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DTSTART;TZID=America/New_York:20250918T200000
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DTSTAMP:20260605T161907
CREATED:20250822T162507Z
LAST-MODIFIED:20250822T165754Z
UID:10002850-1758225600-1758229200@turnersyndromefoundation.org
SUMMARY:Living With Turner Syndrome: Caring For Your Heart and Blood Vessels
DESCRIPTION:Cardiovascular health is an important topic for the TS community as several concerns are more common in TS than in the general population. In this webinar\, Dr. Prakash provides an overview of these concerns and the care guidelines to ensure early detection. After reviewing congenital heart and blood vessel problems that are more common in people with Turner syndrome\, Dr. Prakash will discuss recommendations for screening and treatment of cardiovascular disease. Aortic dissection and heart disease affect many people who do not have TS. The principles in this presentation apply to many people in the non-TS general population who are living with heart and blood vessel conditions.\n \nTopic Overview:  \nWhat is aortic dissection\, and why is it something that the TS community needs to be aware of?\nWhat can patients do to be proactive about their heart health?\nWhat monitoring and evaluations are recommended in the Clinical Care Guidelines?\nWhat should be in an emergency action plan for people with TS?\nIf an aortic dissection does take place\, what are the next steps for intervention?\nHow can patients can support TS/aortic dissection research? \nWho Should Attend:\nPatients\, caregivers\, allied health professionals\, clinical researchers\, health administration\, policymakers\, philanthropists \nWebinar Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nAbout the Presenter: \nDr. Prakash is Professor of Internal Medicine at the University of Texas Health Science Center at Houston. He is the co-director of the Turner Syndrome Adult Comprehensive Care Center\, directs the aortopathy clinic\, and conducts collaborative research on bicuspid aortic valve and Turner syndrome. \nDegree & Certifications:\nMD\, PhD Adult Congenital Heart Disease Adult Cardiovascular Disease Internal Medicine Echocardiography \nSpecialty & Area of Focus:\nSiddharth Prakash has a Ph.D. in Molecular and Human Genetics from Baylor College of Medicine\, where he also completed his residency in Internal Medicine and a fellowship in Cardiovascular Disease. He is board certified in cardiology\, echocardiography\, and adult congenital heart disease. Since 2011\, Dr. Prakash has worked as the cardiologist in the Multidisciplinary Aortic and Vascular Disease Clinic at McGovern Medical School\, a part of the University of Texas Health Science Center at Houston\, where he specializes in medical therapy\, imaging\, and surveillance of patients with heritable aortic and vascular diseases. He is Professor of Internal Medicine and is co-director of the Turner Syndrome Adult Comprehensive Care Center\, a multispecialty clinic that sees Turner syndrome patients from across the southwest region. He leads the national Turner Syndrome Research Registry and is chair of the Scientific Advisory Board of the Turner Syndrome Society of the United States. He also co-chairs the Collaborative Clinical Science working group of the GenTAC Alliance and is an investigator with the Montalcino Aortic Consortium. Dr. Prakash’s translational research focuses on the contribution of rare genetic variants to bicuspid aortic valve (BAV)\, the most common adult congenital heart defect. Dr. Prakash uses an innovative strategy to identify new candidate genes for BAV\, based in part on the hypothesis that reduced dosage of genes on the X chromosome is responsible for sex differences in the prevalence of BAV and other congenital heart diseases. His team demonstrated that specific rare genetic variants predict complications of patients with BAV. Dr. Prakash has received funding from the National Science 1 Foundation\, American Heart Association\, National Institutes of Health\, and the John Ritter Foundation for Aortic Health\, which funded the first clinical trial of exercise in aortic dissection survivors led by Dr. Prakash. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity provided freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/living-with-turner-syndrome-caring-for-your-heart-and-blood-vessels/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2025/08/Living-With-Turner-Syndrome-Caring-For-Your-Heart-and-Blood-Vessels.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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DTSTART;TZID=America/New_York:20250926T200000
DTEND;TZID=America/New_York:20250926T220000
DTSTAMP:20260605T161907
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000065-1758916800-1758924000@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2025-09-26/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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