low-commitment\, high-impact way to help spread awareness in your community\, online\, and beyond all year round. \nWhen many people take simple actions together\, awareness grows farther than any one person could reach alone. \nWhat Is the Awareness Crew?\nThe Turner Syndrome Awareness Crew is a group of supporters who take small\, meaningful actions to help educate others and spark conversations about Turner syndrome. \nThere’s no minimum time requirement\, no pressure to do everything\, and no “right” way to raise awareness. \nWhat Kind of Actions Are We Talking About?\nThink simple and flexible\, yet high-impact: \n\n? Sharing or creating a social media post\n? Dropping off a flyer at a doctor’s office\, school\, or workplace\n?? Signing or sharing a petition\n? Talking with friends\, family\, or coworkers about Turner syndrome\n? Participating in Awareness Month activities\n\nEach action might only take a few minutes\, but when many of us come together to take action\, they create a powerful ripple effect. \n\n\nRaise Awareness and Bring Others Along\nEvery Awareness Crew member will receive a personal fundraising page\, making it easy to invite friends\, family\, and your community to support Turner syndrome awareness alongside you. \nYou don’t need to fundraise actively if you don’t want to. But if you do share your page\, you’re helping amplify awareness and support year-round. \nWhy It Matters\nAwareness leads to: \n\nEarlier diagnoses\nBetter understanding in doctors’ offices\, schools\, and workplaces\nStronger advocacy\nA more informed and compassionate community\n\nWhen many people take small steps\, the impact grows! \nReady to Be Part of the Crew?\nIf you’ve ever wanted to help raise awareness\, but weren’t sure how\, this is your invitation. \n? Join the Turner Syndrome Awareness Crew\n? Take simple actions when it works for you\n? Be part of something bigger than yourself \n? Shop for TSAM New Merch \nSign up today and start making an impact\, one small action at a time! \n\n\n\n\n\n 
URL:https://turnersyndromefoundation.org/event/%f0%9f%8c%9f-join-the-turner-syndrome-awareness-crew-%f0%9f%8c%9f/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/TSAM-Crew.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260605T043255
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T090000
DTEND;TZID=America/New_York:20260315T235900
DTSTAMP:20260605T043255
CREATED:20260126T213436Z
LAST-MODIFIED:20260303T191030Z
UID:10002885-1772269200-1773619140@turnersyndromefoundation.org
SUMMARY:Card Auction 2026
DESCRIPTION:THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation\nChoose from a beautiful array of custom-made designer greeting cards. \nBid Now Until 3/15! \nDonate \nTSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces for all occasions and donate them to benefit TSF. Greeting card connoisseurs and art enthusiasts will bid on their favorite cards. After the auction ends\, TSF will send the cards to the highest bidders. Card donations begin at $5.00. \nThe auction begins on February 28\, 2026\, at 9 AM EDT\, which is Rare Disease Day\, and ends on March 15\, 2026\, at midnight! \nPlace Your Bid Here With @MULCHLADY6 \nHow to BID on a card:\nAll Bids start at $5.00 with increasing bids of $1.00 \nShipping is free in the US unless you want priority shipping with tracking and that will be determined by the Post Office. International Shipping will also be determined by the post office. \n1) Please place your bid in US dollar amounts in the comment section under the photo of the card you want\n2) Please be sure to tag the highest bidder with your bid. Example #mulchlady6$10\n3) Once the auction is over and the winners are figured out the highest bidder will be contacted with a link of where to send their donation.\n4) Once proof of the donation is confirmed the card will be mailed out.\n5) If we do not hear back from the highest bidder within 24 hours\, we will move to the next highest bidder on that card. \n\n\n\nThe Turner Syndrome Awareness Card Auction is a collaborative Card Auction benefiting the Turner Syndrome Foundation\, which operates solely on donations. TS is a complex condition affecting 1 in every 2\,000 women and girls. Join Lori in supporting this cause! The very talented card designers who have donated their amazing cards are from all over the world and work on Design Teams for various crafting companies that sell dies\, stamps\, and other cardmaking supplies. They are the most generous and caring people! They have poured lots of love into each of their creations! \nAll sales are final. No refunds or warranties are promised or provided. This fundraiser supports the Turner Syndrome Foundation\, a 501(c)3 charitable organization. \nDesigners who wish to donate their cards may contact Lori at lkobular@tsfusa.org.\nMail checks payable to Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733 \nThank you all so much for your support!  
URL:https://turnersyndromefoundation.org/event/card-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Card-Auction-Graphic-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260304T200000
DTEND;TZID=America/New_York:20260304T210000
DTSTAMP:20260605T043255
CREATED:20260209T231722Z
LAST-MODIFIED:20260209T232221Z
UID:10002902-1772654400-1772658000@turnersyndromefoundation.org
SUMMARY:Webinar: Hearing Loss Rehabilitation Counseling
DESCRIPTION:This session will review different types of hearing loss and causes of hearing loss.  It will also provide possible services and resources available.  Lastly\, it will identify reasonable accommodations that are needed in the home\, school\, or workplace.\n \nJoin an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused on understanding hearing loss and supporting individuals who experience it across the lifespan. This webinar will review the different types and causes of hearing loss\, explore available services and resources\, and identify reasonable accommodations that can be implemented in the home\, school\, and workplace. \nWith more than five decades of professional experience\, the presenter brings a deep and personal commitment to this field. After learning American Sign Language in 1972\, they worked for many years as an interpreter for the Deaf\, later serving as a Rehabilitation Counselor for the Deaf and State Coordinator for the Deaf in North Carolina. Currently\, they serve as Adjunct Faculty at Winston-Salem State University\, teaching courses such as Counseling Deaf People\, Psychosocial Aspects of Deafness\, and Vocational Evaluation of Deaf People. Their academic background includes a PhD in Rehabilitation Counseling & Rehabilitation Counselor Education from NC A&T State University\, a Master’s degree in Rehabilitation Counseling for the Deaf from Gallaudet University\, and a dual BA in Early Childhood Education and Deaf Education from Lenoir-Rhyne College. They are also a Certified Rehabilitation Counselor and Licensed Clinical Mental Health Counselor. \nWho Should Attend & What You’ll Gain \nParticipants will: \nLearn how to ethically and legally work with individuals who have hearing loss \nGain a clearer understanding of the symptoms and causes of hearing loss \nLeave better prepared to provide effective\, inclusive services \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection who experiences hearing loss. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, and philanthropists \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-hearing-loss-rehab-counsel/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/LTanya-Therese-Fish-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T043255
CREATED:20260217T210542Z
LAST-MODIFIED:20260227T105821Z
UID:10002903-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:Webinar: Legislative Advocacy Information Session
DESCRIPTION:Join the Legislative Advocacy Information Session\n  \nThank you for being part of the Turner Syndrome community. As our efforts continue to grow\, we are expanding opportunities for community members to get involved in meaningful\, mission-driven advocacy. \nWhether you are an experienced advocate or just beginning to explore how you can make a difference\, we invite you to attend this information session to learn more about the work of the Turner Syndrome Foundation’s Legislative Advocacy Committee—and how you can contribute in ways that align with your skills\, interests\, and availability. \nYour voice\, perspective\, and commitment matter. We welcome you to join us in advancing change together.\n \nWho Should Attend \nIndividuals with lived experience of Turner syndrome \nParents\, caregivers\, and family members \nHealthcare\, education\, or social service professionals \nStudents and emerging advocates \nCommunity members interested in policy and social impact \nAnyone curious about how legislative advocacy works \nNo prior advocacy experience is required. \nParticipants will: \nLearn how to ethically and effectively advance Turner syndrome awareness within communities and through public policy \nGain a clearer understanding of how legislative advocacy works at local\, state\, and national levels \nExplore practical and responsible methods for engagement \nLeave better prepared with actionable strategies to support advocacy efforts \nWhy This Matters \nAdvocacy affects real lives. Nearly everyone has a family member\, friend\, colleague\, or community connection touched by Turner syndrome. Understanding how policies are shaped—and how you can contribute—helps create more informed\, inclusive\, and supportive communities. \nWhether you work in education\, healthcare\, counseling\, nonprofit leadership\, or simply want to be a more engaged citizen\, this session provides practical knowledge you can apply in meaningful ways. \nSign The Petition Here! \nEvent Link:\nCheck the email you provide at registration to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-legislative-advocacy-information-session/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/Legislative-Advocacy-Information-Session.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260605T043255
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260327T200000
DTEND;TZID=America/New_York:20260327T220000
DTSTAMP:20260605T043255
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000071-1774641600-1774648800@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-03-27/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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